Kaugars AS, Bungert N, Lee KJ, Michlig J, Oswald DL, Paul MK, Quates SK, Schnell JL. Capturing caregivers\' and families\' experiences in a Complex Care Program: development of the Complex Care Program-Family Impact Questionnaire (CCP-FIQ). J Pediatr Psychol. 2025 Nov 16 PMID: 41241776 PMCID: PMC12826604 11/16/2025
Tager JB, Kenney AE, Lim PS, Everhart SA, Johaningsmeir S, Balistreri KA, Morgan-Tautges A, Lee KJ, Brophey MA, Scanlon MC, Rothschild CB, Davies WH, Schnell JL. Coping and Meaning-Making Strategies Described by Parents of Children with Medical Complexity. Clin Pract Pediatr Psychol. 2025 Sep;13(3):247-258 PMID: 41019424 PMCID: PMC12463315 09/29/2025
Schnell JL, Tager JB, Kenney AE, Lim PS, Everhart SA, Johaningsmeir S, Balistreri KA, Morgan-Tautges A, Berridge KE, Brophey M, Rothschild CB, Scanlon MC, Davies WH, Lee KJ. Impact of Systems of Care on Emotional Well-Being of Primary Family Caregivers of Children with Medical Complexity. Matern Child Health J. 2025 Mar;29(3):405-414 PMID: 39920541 PMCID: PMC12352745 SCOPUS ID: 2-s2.0-105001089778 02/08/2025
Schnell JL, Kaugars AS, Johaningsmeir S, Quates SK, Lee KJ. Listening to families: qualitative analysis of family perspectives on the impact of participating in a complex care program Children S Health Care. 2025;54(3):350-361 SCOPUS ID: 2-s2.0-85210753534 01/01/2025
Tager JB, Kenney AE, Lim PS, Everhart SA, Johaningsmeir S, Balistreri KA, Morgan-Tautges A, Berridge KE, Brophey M, Rothschild CB, Scanlon MC, Davies WH, Lee KJ, Schnell JL. The impact of the COVID-19 pandemic on families of children with medical complexity: A qualitative study of caregivers\' experiences. Child Care Health Dev. 2024 Jan;50(1):e13187 PMID: 37855455 SCOPUS ID: 2-s2.0-85174263929 10/19/2023
Edwards JD, Wocial LD, Madrigal VN, Moon MM, Ramey-Hunt C, Walter JK, Baird JD, Leland BD, Akers J, Carlson S, Carnevale F, Chaillou AL, Check J, Crowley H, Dewitt A, Garcia X, Goodman D, Graf J, Graham R, Grossoehme D, Hagen S, Hannan A, Harris D, Haut C, Hayes T, Hicks S, Johnson M, Lee KJ, Parlow B, Roberts L, Sanders M, Schindler C, Schwartz D, Steffen K. Continuity Strategies for Long-Stay PICU Patients: Consensus Statements From the Lucile Packard Foundation PICU Continuity Panel Pediatric Critical Care Medicine. 1 October 2023;24(10):849-861 SCOPUS ID: 2-s2.0-85174739724 10/01/2023
Rothschild CB, Balistreri KA, Mulligan K, Lee KJ, Karst J, Privatt M, Magner K, Lee HJ, Scanlon M, Davies WH, Pediatric Collaborative for Resilience and Emotional Wellness Science (Pediatric CREWS). Acceptability and Feasibility of Text Message Interface to Assess Parents\' Real-time PICU Experiences. J Intensive Care Med. 2024 Feb;39(2):159-169 PMID: 37605433 SCOPUS ID: 2-s2.0-85170078388 08/22/2023
Ghavam A, Thompson NE, Lee J. Comparison of pediatric brain-dead donors to donation after circulatory death donors in the United States. Pediatr Transplant. 2021 May;25(3):e13926 PMID: 33326666 SCOPUS ID: 2-s2.0-85097604353 12/17/2020
Owens H, Hansen SP, Lee KJ. Caring for Maya: A Family, Pediatrician, and Complex Care Partnership. Pediatr Ann. 2020 Nov 01;49(11):e486-e490 PMID: 33170297 SCOPUS ID: 2-s2.0-85095965861 11/11/2020
Lee KJ, Hill DL, Feudtner C. Decision-Making for Children with Medical Complexity: The Role of the Primary Care Pediatrician. Pediatr Ann. 2020 Nov 01;49(11):e473-e477 PMID: 33170295 SCOPUS ID: 2-s2.0-85095963643 11/11/2020