Medical College of Wisconsin
CTSIResearch InformaticsREDCap

Rachel N. Cusatis PhD

Rachel N. Cusatis PhD profile photo picture

Associate Professor

Institution: Medical College of Wisconsin
Department: Medicine
Division: Medicine Hematology Oncology

Member of the Cancer Center
Member of the Center for International Blood and Marrow Transplant Research (CIBMTR)


I am willing to collaborate on research projects.


Publications (40)

  • Visualizing Health Related Quality of Life (HRQoL): understanding comprehension of HRQoL graphs in the allogeneic hematopoietic cell transplant setting. (Cusatis R, Kapfhammer M, Rein L, Szabo A, Reed-Thryselius S, Phelan R, Bingen K, Runaas L, Shaw BE, Flynn KE) J Cancer Surviv 2026 Jan 09 PMID: 41511743 PMCID: PMC13044967 SCOPUS ID: 2-s2.0-105027391304 01/09/2026    
  • Financial Toxicity in a Phase I/II Trial of LV20.19 CAR-T Cell for B-cell Malignancies: A Longitudinal, Qualitative Study. (Aughey E, Shah NN, Hillard CJ, Rentscher KE, Hamadani M, Longo W, Devata S, Knight JM, Cusatis R) Transplant Cell Ther 2026 Jan 02 PMID: 41485560 PMCID: PMC12952239 SCOPUS ID: 2-s2.0-105029718493 01/05/2026    
  • Lead Service Lines and Infant Blood Lead Levels. (Balza J, Dawson AZ, Nelson D, Kaeppler C, Cusatis R, Flynn KE) JAMA Netw Open 2025 Dec 01;8(12):e2550444 PMID: 41405888 PMCID: PMC12712725 SCOPUS ID: 2-s2.0-105025062251 12/17/2025    
  • Leveraging the perspectives and experiences of landlords and property managers for lead poisoning prevention (Balza JS, Awoyinka I, Cusatis R, Dawson AZ, Nelson D, Kaeppler C, Flynn KE) Discover Public Health December 2025;22(1) SCOPUS ID: 2-s2.0-105024089890 12/01/2025    
  • Assessing Quality of Life and Symptoms in Transplantation and CAR-T Recipients: Expert Panel Recommendations from the Survivorship Special Interest Group of ASTCT. (Banerjee R, Amonoo HL, Barata A, Bhatt NS, Espinoza-Gutarra MR, Jayani-Kosarzycki RV, Katz H, Kennedy VE, Nawas M, Steineck A, Wanjiku C, Costanzo E, Cusatis RN, Knight JM, Schoemans H, Sidana S, Wood WA, Sung AD, Lee CJ, Hamilton BK) Transplant Cell Ther 2025 Oct;31(10):774-788 PMID: 40609744 PMCID: PMC12243979 SCOPUS ID: 2-s2.0-105012554368 07/04/2025       3 Citations
  • Post-Transplant Cyclophosphamide-Based Graft-Versus-Host Disease Prophylaxis After Mismatched Unrelated Donor Peripheral Blood Stem Cell Transplantation. (Al Malki MM, Bo-Subait S, Logan B, Olson J, Kou J, Smith S, Leckrone E, Wu J, Stefanski HE, Auletta JJ, Spellman SR, Malmberg C, Askar M, Cusatis R, Shaffer BC, Modi D, Khimani F, Gooptu M, Hamadani M, Madbouly A, Maiers M, Fingerson S, Cook R, Ballen K, Loren A, Larkin K, Arai S, Qayed M, Choi SW, Broglie L, Shaw BE, Devine SM, Jimenez Jimenez AM) J Clin Oncol 2025 Sep;43(25):2772-2781 PMID: 40523209 PMCID: PMC12353616 SCOPUS ID: 2-s2.0-105008736226 06/16/2025       13 Citations
  • Current Trends and Outcomes in Cellular Therapy Activity in the United States, Including Prospective Patient-Reported Outcomes Data Collection in the Center for International Blood and Marrow Transplant Research Registry. (Cusatis R, Litovich C, Feng Z, Allbee-Johnson M, Kapfhammer M, Mattila D, Akinola I, Phelan R, Broglie L, Auletta JJ, Steinert P, Bolon YT, Akhtar O, Bloomquist J, Chen M, Devine SM, Bupp C, Hamadani M, Hengen M, Jaglowski S, Kaur M, Kuxhausen M, Lee SJ, Moskop A, Page KM, Pasquini MC, Rizzo D, Saber W, Spellman SR, Stefanski HE, Tuschl E, Yusuf R, Zhan K, Flynn KE, Shaw BE) Transplant Cell Ther 2024 Sep;30(9):917.e1-917.e12 PMID: 38944153 PMCID: PMC11587342 SCOPUS ID: 2-s2.0-85199289175 06/30/2024       67 Citations
  • Leveraging Hematopoietic Cell Transplant Data and Biorepository Resources at the Center for International Blood and Marrow Transplant Research to Improve Patient Outcomes. (Bolon YT, Atshan R, Allbee-Johnson M, Estrada-Merly N, Auletta JJ, Broglie L, Cusatis R, Page KM, Phelan R, Sajulga R Jr, Shaw BE, Spahn A, Steinert P, Stewart V, Vierra-Green C, Lee SJ, Spellman SR) Transplant Cell Ther 2024 Sep;30(9):921.e1-921.e22 PMID: 38871054 PMCID: PMC11809440 SCOPUS ID: 2-s2.0-85198556368 06/14/2024       2 Citations
  • Identifying barriers and facilitators to care for infants with bronchopulmonary dysplasia after NICU discharge: a prospective study of parents and clinical stakeholders. (Harris M, Cusatis R, Malnory M, Dawson S, Konduri GG, Lagatta J) J Perinatol 2024 Jul;44(7):970-978 PMID: 38278963 PMCID: PMC11375762 SCOPUS ID: 2-s2.0-85183412230 01/27/2024       5 Citations
  • Incorporating patient-reported outcome data into a predictive calculator for allogeneic hematopoietic cell transplantation recipients. (Shaw BE, Flynn KE, He N, Cusatis R, D'Souza A, Hamilton BK, Horowitz MM, Mattila D, Phelan R, Lee SJ, Brazauskas R) Cancer 2024 May 15;130(10):1826-1835 PMID: 38198511 PMCID: PMC11058023 SCOPUS ID: 2-s2.0-85181878144 01/10/2024       3 Citations
  • Decision regret among couples experiencing infertility: a mixed methods longitudinal cohort study. (Cusatis R, Johnson C, Schoyer KD, Tsaih SW, Balza J, Sandlow J, Flynn KE) Reprod Health 2023 Nov 09;20(1):165 PMID: 37940984 PMCID: PMC10633954 SCOPUS ID: 2-s2.0-85176043397 11/09/2023       7 Citations
  • Prevalence of Sleep Aid Medication Use in Patients Receiving a Hematopoietic Cell Transplant on an Inpatient Unit. (Cusatis R, Ibrahim A, Knight JM, D'Souza A, Shaw BE) Hematol Oncol Stem Cell Ther 2023 May 23;16(4):366-369 PMID: 37363976 PMCID: PMC11792084 SCOPUS ID: 2-s2.0-85163346266 06/26/2023       1 Citation
  • Lead poisoning in refugee children living in the United States: A systematic review of case studies (Balza J, Awoyinka I, Kaeppler C, Cusatis R, Flynn KE) Hygiene and Environmental Health Advances June 2023;6 SCOPUS ID: 2-s2.0-85174423282 06/01/2023       4 Citations
  • Real-World Data Showing Trends and Outcomes by Race and Ethnicity in Allogeneic Hematopoietic Cell Transplantation: A Report from the Center for International Blood and Marrow Transplant Research. (Auletta JJ, Kou J, Chen M, Bolon YT, Broglie L, Bupp C, Christianson D, Cusatis RN, Devine SM, Eapen M, Hamadani M, Hengen M, Lee SJ, Moskop A, Page KM, Pasquini MC, Perez WS, Phelan R, Riches ML, Rizzo JD, Saber W, Spellman SR, Stefanski HE, Steinert P, Tuschl E, Yusuf R, Zhang MJ, Shaw BE) Transplant Cell Ther 2023 Jun;29(6):346.e1-346.e10 PMID: 36924931 PMCID: PMC10239334 SCOPUS ID: 2-s2.0-85153327578 03/17/2023       66 Citations
  • Multi-Stakeholder Qualitative Interviews to Inform Measurement of Patient Reported Outcomes After CAR-T. (Akinola IM, Cusatis R, Pasquini MC, Shaw BE, Bollu V, Dalal A, Tesfaye M, Flynn KE) Transplant Cell Ther 2023 Apr;29(4):254.e1-254.e9 PMID: 36634738 PMCID: PMC10369368 SCOPUS ID: 2-s2.0-85147859869 01/13/2023       19 Citations
  • Associations between Relationship Status, Anxiety, Sexual Function, and Sexual Satisfaction in Lesbian, Gay, and Bisexual People (Arthur E, Flynn K, Jeffery D, Cusatis R) International Journal of Sexual Health 2023;35(1):41-51 SCOPUS ID: 2-s2.0-85147664659 01/01/2023       2 Citations
  • Navigating the perils and pitfalls throughout the consent process in hematopoietic cell transplantation. (Cusatis R, Litovich C, Spellecy R, Liang A, D'Souza A) Blood Rev 2023 May;59:101037 PMID: 36577602 PMCID: PMC10548336 SCOPUS ID: 2-s2.0-85149820952 12/29/2022       7 Citations
  • Twenty-first century house calls: a survey of ambulatory care providers to inform organisational telehealth strategy. (Holt JM, Cusatis R, Mortensen N, Wolfrath N, Hyun N, Winn AN, Brown SA, Somai MM, Crotty BH) BMJ Health Care Inform 2022 Dec;29(1) PMID: 36564094 PMCID: PMC9791455 SCOPUS ID: 2-s2.0-85144637616 12/24/2022       1 Citation
  • Health-related quality of life in reduced-intensity hematopoietic cell transplantation based on donor availability in patients aged 50-75 with advanced myelodysplastic syndrome: BMT CTN 1102. (Cusatis R, Martens MJ, Nakamura R, Cutler CS, Saber W, Lee SJ, Logan BR, Shaw BE, Gregory A, D'Souza A, Hamilton BK, Horowitz MM, Flynn KE) Am J Hematol 2023 Feb;98(2):229-250 PMID: 36251401 PMCID: PMC9839494 SCOPUS ID: 2-s2.0-85142150726 10/18/2022       16 Citations
  • Associations between socioeconomic status and bispecific LV20.19 CAR T-cell therapy outcomes. (Knight JM, Hackett E, Szabo A, Wu R, Sauber G, Johnson B, Cusatis RN, Aughey E, Cole SW, Hillard CJ, Shah NN) Haematologica 2023 Feb 01;108(2):588-593 PMID: 36200427 PMCID: PMC9890001 SCOPUS ID: 2-s2.0-85147234722 10/07/2022       2 Citations
  • Patient-reported cognitive function among hematopoietic stem cell transplant and cellular therapy patients: a scoping review. (Cusatis R, Balza J, Uttke Z, Kode V, Suelzer E, Shaw BE, Flynn KE) Qual Life Res 2023 Apr;32(4):939-964 PMID: 36203005 PMCID: PMC10259487 SCOPUS ID: 2-s2.0-85139480842 10/07/2022       5 Citations
  • Real-world implementation evaluation of an electronic health record-integrated consumer informatics tool that collects patient-generated contextual data (Holt JM, Spanbauer C, Cusatis R, Winn AN, Talsma AN, Asan O, Somai M, Hanson R, Moore J, Makoul G, Crotty BH) International Journal of Medical Informatics September 2022;165 SCOPUS ID: 2-s2.0-85131956770 09/01/2022       2 Citations
  • Patient-reported outcomes and neurotoxicity markers in patients treated with bispecific LV20.19 CAR T cell therapy. (Knight JM, Szabo A, Arapi I, Wu R, Emmrich A, Hackett E, Sauber G, Yim S, Johnson B, Hari P, Schneider D, Dropulic B, Cusatis RN, Cole SW, Hillard CJ, Shah NN) Commun Med (Lond) 2022;2(1):49 PMID: 35603278 PMCID: PMC9098435 SCOPUS ID: 2-s2.0-85134214336 05/24/2022       14 Citations
  • Updated Trends in Hematopoietic Cell Transplantation in the United States with an Additional Focus on Adolescent and Young Adult Transplantation Activity and Outcomes. (Phelan R, Chen M, Bupp C, Bolon YT, Broglie L, Brunner-Grady J, Burns LJ, Chhabra S, Christianson D, Cusatis R, Devine SM, D'Souza A, Eapen M, Hamadani M, Hengen M, Lee SJ, Moskop A, Page KM, Pasquini M, PĂ©rez WS, Riches M, Rizzo D, Saber W, Spellman SR, Stefanski HE, Steinert P, Weisdorf D, Horowitz M, Auletta JJ, Shaw BE, Arora M) Transplant Cell Ther 2022 Jul;28(7):409.e1-409.e10 PMID: 35447374 PMCID: PMC9840526 SCOPUS ID: 2-s2.0-85130441260 04/22/2022       75 Citations
  • Effective questionnaire design: How to use cognitive interviews to refine questionnaire items. (Balza JS, Cusatis R, McDonnell SM, Basir MA, Flynn KE) J Neonatal Perinatal Med 2022;15(2):345-349 PMID: 35034911 PMCID: PMC9524256 SCOPUS ID: 2-s2.0-85128493459 01/18/2022       56 Citations
  • Adding Centralized Electronic Patient-Reported Outcome Data Collection to an Established International Clinical Outcomes Registry. (Cusatis R, Flynn KE, Vasu S, Pidala J, Muffly L, Uberti J, Tamari R, Mattila D, Mussetter A, Bruzauskas R, Chen M, Leckrone E, Myers J, Mau LW, Rizzo JD, Saber W, Horowitz M, Lee SJ, Burns LJ, Shaw B) Transplant Cell Ther 2022 Feb;28(2):112.e1-112.e9 PMID: 34757219 PMCID: PMC8915447 SCOPUS ID: 2-s2.0-85121127060 11/11/2021       9 Citations
  • Development of a conceptual model of patient-reported outcomes in light chain amyloidosis: a qualitative study. (D'Souza A, Myers J, Cusatis R, Dispenzieri A, Finkel M, Panepinto J, Flynn KE) Qual Life Res 2022 Apr;31(4):1083-1092 PMID: 34255276 PMCID: PMC8993595 SCOPUS ID: 2-s2.0-85110447746 07/14/2021       11 Citations
  • Impact of Pre-visit Contextual Data Collection on Patient-Physician Communication and Patient Activation: a Randomized Trial. (Holt JM, Cusatis R, Winn A, Asan O, Spanbauer C, Williams JS, Flynn KE, Somai M, Talsma A, Laud P, Makoul G, Crotty BH) J Gen Intern Med 2021 Nov;36(11):3321-3329 PMID: 33559067 PMCID: PMC8606508 SCOPUS ID: 2-s2.0-85100812652 02/10/2021       15 Citations
  • Racial Disparities in Patient Activation: The Role of Economic Diversity. (Holt JM, Winn A, Cusatis R, Talsma A, Crotty BH) West J Nurs Res 2021 Jun;43(6):517-529 PMID: 33012264 SCOPUS ID: 2-s2.0-85092138446 10/06/2020       7 Citations
  • The Impact of Previsit Contextual Data Collection on Patient-Provider Communication and Patient Activation: Study Protocol for a Randomized Controlled Trial. (Holt JM, Cusatis R, Winn A, Asan O, Spanbauer C, Williams JS, Flynn KE, Somai M, Laud P, Crotty BH) JMIR Res Protoc 2020 Sep 23;9(9):e20309 PMID: 32965223 PMCID: PMC7542405 SCOPUS ID: 2-s2.0-85092189788 09/24/2020       6 Citations
  • Online Learning Readiness (Joosten T, Cusatis R) American Journal of Distance Education 2 July 2020;34(3):180-193 SCOPUS ID: 2-s2.0-85083629453 07/02/2020       114 Citations
  • Prevalence of decisional regret among patients who underwent allogeneic hematopoietic stem cell transplantation and associations with quality of life and clinical outcomes. (Cusatis RN, Tecca HR, D'Souza A, Shaw BE, Flynn KE) Cancer 2020 Jun 01;126(11):2679-2686 PMID: 32154926 PMCID: PMC7220834 SCOPUS ID: 2-s2.0-85081236553 03/11/2020       17 Citations
  • Decisional conflict among couples seeking specialty treatment for infertility in the USA: a longitudinal exploratory study. (Anguzu R, Cusatis R, Fergestrom N, Cooper A, Schoyer KD, Davis JB, Sandlow J, Flynn KE) Hum Reprod 2020 Mar 27;35(3):573-582 PMID: 32154565 PMCID: PMC7105327 SCOPUS ID: 2-s2.0-85082563377 03/11/2020       9 Citations
  • Incorporating patient-generated contextual data into care: Clinician perspectives using the Consolidated Framework for Implementation Science (Holt JM, Cusatis R, Asan O, Williams J, Nukuna S, Flynn KE, Moore J, Crotty BH) Healthcare March 2020;8(1) SCOPUS ID: 2-s2.0-85070927852 03/01/2020       24 Citations
  • The impact of patient-generated contextual data on communication in clinical practice: A qualitative assessment of patient and clinician perspectives. (Cusatis R, Holt JM, Williams J, Nukuna S, Asan O, Flynn KE, Neuner J, Moore J, Makoul G, Crotty BH) Patient Educ Couns 2020 Apr;103(4):734-740 PMID: 31744702 SCOPUS ID: 2-s2.0-85075460878 11/21/2019       21 Citations
  • Sexual Orientation and Patient-Provider Communication About Sexual Problems or Concerns Among US Adults. (Flynn KE, Whicker D, Lin L, Cusatis R, Nyitray A, Weinfurt KP) J Gen Intern Med 2019 Nov;34(11):2505-2511 PMID: 31452036 PMCID: PMC6848742 SCOPUS ID: 2-s2.0-85071493061 08/28/2019       15 Citations
  • Too much time? Time use and fertility-specific quality of life among men and women seeking specialty care for infertility. (Cusatis R, Fergestrom N, Cooper A, Schoyer KD, Kruper A, Sandlow J, Strawn E, Flynn KE) BMC Psychol 2019 Jul 09;7(1):45 PMID: 31288855 PMCID: PMC6617689 SCOPUS ID: 2-s2.0-85068877996 07/11/2019       16 Citations
  • Different domains of physical activity: The role of leisure, housework/care work, and paid work in socioeconomic differences in reported physical activity (Cusatis R, Garbarski D) Ssm Population Health April 2019;7 SCOPUS ID: 2-s2.0-85065702432 04/01/2019       43 Citations
  • A cross-institutional study of instructional characteristics and student outcomes: Are quality indicators of online courses able to predict student success? (Joosten T, Cusatis R) Online Learning Journal 2019;23(4):354-378 SCOPUS ID: 2-s2.0-85076367359 01/01/2019       36 Citations
  • Which activities count? Using experimental data to understand conceptualizations of physical activity (Cusatis R, Garbarski D) Ssm Population Health December 2018;6:286-294 SCOPUS ID: 2-s2.0-85056637306 12/01/2018       4 Citations
  • Last update: 02/26/2026