Health-related quality of life in sickle cell disease: past, present, and future. Pediatr Blood Cancer 2012 Aug;59(2):377-85
Date
04/24/2012Pubmed ID
22522407DOI
10.1002/pbc.24176Scopus ID
2-s2.0-84862269475 (requires institutional sign-in at Scopus site) 152 CitationsAbstract
Health-related quality of life (HRQL) is defined as the patient's appraisal of how his/her well being and level of functioning, compared to the perceived ideal, are affected by individual health. The study of HRQL in children and adults with sickle cell disease (SCD) has begun to flourish. Given the devastating complications of the disease and other co-morbid factors patients experience that influence HRQL, it is increasingly important to understand HRQL. The focus of this critical review was to examine past and current research in HRQL in SCD where a validated instrument was used. In addition, future directions for HRQL in SCD are explored.
Author List
Panepinto JA, Bonner MMESH terms used to index this publication - Major topics in bold
AdultAnemia, Sickle Cell
Child
Health Status
Humans
Quality of Life
