Medical College of Wisconsin
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Meghan C. Halley PhD, BA, MPH

Meghan C. Halley PhD, BA, MPH profile photo picture

Assistant Professor

Institution: Medical College of Wisconsin
Department: Institute for Health and Humanity
Division: Institute for Health and Humanity Center for Bioethics and Medical Humanities

image of /images/ORCIDiD_icon16x16.png   https://orcid.org/0000-0002-5031-9840


I am willing to collaborate on research projects.
I am willing to be a peer mentor.
I am willing to mentor a junior faculty member.

Publications (46)

  • Harmonizing standards and resources for the medical genome. (Ashley EA, Alizadeh AA, Armitage H, Bhatt AS, Blumenfeld Y, Carroll A, Chavez RM, Giannikopoulos P, Grove ME, Halley MC, Khush K, Lennon NJ, Maragh S, Marson A, Paten B, Phillippy AM, Porteus MH, Rehm HL, Ringeisen BR, Salzman J, Schneider VA, Sedlazeck FJ, Steinmetz LM, Urnov FD, Wyman SK, Zook JM, Minor LB, Doudna JA) Nature 2026 Jul;655(8121):47-58 PMID: 42387168 SCOPUS ID: 2-s2.0-105043678598 07/02/2026    
  • Whose Values Define Value? Procedural Justice and the Personal Utility of Clinical Genomic Testing. (Halley MC) Am J Bioeth 2026 May;26(5):1-3 PMID: 42053526 PMCID: PMC13180268 SCOPUS ID: 2-s2.0-105037426219 04/29/2026    
  • "Nobody listened to us for years": Parents' experiences of provider communication in the diagnostic odyssey. (Nguyen MM, Mahfoozi S, Bonner D, Martschenko DO, Giri A, Tang C, Undiagnosed Diseases Network, Bernstein JA, Wheeler MT, Halley MC) Mol Genet Metab 2025 Dec;146(4):109283 PMID: 41232198 PMCID: PMC12862594 SCOPUS ID: 2-s2.0-105023911059 11/14/2025       5 Citations
  • Sustainability in translational genomics research with undiagnosed patients: What is it, why do we need it, and how do we do it? (Young JL, Tang C, Liang L, Ashley EA, Tabor HK, Halley MC) Genet Med 2025 Aug;27(8):101458 PMID: 40411343 PMCID: PMC12318661 SCOPUS ID: 2-s2.0-105008959663 05/25/2025    
  • Exploring How Claims of "Suffering" are Operationalized in Pediatric Critical Care. (Grekov K, Batten J, Tate T, Anand KJS, Magnus D, Halley MC) J Pain Symptom Manage 2025 Aug;70(2):e167-e175 PMID: 40389182 SCOPUS ID: 2-s2.0-105008105060 05/20/2025    
  • A Just Genomics Needs an ELSI of Translation. (Halley MC, Olson NW, Ashley EA, Goldenberg AJ, Tabor HK) Hastings Cent Rep 2024 Dec;54 Suppl 2:S126-S135 PMID: 39707956 SCOPUS ID: 2-s2.0-85212709285 12/22/2024       5 Citations
  • Health-related quality of life in patients with diverse rare diseases: An online survey. (Rao A, Yabumoto M, Ward-Lev E, Miller EG, Naik H, Halley MC) Genet Med Open 2024;2:101889 PMID: 39669621 PMCID: PMC11613748 SCOPUS ID: 2-s2.0-85208500179 12/13/2024       6 Citations
  • "Learning from those who know the system inside and out": Experiences of physician mothers who are informal caregivers. (Semere W, Ponce AN, Linos E, Jagsi R, Mangurian C, Halley MC) Fam Syst Health 2025 Jun;43(2):386-393 PMID: 39666478 PMCID: PMC12159254 SCOPUS ID: 2-s2.0-85213277002 12/12/2024    
  • Blurred Boundaries: Toward an Expanded Ethics of Research and Clinical Care. (Halley MC, Olson NW) Am J Bioeth 2023 Aug;23(8):5-9 PMID: 38410998 PMCID: PMC11774246 SCOPUS ID: 2-s2.0-85165259078 02/27/2024       1 Citation
  • Developer Perspectives on Potential Harms of Machine Learning Predictive Analytics in Health Care: Qualitative Analysis. (Nichol AA, Sankar PL, Halley MC, Federico CA, Cho MK) J Med Internet Res 2023 Nov 16;25:e47609 PMID: 37971798 PMCID: PMC10690528 SCOPUS ID: 2-s2.0-85177451250 11/17/2023       7 Citations
  • Genomics Research with Undiagnosed Children: Ethical Challenges at the Boundaries of Research and Clinical Care. (Halley MC, Young JL, Tang C, Mintz KT, Lucas-Griffin S, Maghiro A, Ashley EA, Tabor HK, Undiagnosed Diseases Network) J Pediatr 2023 Oct;261:113537 PMID: 37271495 PMCID: PMC10527480 SCOPUS ID: 2-s2.0-85163843917 06/05/2023       10 Citations
  • Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care. (Halley MC, Halverson CME, Tabor HK, Goldenberg AJ) Am J Bioeth 2023 Jul;23(7):17-26 PMID: 37204146 PMCID: PMC10321139 SCOPUS ID: 2-s2.0-85159680708 05/19/2023       35 Citations
  • Demographic Characteristics Associated With Perceptions of Personal Utility in Genetic and Genomic Testing: A Systematic Review. (Miller EG, Young JL, Rao A, Ward-Lev E, Halley MC) JAMA Netw Open 2023 May 01;6(5):e2310367 PMID: 37145601 PMCID: PMC10163389 SCOPUS ID: 2-s2.0-85159119618 05/05/2023       14 Citations
  • Patient Perspectives of Health System Barriers to Accessing Care for Hidradenitis Suppurativa: A Qualitative Study. (Barnes LA, Shukla N, Paul M, de Vere Hunt I, Halley MC, Linos E, Naik HB) JAMA Dermatol 2023 May 01;159(5):510-517 PMID: 37017984 PMCID: PMC10077133 SCOPUS ID: 2-s2.0-85159761520 04/06/2023       17 Citations
  • Perspectives of Rare Disease Social Media Group Participants on Engaging With Genetic Counselors: Mixed Methods Study. (Yabumoto M, Miller E, Rao A, Tabor HK, Ormond KE, Halley MC) J Med Internet Res 2022 Dec 21;24(12):e42084 PMID: 36542454 PMCID: PMC9813816 SCOPUS ID: 2-s2.0-85144597152 12/22/2022       12 Citations
  • Not in my AI: Moral engagement and disengagement in health care AI development. (Nichol AA, Halley MC, Federico CA, Cho MK, Sankar PL) Pac Symp Biocomput 2023;28:496-506 PMID: 36541003 PMCID: PMC9782696 SCOPUS ID: 2-s2.0-85144318649 12/22/2022       10 Citations
  • How Do You Decide Who Saves Your Child's Life? (Halley MC) Narrat Inq Bioeth 2022;12(2):E5-E6 PMID: 36373518 SCOPUS ID: 2-s2.0-85141691211 11/15/2022    
  • Beyond "Ensuring Understanding": Toward a Patient-Partnered Neuroethics of Brain Device Research. (Halley MC, Dixon-Salazar T, Wexler A) AJOB Neurosci 2022;13(4):241-244 PMID: 36272165 PMCID: PMC9701541 SCOPUS ID: 2-s2.0-85140328890 10/23/2022       6 Citations
  • Beyond race: Recruitment of diverse participants in clinical genomics research for rare disease. (Young JL, Halley MC, Anguiano B, Fernandez L, Bernstein JA, Wheeler MT, Tabor HK, Undiagnosed Diseases Network Consortium) Front Genet 2022;13:949422 PMID: 36072659 PMCID: PMC9441547 SCOPUS ID: 2-s2.0-85138081303 09/09/2022       19 Citations
  • Supporting undiagnosed participants when clinical genomics studies end. (Halley MC, Ashley EA, Tabor HK) Nat Genet 2022 Aug;54(8):1063-1065 PMID: 35902745 PMCID: PMC9421423 SCOPUS ID: 2-s2.0-85135230620 07/29/2022       7 Citations
  • A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States. (Halley MC, Smith HS, Ashley EA, Goldenberg AJ, Tabor HK) Nat Genet 2022 Mar;54(3):219-222 PMID: 35256804 PMCID: PMC9016354 SCOPUS ID: 2-s2.0-85125729938 03/09/2022       33 Citations
  • Perceived utility and disutility of genomic sequencing for pediatric patients: Perspectives from parents with diverse sociodemographic characteristics. (Halley MC, Young JL, Fernandez L, Kohler JN, Undiagnosed Diseases Network, Bernstein JA, Wheeler MT, Tabor HK) Am J Med Genet A 2022 Apr;188(4):1088-1101 PMID: 34981646 PMCID: PMC8923971 SCOPUS ID: 2-s2.0-85122335461 01/05/2022       40 Citations
  • From "Ought" to "Is": Surfacing Values in Patient and Family Advocacy in Rare Diseases. (Halley MC) Am J Bioeth 2021 Dec;21(12):1-3 PMID: 34806973 PMCID: PMC8725198 SCOPUS ID: 2-s2.0-85119667852 11/23/2021       6 Citations
  • Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. (Miller EG, Woodward AL, Flinchum G, Young JL, Tabor HK, Halley MC) Genet Med 2021 Dec;23(12):2250-2259 PMID: 34282302 PMCID: PMC8720387 SCOPUS ID: 2-s2.0-85110641357 07/21/2021       34 Citations
  • A Typology of Existing Machine Learning-Based Predictive Analytic Tools Focused on Reducing Costs and Improving Quality in Health Care: Systematic Search and Content Analysis. (Nichol AA, Batten JN, Halley MC, Axelrod JK, Sankar PL, Cho MK) J Med Internet Res 2021 Jun 22;23(6):e26391 PMID: 34156338 PMCID: PMC8277386 SCOPUS ID: 2-s2.0-85108803335 06/23/2021       18 Citations
  • "Doctors can read about it, they can know about it, but they've never lived with it": How parents use social media throughout the diagnostic odyssey. (Deuitch NT, Beckman E, Halley MC, Young JL, Reuter CM, Kohler J, Bernstein JA, Wheeler MT, Undiagnosed Diseases Network, Ormond KE, Tabor HK) J Genet Couns 2021 Dec;30(6):1707-1718 PMID: 34096130 PMCID: PMC8777467 SCOPUS ID: 2-s2.0-85107430685 06/08/2021       27 Citations
  • Age-Related Differences in Experiences With Social Distancing at the Onset of the COVID-19 Pandemic: A Computational and Content Analytic Investigation of Natural Language From a Social Media Survey. (Moore RC, Lee AY, Hancock JT, Halley MC, Linos E) JMIR Hum Factors 2021 Jun 09;8(2):e26043 PMID: 33914689 PMCID: PMC8191726 SCOPUS ID: 2-s2.0-85107868218 04/30/2021       26 Citations
  • The Intersection of Work and Home Challenges Faced by Physician Mothers During the Coronavirus Disease 2019 Pandemic: A Mixed-Methods Analysis. (Halley MC, Mathews KS, Diamond LC, Linos E, Sarkar U, Mangurian C, Sabry H, Goyal MK, Olazo K, Miller EG, Jagsi R, Linos E) J Womens Health (Larchmt) 2021 Apr;30(4):514-524 PMID: 33761277 PMCID: PMC8182656 SCOPUS ID: 2-s2.0-85104879052 03/25/2021       44 Citations
  • Caring for the Caregivers - Covid-19 Vaccination for Essential Members of the Health Care Team. (Halley MC, Mangurian C) N Engl J Med 2021 Mar 04;384(9):e33 PMID: 33577149 PMCID: PMC8721589 SCOPUS ID: 2-s2.0-85102601795 02/13/2021       11 Citations
  • Anxiety Levels Among Physician Mothers During the COVID-19 Pandemic. (Linos E, Halley MC, Sarkar U, Mangurian C, Sabry H, Olazo K, Mathews KS, Diamond L, Goyal MK, Linos E, Jagsi R) Am J Psychiatry 2021 Feb 01;178(2):203-204 PMID: 33517747 SCOPUS ID: 2-s2.0-85100647777 02/02/2021       15 Citations
  • "It seems like COVID-19 now is the only disease present on Earth": living with a rare or undiagnosed disease during the COVID-19 pandemic. (Halley MC, Stanley T, Maturi J, Goldenberg AJ, Bernstein JA, Wheeler MT, Tabor HK) Genet Med 2021 May;23(5):837-844 PMID: 33420343 PMCID: PMC7792915 SCOPUS ID: 2-s2.0-85105461924 01/10/2021       31 Citations
  • When All You Have Is Quality of Life - Making Medical Decisions in the Face of Uncertainty. (Halley MC) N Engl J Med 2020 Oct 15;383(16):1507-1509 PMID: 33053282 SCOPUS ID: 2-s2.0-85092887084 10/15/2020       1 Citation
  • Barriers and Facilitators to Real-world Implementation of the Diabetes Prevention Program in Large Healthcare Systems: Lifestyle Coach Perspectives. (Halley MC, Petersen J, Nasrallah C, Szwerinski N, Romanelli R, Azar KMJ) J Gen Intern Med 2020 Jun;35(6):1684-1692 PMID: 32291720 PMCID: PMC7280375 SCOPUS ID: 2-s2.0-85083790306 04/16/2020       26 Citations
  • Implementation of a group-based diabetes prevention program within a healthcare delivery system. (Azar KMJ, Nasrallah C, Szwerinski NK, Petersen JJ, Halley MC, Greenwood D, Romanelli RJ) BMC Health Serv Res 2019 Oct 15;19(1):694 PMID: 31615525 PMCID: PMC6792249 SCOPUS ID: 2-s2.0-85073406505 10/17/2019       10 Citations
  • Beyond exploratory: a tailored framework for designing and assessing qualitative health research. (Rendle KA, Abramson CM, Garrett SB, Halley MC, Dohan D) BMJ Open 2019 Aug 27;9(8):e030123 PMID: 31462482 PMCID: PMC6720470 SCOPUS ID: 2-s2.0-85071564428 08/30/2019       160 Citations
  • Supporting caregivers during hematopoietic cell transplantation for children with primary immunodeficiency disorders. (Yoo J, Halley MC, Lown EA, Yank V, Ort K, Cowan MJ, Dorsey MJ, Smith H, Iyengar S, Scalchunes C, Mangurian C) J Allergy Clin Immunol 2019 Jun;143(6):2271-2278 PMID: 31178019 PMCID: PMC6559373 SCOPUS ID: 2-s2.0-85057157122 06/11/2019       13 Citations
  • Motivations among sexual-minority men for starting and stopping indoor tanning. (Admassu N, Pimentel MA, Halley MC, Torres J, Pascua N, Katz KA, Linos E) Br J Dermatol 2019 Jun;180(6):1529-1530 PMID: 30671929 PMCID: PMC6615883 SCOPUS ID: 2-s2.0-85062348310 01/24/2019       15 Citations
  • Physician mothers' experience of workplace discrimination: a qualitative analysis. (Halley MC, Rustagi AS, Torres JS, Linos E, Plaut V, Mangurian C, Choo E, Linos E) BMJ 2018 Dec 12;363:k4926 PMID: 30541926 PMCID: PMC6889631 SCOPUS ID: 2-s2.0-85058553096 12/14/2018       126 Citations
  • Collecting Practice-level Data in a Changing Physician Office-based Ambulatory Care Environment: A Pilot Study Examining the Physician induction interview Component of the National Ambulatory Medical Care Survey. (Halley MC, Rendle KA, Gugerty B, Lau DT, Luft HS, Gillespie KA) Vital Health Stat 2 2017 Nov(176):1-18 PMID: 29148968 SCOPUS ID: 2-s2.0-85065326313 11/18/2017       1 Citation
  • Mapping the Decision-Making Process for Adjuvant Endocrine Therapy for Breast Cancer: The Role of Decisional Resolve. (Beryl LL, Rendle KA, Halley MC, Gillespie KA, May SG, Glover J, Yu P, Chattopadhyay R, Frosch DL) Med Decis Making 2017 Jan;37(1):79-90 PMID: 27053528 SCOPUS ID: 2-s2.0-85014322507 04/08/2016       23 Citations
  • Implementation of Patient Decision Support Interventions in Primary Care: The Role of Relational Coordination. (Tietbohl CK, Rendle KA, Halley MC, May SG, Lin GA, Frosch DL) Med Decis Making 2015 Nov;35(8):987-98 PMID: 26314727 SCOPUS ID: 2-s2.0-84942850126 09/01/2015       12 Citations
  • Redefining Risk and Benefit: Understanding the Decision to Undergo Contralateral Prophylactic Mastectomy. (Rendle KA, Halley MC, May SG, Frosch DL) Qual Health Res 2015 Sep;25(9):1251-9 PMID: 25371380 SCOPUS ID: 2-s2.0-84939174562 11/06/2014       28 Citations
  • An exploratory mixed-methods crossover study comparing DVD- vs. Web-based patient decision support in three conditions: The importance of patient perspectives. (Halley MC, Rendle KA, Gillespie KA, Stanley KM, Frosch DL) Health Expect 2015 Dec;18(6):2880-91 PMID: 25263630 PMCID: PMC5810733 SCOPUS ID: 2-s2.0-84954525082 09/30/2014       8 Citations
  • Beyond barriers: fundamental 'disconnects' underlying the treatment of breast cancer patients' sexual health. (Halley MC, May SG, Rendle KA, Frosch DL, Kurian AW) Cult Health Sex 2014;16(9):1169-80 PMID: 25138386 SCOPUS ID: 2-s2.0-84907455253 08/21/2014       29 Citations
  • A conceptual model of the multiple stages of communication necessary to support patient-centered care. (Halley MC, Rendle KA, Frosch DL) J Comp Eff Res 2013 Jul;2(4):421-33 PMID: 24236683 SCOPUS ID: 2-s2.0-84886944945 11/19/2013       12 Citations
  • A regional survey of dentists' preferences for hiring a dental associate. (Halley MC, Lalumandier JA, Walker JD, Houston JH) J Am Dent Assoc 2008 Jul;139(7):973-9 PMID: 18594084 SCOPUS ID: 2-s2.0-47949120293 07/03/2008       6 Citations
    • Last update: 07/10/2026