Medical College of Wisconsin
CTSICores SearchResearch InformaticsREDCap

CURRICULUM VITAE

Julie A. Panepinto MD, MSPH
Professor
Department of Pediatrics
Division of Hematology/Oncology

OFFICE ADDRESS:
MACC Fund Research Center
8701 Watertown Plank Rd
Milwaukee, WI 53226

EDUCATION:
8/1983 - 5/1987 BS, University of Notre Dame, Notre Dame, IN
8/1987 - 5/1991 MD, Southern Illinois University School of Medicine, Springfield, IL
8/1995 - 5/1997 MSPH, Epidemiology Focus, Project Emphasis in cost-effectiveness in sickle cell disease, University of Colorado Health Sciences Center, Denver , CO

POSTGRADUATE TRAINING AND FELLOWSHIP APPOINTMENTS:
6/1991 - 6/1994 Resident, Pediatrics, University of Wisconsin Hospital and Clinics, Madison, WI
7/1994 - 6/1997 Fellow, Pediatrics, Hematology/Oncology/Bone Marrow Transplant, University of Colorado Health Sciences Center, Denver, CO
6/1996 - 8/1996 Intensive Course in Cancer Prevention and Control - Focus on Epidemiology of Cancer and It's Prevention, National Cancer Institute,
6/2002 - Present Mid-Career Women Faculty Professional Development Seminar , Association of American Medical Colleges,
9/2005 - 9/2007 Clinical Research Scholars Program - • Project focus: Health-related Quality of Life in Children with Sickle Cell Disease, NIH K30 program, Medical College of Wisconsin, Milwaukee, WI
2011 - 2012 Hedwig van Ameringen Executive Leadership in Academic Medicine Fellow (ELAM), Institute for Women's Health and Leadership, Drexel University College of Medicine, Philadelphia, PA

FACULTY APPOINTMENTS:
7/1997 - 6/2000 Assistant Professor, Pediatrics, Hematology/Oncology, Brown University, Providence, RI
8/2000 - 6/2006 Assistant Professor, Pediatrics, Hematology/Oncology/BMT, Medical College of Wisconsin, Milwaukee, WI
7/2006 - 6/2011 Associate Professor, Pediatrics, Hematology/Oncology/BMT, Medical College of Wisconsin, Milwaukee, WI
7/2011 - Present Professor, Pediatrics, Hematology/Oncology/BMT, Medical College of Wisconsin, Milwaukee, WI

EDUCATIONAL ADMINISTRATIVE APPOINTMENTS:
9/1997 - 6/2000 Assistant Fellowship Program Director, Pediatrics, Hematology/Oncology, Brown University/Rhode Island Hospital, Providence, RI
1/1999 - 6/2000 Associate Director, Pediatrics, 3rd year Pediatric Medical Student Clerkship, Brown University School of Medicine, Providence, RI
7/2004 - 7/2007 Course Director, M4 Integrative Selective, Pediatrics, Hematology, Medical College of Wisconsin, Milwaukee, WI
1/2010 - Present Instructor and Small Group Leader, Physician Scientist Pathway for Medical Students, Medical College of Wisconsin, Milwaukee, WI

HOSPITAL AND CLINICAL ADMINISTRATIVE APPOINTMENTS:
6/2002 - Present Director, Comprehensive Stroke Program, Children's Hospital of Wisconsin, Sickle Cell Disease Center, Milwaukee, WI
7/2009 - Present Director, Clinical Research, Sickle Cell Disease Comprehensive Program, Milwaukee, WI

RESEARCH ADMINISTRATIVE APPOINTMENTS:
3/2011 - Present Director, Center for Clinical Effectiveness Research, Children's Research Institute of Children's Hospital of Wisconsin, Milwaukee, WI

HOSPITAL STAFF PRIVILEGES:
7/1997 - 7/2000 Medical Staff, Hasbro Children's Hospital, Providence, RI
8/2000 - Present Medical Staff, Pediatrics, Hematology, Children's Hospital of Wisconsin, Milwaukee, WI

SPECIALTY BOARDS AND CERTIFICATION:
Board Certified
Issue DateExpiration
1992
None
1994
2015
1998
2012
 
Licensure
Number Issue DateExpiration
Wisconsin
2002
2015
 
AWARDS AND HONORS:
6/1997 Healthcare Financial Management Association Award - awarded to one MSPH graduate student per year for outstanding thesis in health economics
6/2000 Faculty Teaching Award - awarded to 1 faculty member/year out of 100 eligible faculty by house staff for outstanding teaching, Brown University/Hasbro Children's Hospital
2006 - 2010 Named Best Doctor - selected by fellow physicians, honored as being one of the top 5% of doctors in the country, Best Doctors, Inc
2009 - 2010 Outstanding Medical Student Teacher, Medical College of Wisconsin

MEMBERSHIPS IN HONORARY AND PROFESSIONAL SOCIETIES:
1997 - Present American Academy of Pediatrics (Fellow)
1998 - Present American Society of Hematology (Member)
1999 - Present American Society of Pediatric Hematology/Oncology (Member)
2005 - Present International Society of Quality of Life (Member)
2008 - Present Society for Pediatric Research (Member)

EDITORSHIPS/EDITORIAL BOARDS/JOURNAL REVIEWS:
Journal Review
2003 Society for Pediatric Research
2003 - 2010 American Journal of Hematology
2003 - 2008 Journal of Pediatrics
2004 Journal of Pediatric Hematology/Oncology
2005 Haematologica
2005 Journal of Pediatric Hematology/Oncology
2007 - Present Pediatrics
2007 Archives of Pediatrics and Adolescents
2007 Ophthalmic Plastic and Reconstructive Surgery
2008 Health and Quality of Life Outcomes
2008 Future Medicine Pediatric Health
2009 Health Research in Medicine
2010 - Present JAMA
2010 - Present Quality of Life Research

LOCAL/REGIONAL APPOINTED LEADERSHIP AND COMMITTEE POSITIONS:
7/2008 - 6/2010 Member, Oncology Data Safety Monitoring Board (DSMB), Medical College of Wisconsin
12/2009 - 12/2010 Invited Reviewer, Study Section for Internal CTSI Grants, Medical College of Wisconsin
1/2010 - Present Invited Member, Physician Scientist Executive Council, Medical College of Wisconsin
- 5/2010 Invited Reviewer, Program in Research, Children's Research Institute

NATIONAL ELECTED/APPOINTED LEADERSHIP AND COMMITTEE POSITIONS:
7/1998 - 6/2000 Oncology Focus Group , Member, National Association of Children’s Hospitals and Related Institutions (NACHRI)
9/2003 Head Quality of Life Aim for Multi-center Clinical Trial, Utility Assessment Committee, Silent Infarct Transfusion Trial funded by National Institute of Neurological Disorders and Stroke
2005 Invited Panelist, Comprehensive Sickle Cell Centers Evaluation Panel, National Heart, Lung and Blood Institute
5/2006 Invited Panelist, Strategic Plan for Acquired and Inherited Blood Diseases, National Heart, Lung and Blood Institute
7/2006 - 6/2007 Member, Executive Committee, Silent Infarct Transfusion Trial funded by the National Institute of Neurological Disorders and Stroke
10/2006 - 8/2010 Member, Data and Safety Monitoring Board (DSMB) for the Sickle Cell Disease Clinical Research Network , National Heart, Lung and Blood Institute
2006 Member, Protocol Team - Unrelated Donor Hematopoietic Cell Transplantation for Children with Severe Sickle Cell Disease Using a Reduced Intensity Conditioning Regimen, Blood and Marrow Transplant Clinical Trials Network
2/2007 Speaker and Mentor, National Annual Sickle Cell Research and Educational Symposium: Grants Workshop
6/2007 - 5/2010 Elected Member, Chair - 2008, Nominating Committee, American Society of Pediatric Hematology/Oncology
5/2008 Invited Grant Reviewer, Clinical Research Training Institute Study Section, American Society of Hematology
7/2008 Invited Panelist, Strategic Plan Follow-up meeting, Strategic Plan Training and Career Workgroup Meeting, National Heart, Lung, and Blood Institute
8/2008 Invited Faculty, Clinical Research Training Institute, American Society of Hematology
10/2008 Member, Sickle Cell Disease Workshop: Clinical Priorities and Clinical Trials Neurology Subcommittee, National Heart, Lung, and Blood Institute
2/2009 - 2/2008 Invited Faculty, Speaker, Mentor, Admissions Committee, National Annual Sickle Cell Research and Educational Symposium, Grant Writing Institute
5/2009 Invited Grant Reviewer, Clinical Research Training Institute Study Session, American Society of Hematology
5/2009 Study Section-Invited Reviewer , Special Emphasis Panel - Registry and Surveillance System in Hemoglobinopathies (RuSH) Pilot Studies-Implementation Phase, National Heart, Lung and Blood Institute
8/2009 Invited Faculty, Clinical Research Training Institute, American Society of Hematology
9/2009 Invited Member/Speaker, NHLBI Working Group: Methods for Translational and CER Research in Pain Management for Sickle Cell Disease, National Institutes of Health
9/2009 Abstract Review Coordinator, Abstract Review Committee - Health Services Research Section for Annual Meeting, American Society of Hematology
5/2010 Invited Grant Reviewer, Clinical Research Training Institute Study Section, American Society of Hematology
8/2010 Invited Faculty, Clinical Research Training Institute, American Society of Hematology
9/2010 - 8/2012 Invited Faculty, Clinical Research Training Institute Oversight Subcommittee, Committee on Training Programs, American Society of Hematology
12/2010 - 12/2013 Co-Chair Elect, Clinical Research Training Institute, American Society of Hematology

RESEARCH GRANTS/AWARDS/CONTRACTS/PROJECTS:
Active
Peer Review
Title:
Silent Infarct Transfusion Trial (SITT)
Source:
NIH 1 R01 NS042804-01A1
Role:
Co-Investigator, 5% support
PI:
Michael DeBaun, MD, MPH
Dates:
9/30/2003 - 11/30/2013
Direct Funds:
$12,853,493
 
Title:
Assessing Decision Making in Visits by Children with Chronic Disease
Source:
Institute for Clinical and Translational Research, University of Wisconsin, Madison, Wisconsin
Role:
Consultant
PI:
Elizabeth Cox, MD, PhD
Dates:
2/4/2008 - 12/31/2011
Direct Funds:
$50,000
 
Title:
Improvement of Communication Process and Outcomes After Newborn Genetic Screening
Source:
National Heart, Lung, and Blood Institute 1RO1HL086691-01A1
Role:
Co-Investigator, 2.5% effort beginning 10/01/2008
PI:
Michael Farrell, MD
Dates:
2/4/2008 - 12/31/2011
Direct Funds:
$1,592,460
 
Title:
The Development of the PedsQL in Sickle Cell Disease
Source:
National Heart, Lung and Blood Institute
Role:
Principal Investigator-Project 3, 20% effort
PI:
Julie Panepinto, MD, MSPH
Dates:
4/1/2008 - 3/31/2012
Direct Funds:
$432,316
 
Title:
Expansion of a Randomized Educational Rehabilitation Trial for Students with Sickle Cell Disease and Memory Deficit
Source:
American Society of Hematology
Role:
Co-Investigator, 5% effort
PI:
Allison King, MD, MS
Dates:
7/1/2009 - 6/30/2012
Direct Funds:
$44,000
 
Title:
Quality of Life After Treatment with Magnesium for Acute Sickle Cell Pain Episode
Source:
National Heart, Lung and Blood Institute 1 R01 HL103427-01A1
Role:
Principal Investigator, 20% effort
PI:
Julie Panepinto, MD, MSPH
Dates:
1/18/2011 - 11/30/2013
Direct Funds:
$658,897
 
Prior
Peer Review
Title:
Health Related Quality of Life in Sickle Cell Disease
Source:
Children’s Hospital Foundation Research Grant
Role:
Principal Investigator
PI:
Julie Panepinto, MD, MSPH
Dates:
6/2/2002 - 5/31/2006
Direct Funds:
$30,000
 
Title:
Health-related Quality of Life in Sickle Cell Disease
Source:
National Heart, Lung and Blood Institute 1 K23 HL80092-01
Role:
Principal Investigator, 75% effort until 9/30/2008, then 52.5% effort 10/1/2008-8/31/2011
PI:
Julie Panepinto, MD, MSPH
Dates:
9/22/2005 - 8/31/2011
Direct Funds:
$618,125
 
Title:
A Rapid-Throughput Feedback Intervention for Population-Scale Communication Quality Assurance Projects
Source:
NIH/NHLBI
Role:
Co-Investigator
PI:
Michael Farrell, MD
Dates:
2009 - 2011
 
INVITED LECTURES/WORKSHOPS/PRESENTATIONS:
Local
1. Balancing Career and Family in Medicine, Brown University Women in Medicine Program, Providence, RI, 7/1998
2. Sickle Cell Disease in Pediatrics: What’s New and Different, Hasbro Children’s Hospital Pediatric Grand Rounds, Providence, RI, 1/1999
3. Beckwith-Wiedemann Syndrome: Hemiphypertrophy and the Risk of Cancer, Woman and Infant’s Hospital Perinatal Conference, Providence, RI, 5/1999
4. Advancements in Hemophilia, Hasbro Children’s Hospital Pediatric Grand Rounds, Providence, RI, 3/2000
5. Sickle Cell Disease and Stroke, All Saints Healthcare Hospital Grand Rounds, Racine, WI, 7/2003
6. Sickle Cell Disease, St. Therese Medical Center Pediatric Grand Rounds, Waukegan, IL, 1/2004
 
Regional
1. Sickle Cell Disease in Pediatrics: What’s New and Different, Rhode Island Blood Bankers Society, 17th Annual Fall Meeting, Providence, RI, 7/1998
2. A Different Perspective: Patient-reported Outcomes in Sickle Cell Disease, University of Wisconsin Health Sciences Center Health Innovations Program - Weekly Research Seminar, Madison, WI, 7/2008
 
National
1. School and the Child With Cancer, National Association of School Nurses Annual Conference, Providence, RI, 6/1999
2. Patterns of Care, American Society of Hematology Annual Meeting - Session Moderator for Oral Session, San Diego, CA, 12/2004
3. Psychosocial III Simultaneous Session, Annual Meeting of the National Sickle Cell Disease Program - Session Moderator for Oral Session, Memphis, TN, 4/2006
4. Interesting Cases in Sickle Cell Disease: Common and Not So Common Complications, All Saints Healthcare, Racine, WI, 7/2006
5. R and K Series Grants: How Do I Apply?, Sickle Cell Research and Educational Symposium Grants Workshop, Hollywood, FL, 2/2007
6. How to Write a Good Proposal, The Grant Writing Institute of the Sickle Cell Research and Educational Symposium, Fort Lauderdale, FL, 2/2008
7. A Different Perspective: Patient Reported Outcomes in Sickle Cell Disease, Children’s National Medical Center - Research Seminar, Washington, DC, 8/2008
8. K grant application, American Society of Hematology - Clinical Research Training Institute Panel Member, La Jolla, CA, 8/2008
9. Benign Hematology, American Society of Hematology (ASH) Annual Meeting - Session Moderator for Oral Session, San Francisco, CA, 12/2008
10. Patient Reported Outcomes in Sickle Cell Disease, The Research Institute at Nationwide Children’s Hospital/Ohio State University - Child Health Research Center Speaker Series, Center for Innovation in Pediatric Practice, Columbus, OH, 4/2009
11. Health-related Quality of Life: Integrating Measurement In Clinical Trials, American Society of Hematology - Clinical Research Training Institute, La Jolla, CA, 8/2009
12. Patient-reported Outcomes in Sickle Cell Disease, Children’s Mercy Hospital - Academic Scholarship Conference, Kansas City, MO, 10/2009
13. Health Outcomes Research, Benign Hematology, American Society of Hematology Annual Meeting - Session Moderator for Oral Session, New Orleans, LA, 12/2010
 
International
1. Childhood Neuroblastoma, Slovakia-Providence Pediatric Teleconference , Hasbro Children’s Hospital, Providence, RI, 4/1998
2. Quality of Life in Children II, Annual Meeting of the International Society of Quality of Life - Session Moderator, Lisbon, Portugal, 10/2006
 
PEER REVIEWED WORKSHOPS/PRESENTATIONS:
National
1. Panepinto JA, Universal versus Targeted Screening of Infants for Sickle Cell Disease: A Cost-Effectiveness Analysis , National Sickle Cell Disease Conference, Washington, DC, 9/1997
2. Panepinto JA, Universal versus Targeted Screening of Infants for Sickle Cell Disease: A Cost-Effectiveness Analysis, 13th National Neonatal Screening Symposium, San Diego, CA, 3/1998
3. Panepinto JA, Kurchubasche AG, Thurman G, Hiester A, Ambruso DR, A Novel Neutrophil (PMN) Dysfunction Syndrome: Infections and Poor Wound Healing Associated With Defective Motility but Normal Expression and Function of CD11b, Annual Meeting of the Pediatric Academic Societies, 5/1999
4. Ambruso DR, Knall C, Abell AN, Panepinto JA, Kurkchubasche A, Thurman G, Gonzalez-Aller C, Hiester A, deBoer M, Harbeck RJ, Oyer R, Johnson GL, Roos D., Human Rac2 Deficiency: A Novel Syndrome of Neutrophil (PMN) Dysfunction and Recurrent Bacterial Infections, American Society of Hematology (ASH) Annual Meeting, 12/1999
5. Panepinto JA, Lethert K, Scott JP, Gill JC, Children with a Mild Platelet Function Defect: Clinical Symptoms and Their Relationship to Coagulation Studies, American Society of Pediatric Hematology/Oncology (ASPHO) Meeting, 4/2002
6. Panepinto JA, Hillery CA, and Scott JP, Seasonal Variation in Hospital Length of Stay in Children With Sickle Cell Disease, American Society of Hematology (ASH) Annual Meeting, 12/2002
7. Panepinto JA, OMahar KM, DeBaun MR, Scott JP, Self-Reported Quality of Life in Children with Sickle Cell Disease, American Society of Hematology (ASH) Annual Meeting, 12/2003
8. Panepinto JA, O’Mahar KM, DeBaun MR, Scott JP, Validation of the Child Health Questionnaire As a Measure of Health Related Quality of Life in Sickle Cell Disease, American Society of Hematology (ASH) Annual Meeting, 12/2003
9. Panepinto JA, O’Mahar KM , DeBaun MR, Scott JP , Health-Related Quality of Life In Sickle Cell Disease: Correlation of Child and Parent Report, American Society of Pediatric Hematology/Oncology (ASPHO) Annual Meeting, 5/2004
10. Burns KC, Panepinto JA, Attitudes Regarding Infertility in Female Adolescent Cancer Patients, Annual Meeting of the Pediatric Academic Societies, Washington, DC, 5/2005
11. Pawar SS, Panepinto JA, Brousseau DC, The Effect of Acute Pain Crisis on Exhaled Nitric Oxide Levels in Children With Sickle Cell Disease, Annual Meeting of the Pediatric Academic Societies, Washington DC, 5/2005
12. Brousseau DC, McCarver DG, Panepinto JA, Sickle Cell Pain Crisis: The Effect of CYP2D6 Polymorphisms, American Society of Hematology (ASH) Annual Meeting, Atlanta, GA, 12/2005
13. Rennie KM, Scott JP, Panepinto JA, Hillery CA, Increased Red Cell Adhesion is Associated with Overt Stroke in Sickle Cell Disease, American Society of Hematology (ASH) Annual Meeting, Atlanta, GA, 12/2005
14. Panepinto JA, O’Mahar KM, DeBaun MR, Scott JP, Coping Styles and Health-related Quality of Life in Children with Sickle Cell Disease, American Society of Hematology (ASH) Annual Meeting, Atlanta, GA, 12/2005
15. Panepinto JA, Carreras J, Walters M, Eapen M, Marsh J, Gale RP, Hows J, Ferster A, Matched related donor transplantation for sickle cell disease: Report from the Center for International Blood and Transplant Research, American Society of Hematology (ASH) Annual Meeting, Atlanta, GA, 12/2005
16. Brandow A, Rennie K, Scott JP, Hillery CA, Panepinto JA, Increased Red Blood Cell Adhesion Is Associated With Priapism in Sickle Cell Disease, American Society of Hematology (ASH) Annual Meeting, Orlando, FL, 12/2006
17. Blyth A, Foerster L, Panepinto JA, Impact of Sickle Cell Disease on Parents, American Society of Hematology (ASH) Annual Meeting, Orlando, FL, 12/2006
18. Kam J, Panepinto JA, Brousseau DC, Quality of Hospital Care for Children with Sickle Cell Disease, Annual Meeting of the Pediatric Academic Societies, Toronto, Canada, 5/2007
19. Panepinto JA, Foerster LM, Sapnis S, Pajewski N, Hoffmann R, Impact of Poverty and Sickle Cell Disease on the Health-Related Quality of Life of Children, American Society of Hematology (ASH) Annual Meeting, Atlanta, GA, 12/2007
20. Brandow AM, Brousseau DC, Panepinto JA, Functional Outcomes of Children with Sickle Cell Disease Treated for Vaso-Occlusive Painful Events, American Society of Hematology (ASH) Annual Meeting, Atlanta, GA, 12/2007
21. Panepinto JA, Foester LM, Disease Severity in Sickle Cell Disease: Understanding Impairment in Health-related Quality of Life, American Society of Hematology (ASH) Annual Meeting, Atlanta, GA, 12/2007
22. Pajewski NM, Panepinto JA, Laud PW, Bayesian Nonparametric Models for Health-Related Quality of Life Outcomes: Application to Sickle Cell Disease, MD Anderson Cancer Center - Conference on Bayesian Biostatistics, Houston, TX, 1/2008
23. Brousseau DC, Panepinto JA, Owens PL, Steiner C, Acute Care Visits in Sickle Cell Disease: A Population-Based Multi-State Study, American Society of Hematology (ASH) Annual Meeting, San Francisco, CA, 12/2008
24. Sarnak SA, Casella JF, Barton BA, and SIT Investigators et al, Elevated Systolic Blood Pressure and Low Fetal Hemoglobin Are Risk Factors for Silent Cerebral Infarcts in Children with Sickle Cell Anemia, American Society of Hematology (ASH) Meeting, New Oreleans, LA, 12/2009
25. Brandow AM, Jirovec DL, Panepinto JA, Hydroxyurea in Children with Sickle Cell Disease: Practice Patterns and Barriers to Utilization, American Society of Hematology (ASH) Annual Meeting, New Orleans, LA, 12/2009
26. Leschke JM, Panepinto JA, Hoffmann RG, Yan K, Brousseau D, Outpatient Follow-up and Rehospitalization for Sickle Cell Disease in Wisconsin Medicaid, American Society of Hematology (ASH) Annual Meeting, New Orleans, LA, 12/2009
27. Brousseau DC, Panepinto JA, Nimmer M, Hoffmann RG, The Number of People with Sickle Cell Disease in the United States: National and State Estimates, American Society of Hematology (ASH) Annual Meeting, New Orleans, LA, 12/2009
28. Brandow AM, Jirovec D, Panepinto JA, Evaluation of Children with Sickle Cell Disease Treated for Chronic or Recurrent Pain Using a Multidimensional Pain Management Model, American Society of Pediatric Hematology/Oncology (ASPHO) Annual Meeting, Montreal, Canada, 4/2010
29. Thornburg CD, Calatroni A, Panepinto JA, Impact of Hydroxyurea on Health-related Quality of Life in Children with Sickle Cell Disease, American Society of Pediatric Hematology/Oncology (ASPHO) Annual Meeting, Montreal, Canada, 4/2010
30. Hemker BG, Brousseau DC, Yan K, Hoffmann RG, Panepinto JA, Health Care Utilization Patterns and Emergency Department Reliance During Transition of Care From Pediatric to Adult Providers In Sickle Cell Disease, American Society of Hematology (ASH) Annual Meeting, Orlando, FL, 12/2010
31. Panepinto JA, Owens PL, Mosso A, Steiner CA, Brousseau DC, Continuity of Care for Acute Visits in Sickle Cell disease: Do Patients Go to More than One Site?, American Society of Hematology (ASH) Annual Meeting, Orlando, FL, 12/2010
32. Panepinto JA, Torres S, Varni JW, Development of the PedsQL™ Sickle Cell Disease Module Items: Qualitative Methods, 5th Annual Sickle Cell Disease Meetings, Fort Lauderdale, FL, 2/2011
33. Neville KA, Liem R, Panepinto JA, et al, Single-Dose (SD) and Steady-State (SS) Pharmacokinetics of Hydroxyurea in Children and Adolescents with Sickle Cell Disease, American Society of Pediatric Hematology/Oncology (ASPHO) Annual Meeting - Poster Presentation, Baltimore, MD, 4/2011
34. Brousseau DC, Steiner CA, Owens P, Mosso A, Panepinto JA, Emergency Department Treat-and-Release Visits for Sickle Cell Disease: A sign of acute events to come , American Society of Hematology (ASH) Annual Meeting - Oral Presentation, San Diego, Ca, 12/2011
35. Wiczling P, Liem RI, Panepinto JA, Garg U, Abdel-Rahman SM, Kearns GL, Neville KA, Population Pharmacokinetic (PK) Modeling of Hydroxyurea for Therapeutic Drug Monitoring Applications in Children and Adolescents with Sickle Cell Disease , American Society of Hematology (ASH) Annual Meeting - Poster Presentation, San Diego, CA, 12/2011
36. Brandow AM, Kattappuram R, Stucky CL, Hillery CA, Panepinto JA, Patients with Sickle Cell Disease Have Increased Sensitivity to Cold and Heat Stimuli , American Society of Hematology (ASH) Annual Meeting - Poster Presenation, San Diego, CA, 12/2011
 
International
1. Panepinto JA, Pajewski NM, Hoffmann RG, Proxy Reports of Health-related Quality of Life in Children with Sickle Cell Disease: The Effect of Parental Well Being and Mental Health, International Society of Quality of Life Research, Montevideo, Uruguay, 10/2008
 
COMMITTEE SERVICE:
Medical College
2002 - 2004 Member, Residency Selection Committee, Pediatrics, Medical College of Wisconsin
7/2004 - 7/2009 Co-Chair, Program Committee, 2005-2006; Chair Elect, 2006-2007; Chair, 2007-2008; Chair emeritus, 2008-2009 , Women’s Faculty Council, Medical College of Wisconsin
2004 Member, Innovative Task Force , Pediatrics, Medical College of Wisconsin
1/2006 - 2/2006 Appointed Member by the Senior Associate Dean for Research to serve on committee to institute formal recommendations for research education and quality assurance in research, Research Education/Quality Assurance and Compliance Committee, Medical College of Wisconsin
2007 - 2008 Member, Women in Science, Selection Committee, Medical College of Wisconsin
2008 - 2009 Member, Faculty Affairs External Review Executive Committee, Medical College of Wisconsin
3/2010 - 9/2010 Invited Member, Task Force, Comparative Effectiveness Research, Medical College of Wisconsin
 
Hospital
1998 - 2000 Member, Pediatric Residency Selection Committee, Rhode Island Hospital
 
MEDICAL COLLEGE TEACHING ACTIVITIES:
Medical Student Education
8/2000 Biochemistry Discussion Cases, 1st year medical students
2000 - 2001 Present Anemia in Children to junior medical students core curriculum in Pediatrics every 8 weeks
2000 - 2005 Hematology Attending, Children's Hospital of Wisconsin - precept M4 student, 1/month (13-14 weeks a year until 2005, 8-10 weeks a year 2005-2008, 4 weeks current) for patients with acute and chronic illnesses, including assessment and management; work with M3 and M4 students on Ward teams who participate in care of patients on Hematology service
2001 Ward attending, Children’s Hospital of Wisconsin - daily attending rounds for 3-4 students on the pediatric inpatient rotation for one month/year
2003 - 2004 Ward attending, Children’s Hospital of Wisconsin - daily attending rounds for 3-4 students on the pediatric inpatient rotation for one month/year
 
Resident and Fellow Education
2000 - Present Hematology attending, Children’s Hospital of Wisconsin - one fellow/month, 6-7 weeks a year 2000-2002, 13-14 weeks a year 2002-2005, 8-10 weeks 2005-2008, 4 weeks current; one fellow/clinic, 1-1/2 days a month
2000 - Present Core curriculum: Pediatric Hematology/Oncology Fellowship Lecture Series
2000 - 2002 Oncology attending, Children’s Hospital of Wisconsin; 3 pediatric residents/month, 6-7 weeks a year; precept residents at all levels for patients with malignant diseases during their acute and chronic care; teach and supervise procedures such as lumbar puncture and bone marrow aspiration
2000 - Present Hematology attending, Children’s Hospital of Wisconsin - 6-7 weeks per year 2000-2002, 13-14 weeks per year 2003-2005, 8-10 weeks per year 2005-2008; 4 weeks per year 2009-current; 2 PL-2 or PL-3 residents per month on Hematology rotation, 8-14 weeks per year and weekly in clinic; teach and supervise procedures such as lumbar puncture and bone marrow aspiration; precept ward residents at all levels and Hematology PL2 and PL3 residents for patients with acute and chronic illness, including assessment and management
2001 Ward attending, Children’s Hospital of Wisconsin - daily attending rounds for pediatric PL-1 and PL-3 residents, family medicine residents, and emergency residents in their pediatric inpatient rotation for one month/year
2003 - 2004 Ward attending, Children’s Hospital of Wisconsin - daily attending rounds for pediatric PL-1 and PL-3 residents, family medicine residents, and emergency residents in their pediatric inpatient rotation for one month/year
2007 - 2008 Fellows’ Core Curriculum Course - Choosing a Mentor
2007 - 2008 Fellows’ Core Curriculum Course - Career pathway & work-life balance panel
10/2009 Children’s Hospital of Wisconsin Resident Noon Lecture Series Presentation - Anemia in Children
 
Continuing Medical Education
3/2003 Children’s Hospital of Wisconsin Pediatric Grand Rounds Presentation - Sickle Cell Disease and the Brain
8/2004 Children’s Hospital of Wisconsin Advanced Practice Nurses Monthly Lecture Series Presentation - Clotting in Pediatric Cancer Patients
3/2006 Children’s Hospital of Wisconsin Pediatric General Surgery Education Session Presentation - Sickle Cell Disease
7/2006 Children’s Hospital of Wisconsin Pediatric Grand Rounds Presentation - Stroke in Childhood
9/2007 Medical College of Wisconsin Department of Population Health, Biostatistics Monthly Lecture Series Presentation - Health-related Quality of Life in Sickle Cell Disease
1/2008 Pediatric Emergency Medicine Grand Rounds Presentation - Sickle Cell Disease and the Brain: What We Know and What We Are Learning
9/2008 Department of Population Health/Epidemiology Seminar Presentation - A Different Perspective: Patient Reported Outcomes in Sickle Cell Disease
7/2009 Pediatric Intensive Care Educational Curriculum - Sickle Cell Disease and Stroke: What We Are Learning
 
Graduate Student Education
2008 Instructor, Graduate Student Course: Boundaries of Science and Medical Practice
 
EXTRAMURAL TEACHING (e.g. at Marquette, UWM, etc.):
Medical Student Education
1997 - 2000 Hasbro Children’s Hospital, Ward attending - daily attending rounds and attending of record for all service patients, supervised two junior medical students, 1 month a year
1998 - 2000 Hasbro Children’s Hospital, Continuity clinic attending, Pediatric Hematology/Oncology - mentor and primary clinic attending for M3 and M4 students primary continuity clinic, weekly
 
Resident and Fellow Education
1997 - 2000 Brown University, Hasbro Children’s Hospital Noon Conference, Pediatric residents, three lectures/year
1997 - 2000 Brown University, Ward attending, Hasbro Children’s Hospital - daily attending rounds and attending of record for all service patients, supervised 3 pediatric residents, 1 month a year
1997 - 2000 Brown University, Hematology/Oncology attending, Hasbro Children’s Hospital, 13 weeks/year and weekly in clinic - precept residents at all levels for patients with acute and chronic illness, including assessment and management; teach and supervise procedures such as lumbar puncture and bone marrow aspiration
1997 - 2000 Brown University, Oncology Attending, Children’s Hospital of Wisconsin - One fellow/month, 6-7 weeks/year; One fellow/clinic, ½ day per week, 2000-2001
 
MCW STUDENTS, FACULTY, RESIDENTS AND CLINICAL/RESEARCH FELLOWS MENTORED:
High School Students
Summer high school student in the Research Opportunity for Academic Development in Science (ROADS) Program, Medical College of Wisconsin, 6/2002 - 8/2002 Mentor, Basic Clinical Research Project: Bone Marrow Transplant for Children with Sickle Cell Disease
Soumya Gokuli, Medical College of Wisconsin, 5/2009 - 7/2009 Mentor for Apprenticeship in Medicine Program (AIM) for High School Students of Diverse Backgrounds - Project: Electronic Communication with Patients, poster presentation at poster session
 
Medical Students
Kristine Lethert, M-1, Medical College of Wisconsin, 6/2001 - 8/2001 Mentor, American Cancer Society Summer Research Student - Project: Correlation of Bleeding Symptoms With Mild Abnormalities of Platelet Function in Children, Poster presentation, American Society of Pediatric Hematology/Oncology, May, 2002
Liz Berdans, Medical College of Wisconsin, 2002 - 2006 Career Mentor, Women in Medicine Student Mentorship Program
Heidi Zujewski, M-1, Medical College of Wisconsin, 2004 Pediatric Summer Externship Program Mentor - basic data collection and imputation of data into data set, Project: Morbidity and Risk Factors for Subsequent Stroke in Children with Sickle Cell Disease
Alison Blyth, M-1, Medical College of Wisconsin, 5/2006 - 8/2006 Mentor, Summer research student, Project: Impact of Sickle Cell Disease on Parents, recipient of American Society of Hematology Research Trainee Award (maximum of 1 awarded per Institute)
Sylvester Nwaolor Osayi, M-1, Medical College of Wisconsin, 6/2008 - 7/2008 Mentor, Summer research student, Project: Hydroxyurea utilization and sustainability, recipient of American Society of Hematology Research Trainee Award (maximum of 1 awarded per Institute)
Kristyn Jackson, M-4, Medical College of Wisconsin, 7/2009 - 5/2010 Research Mentor - Project: Compliance with clinic visits in sickle cell disease
Christopher Anderson, M1, Medical College of Wisconsin, 6/2010 - 8/2010 Mentor - Project: Health Outcomes and Communication Patterns of families with sickle cell disease, recipient of American Society of Hematology Research Trainee Award (maximum of 1 awarded per Institute)
 
Clinical/Research Fellows
Karen Burns, MD, MS, Medical College of Wisconsin, 2003 - 2005 Mentor for Fellow in Pediatric Hematology/Oncology - Project for Masters Thesis/clinical research project entitled: “Attitudes on Fertility in Female Cancer Patients”, Status: Manuscript published, Faculty at Cincinnati Children’s Hospital
Amanda Brandow, DO, Medical College of Wisconsin, 2005 - 2008 Chair, Pediatric Fellow’s Scholarship Oversight Committee
Sweta Gupta, MD, Medical College of Wisconsin, 2007 - 2008 Member, 2007-2008 Pediatric Fellow’s Scholarship Oversight Committee
Bradd Hemker, MD, Medical College of Wisconsin, 2008 - 2011 Mentor for Fellow in Pediatric Hematology/Oncology, Project: Quality Care in Sickle Cell Disease and a Medical Home for Patients with Sickle Cell Disease, Oral presentation, ASH annual meeting, Dec. 2010.
Bradd Hemker, MD, Medical College of Wisconsin, 2008 - 2011 Member, Pediatric Fellow’s Scholarship Oversight Committee
 
Faculty
Amanda Brandow, DO, Medical College of Wisconsin, 2003 - Present Mentor: as Pediatric resident/chief resident; Hematology/Oncology fellow and now as faculty - Pediatric Resident research project: “Correlation of Red Blood Cell Adhesion with Clinical Manifestations in Children With Sickle Cell Disease”, Status: Data collection ongoing; Fellow research project: Short term Outcomes after Hospitalization for painful vasoocclusive crises in sickle cell disease: published, Br J of Haem and Pediatric Blood and Cancer; Recipient of National Institutes of Health Loan Repayment award 2006-2011 under my mentorship; NIH Sickle Cell Disease Scholar recipient, 2008-2010
Priya Pais, MD, Assistant professor, Pediatric Nephrology, Medical College of Wisconsin, 2009 - Present Mentor for Children’s Research Institute Program in Research grant
 
EXTRAMURAL STUDENTS, FACULTY, RESIDENTS, AND CLINICAL/RESEARCH FELLOWS MENTORED:
Medical Students
Jasmine Huang, M-1, M-2, Brown University School of Medicine, 1998 - 2000 Mentor, Women in Medicine Program, Medical Student Mentorship Program
Nicole Green, M3, M4, Brown University School of Medicine, 1998 - 2000 Mentor
Stephen Gilhenney, M3, M4, Brown University School of Medicine, 1998 - 2000 Mentor
 
Residents
Rhode Island Hospital, 1998 - 2000 Resident Advisor for 2 pediatric residents
 

BIBLIOGRAPHY
Refereed Journal Publications/Original Papers
1. Panepinto JA, Magid D, Rewers MJ, Lane PA Universal versus targeted screening of infants for sickle cell disease: a cost-effectiveness analysis. J Pediatr. 2000 Feb;136(2):201-8
2. Ambruso DR, Knall C, Abell AN, Panepinto J, Kurkchubasche A, Thurman G, Gonzalez-Aller C, Hiester A, deBoer M, Harbeck RJ, Oyer R, Johnson GL, Roos D Human neutrophil immunodeficiency syndrome is associated with an inhibitory Rac2 mutation. Proc Natl Acad Sci U S A. 2000 Apr 25;97(9):4654-9
3. Kurkchubasche AG, Panepinto JA, Tracy TF Jr, Thurman GW, Ambruso DR Clinical features of a human Rac2 mutation: a complex neutrophil dysfunction disease. J Pediatr. 2001 Jul;139(1):141-7
4. Brousseau DC, Scott JP, Hillery CA, Panepinto JA The effect of magnesium on length of stay for pediatric sickle cell pain crisis. Acad Emerg Med. 2004 Sep;11(9):968-72
5. Panepinto JA, O'Mahar KM, DeBaun MR, Rennie KM, Scott JP Validity of the child health questionnaire for use in children with sickle cell disease. J Pediatr Hematol Oncol. 2004 Sep;26(9):574-8
6. Panepinto JA, Brousseau DC, Hillery CA, Scott JP Variation in hospitalizations and hospital length of stay in children with vaso-occlusive crises in sickle cell disease. Pediatr Blood Cancer. 2005 Feb;44(2):182-6
7. Panepinto JA, O'Mahar KM, DeBaun MR, Loberiza FR, Scott JP Health-related quality of life in children with sickle cell disease: child and parent perception. Br J Haematol. 2005 Aug;130(3):437-44
8. Duke RL, Scott JP, Panepinto JA, Flanary VA Perioperative management of sickle cell disease children undergoing adenotonsillectomy. Otolaryngol Head Neck Surg. 2006 Mar;134(3):370-3
9. Pawar SS, Panepinto JA, Brousseau DC The effect of acute pain crisis on exhaled nitric oxide levels in children with sickle cell disease. Pediatr Blood Cancer. 2008 Jan;50(1):111-3
10. Burns KC, Boudreau C, Panepinto JA Attitudes regarding fertility preservation in female adolescent cancer patients. J Pediatr Hematol Oncol. 2006 Jun;28(6):350-4
11. Hulbert ML, Scothorn DJ, Panepinto JA, Scott JP, Buchanan GR, Sarnaik S, Fallon R, Chu JY, Wang W, Casella JF, Resar L, Berman B, Adamkiewicz T, Hsu LL, Smith-Whitley K, Mahoney D, Woods G, Watanabe M, DeBaun MR Exchange blood transfusion compared with simple transfusion for first overt stroke is associated with a lower risk of subsequent stroke: a retrospective cohort study of 137 children with sickle cell anemia. J Pediatr. 2006 Nov;149(5):710-2
12. Brousseau DC, McCarver DG, Drendel AL, Divakaran K, Panepinto JA The effect of CYP2D6 polymorphisms on the response to pain treatment for pediatric sickle cell pain crisis. J Pediatr. 2007 Jun;150(6):623-6
13. Panepinto JA, Walters MC, Carreras J, Marsh J, Bredeson CN, Gale RP, Hale GA, Horan J, Hows JM, Klein JP, Pasquini R, Roberts I, Sullivan K, Eapen M, Ferster A, Non-Malignant Marrow Disorders Working Committee, Center for International Blood and Marrow Transplant Research Matched-related donor transplantation for sickle cell disease: report from the Center for International Blood and Transplant Research. Br J Haematol. 2007 Jun;137(5):479-85
14. Goers T, Panepinto J, Debaun M, Blinder M, Foglia R, Oldham KT, Field JJ Laparoscopic versus open abdominal surgery in children with sickle cell disease is associated with a shorter hospital stay. Pediatr Blood Cancer. 2008 Mar;50(3):603-6
15. Kam J, Panepinto JA, Brandow AM, Brousseau DC Parental perception of quality of hospital care for children with sickle cell disease. WMJ. 2008 May;107(3):131-5
16. Panepinto JA, Pajewski NM, Foerster LM, Hoffmann RG The performance of the PedsQL generic core scales in children with sickle cell disease. J Pediatr Hematol Oncol. 2008 Sep;30(9):666-73
17. Brandow AM, Brousseau DC, Panepinto JA Postdischarge pain, functional limitations and impact on caregivers of children with sickle cell disease treated for painful events. Br J Haematol. 2009 Mar;144(5):782-8
18. Panepinto JA, Pajewski NM, Foerster LM, Sabnis S, Hoffmann RG Impact of family income and sickle cell disease on the health-related quality of life of children. Qual Life Res. 2009 Feb;18(1):5-13
19. Brousseau DC, Mukonje T, Brandow AM, Nimmer M, Panepinto JA Dissatisfaction with hospital care for children with sickle cell disease not due only to race and chronic disease. Pediatr Blood Cancer. 2009 Aug;53(2):174-8
20. Panepinto JA, Hoffmann RG, Pajewski NM A psychometric evaluation of the PedsQL Family Impact Module in parents of children with sickle cell disease. Health Qual Life Outcomes. 2009;7:32
21. Brandow AM, Brousseau DC, Pajewski NM, Panepinto JA Vaso-occlusive painful events in sickle cell disease: impact on child well-being. Pediatr Blood Cancer. 2010 Jan;54(1):92-7
22. Brousseau DC, Panepinto JA, Nimmer M, Hoffmann RG The number of people with sickle-cell disease in the United States: national and state estimates. Am J Hematol. 2010 Jan;85(1):77-8
23. Panepinto JA, Hoffmann RG, Pajewski NM The effect of parental mental health on proxy reports of health-related quality of life in children with sickle cell disease. Pediatr Blood Cancer. 2010 Oct;55(4):714-21
24. Brandow AM, Jirovec DL, Panepinto JA Hydroxyurea in children with sickle cell disease: practice patterns and barriers to utilization. Am J Hematol. 2010 Aug;85(8):611-3
25. Hulbert ML, McKinstry RC, Lacey JL, Moran CJ, Panepinto JA, Thompson AA, Sarnaik SA, Woods GM, Casella JF, Inusa B, Howard J, Kirkham FJ, Anie KA, Mullin JE, Ichord R, Noetzel M, Yan Y, Rodeghier M, Debaun MR Silent cerebral infarcts occur despite regular blood transfusion therapy after first strokes in children with sickle cell disease. Blood. 2011 Jan 20;117(3):772-9
26. Thornburg CD, Calatroni A, Panepinto JA Differences in health-related quality of life in children with sickle cell disease receiving hydroxyurea. J Pediatr Hematol Oncol. 2011 May;33(4):251-4
27. Leschke J, Panepinto JA, Nimmer M, Hoffmann RG, Yan K, Brousseau DC Outpatient follow-up and rehospitalizations for sickle cell disease patients. Pediatr Blood Cancer. 2012 Mar;58(3):406-9
28. Brandow AM et al. The impact of a multidisciplinary pain management model on sickle cell disease pain hospitalizations. Pediatr Blood Cancer. 2010 Dec 15:
29. Brandow AM, Panepinto JA Monitoring toxicity, impact, and adherence of hydroxyurea in children with sickle cell disease. Am J Hematol. 2011 Sep;86(9):804-6
30. Brandow AM, Weisman SJ, Panepinto JA The impact of a multidisciplinary pain management model on sickle cell disease pain hospitalizations. Pediatr Blood Cancer. 2011 May;56(5):789-93
31. Debaun MR, Sarnaik SA, Rodeghier MJ, Minniti CP, Howard TH, Iyer RV, Inusa B, Telfer PT, Kirby-Allen M, Quinn CT, Bernaudin F, Airewele G, Woods GM, Panepinto JA, Fuh B, Kwiatkowski JK, King AA, Rhodes MM, Thompson AA, Heiny ME, Redding-Lallinger RC, Kirkham FJ, Sabio H, Gonzalez CE, Saccente SL, Kalinyak KA, Strouse JJ, Fixler JM, Gordon MO, Miller JP, Ichord RN, Casella JF Associated risk factors for silent cerebral infarcts in sickle cell anemia: low baseline hemoglobin, gender and relative high systolic blood pressure. Blood. 2011 Nov 17:
32. Hemker BG, Brousseau DC, Yan K, Hoffmann RG, Panepinto JA When children with sickle-cell disease become adults: lack of outpatient care leads to increased use of the emergency department. Am J Hematol. 2011 Oct;86(10):863-5
33. Kamani NR, Walters MC, Carter S, Aquino V, Brochstein JA, Chaudhury S, Eapen M, Freed BM, Grimley M, Levine JE, Logan B, Moore T, Panepinto J, Parikh S, Pulsipher MA, Sande J, Schultz KR, Spellman S, Shenoy S. Unrelated donor cord blood transplantation for children with severe sickle cell disease: Results of a phase II study from the blood and marrow transplant clinical trials network. Biology of Blood and Marrow Transplantation. 2012;18(2, Supplement):S326
34. Panepinto JA, Torres S, Varni JW Development of the PedsQL™ sickle cell disease module items: qualitative methods. Qual Life Res. 2012 Mar;21(2):341-57
35. Panepinto JA, Bonner M Health-related quality of life in sickle cell disease: Past, present, and future. Pediatr Blood Cancer. 2012 Apr 22:
36. Brousseau DC, Panepinto JA, Steiner CA Transition From Pediatric to Adult Care for Patients With Sickle Cell Disease-Reply. JAMA. 2010 Jul 28;304(4):408-409
37. Brandow AM, Stucky CL, Hillery CA, Hoffmann RG, Panepinto JA Patients with sickle cell disease have increased sensitivity to cold and heat. Am J Hematol. 2012 Sep 26:
38. Myrvik MP, Burks LM, Hoffman RG, Dasgupta M, Panepinto JA Mental health disorders influence admission rates for pain in children with sickle cell disease. Pediatr Blood Cancer. 2012 Nov 14:
39. Panepinto JA Health-related quality of life in patients with hemoglobinopathies. Hematology Am Soc Hematol Educ Program. 2012;2012:284-9
40. Darbari DS, Panepinto JA What is the evidence that hydroxyurea improves health-related quality of life in patients with sickle cell disease? Hematology Am Soc Hematol Educ Program. 2012;2012:290-1
41. Collins CL, Scott JP, Panepinto JA, Punzalan RC Severe Thrombocytopenia in a Child Secondary to Passive Platelet Antibody Transfer from a Plasma Transfusion. J Pediatr Hematol Oncol. 2013 Mar 1:
42. Anderson C, Torres S, Gokuli S, Brandow AM, Panepinto JA Assessment of communication modes in patients and families with sickle cell disease. Pediatr Blood Cancer. 2013 May;60(5):887
43. Panepinto JA, Torres S, Bendo CB, McCavit TL, Dinu B, Sherman-Bien S, Bemrich-Stolz C, Varni JW PedsQL™ Sickle Cell Disease Module: Feasibility, Reliability, and Validity. Pediatr Blood Cancer. 2013 Feb 25:
44. Myrvik MP, Brandow AM, Drendel AL, Yan K, Hoffmann RG, Panepinto JA Clinically meaningful measurement of pain in children with sickle cell disease. Pediatr Blood Cancer. 2013 Jun 17:
45. Epping AS, Myrvik MP, Newby RF, Panepinto JA, Brandow AM, Scott JP Academic attainment findings in children with sickle cell disease. J Sch Health. 2013 Aug;83(8):548-53
46. Panepinto JA, Torres S, Bendo CB, McCavit TL, Dinu B, Sherman-Bien S, Bemrich-Stolz C, Varni JW PedsQL™ multidimensional fatigue scale in sickle cell disease: Feasibility, reliability, and validity. Pediatr Blood Cancer. 2013 Sep 13:
47. Brandow AM, Farley RA, Panepinto JA Neuropathic pain in patients with sickle cell disease. Pediatr Blood Cancer. 2013 Oct 26:
48. Badaki-Makun O, Scott JP, Panepinto JA, Casper TC, Hillery CA, Dean JM, Brousseau DC, for the Pediatric Emergency Care Applied Research Network (PECARN) Magnesium in Sickle Cell Crisis (MAGiC) Study Group Intravenous magnesium for pediatric sickle cell vaso-occlusive crisis: Methodological issues of a randomized controlled trial. Pediatr Blood Cancer. 2014 Jan 17:
49. Wiczling P, Liem RI, Panepinto JA, Garg U, Abdel-Rahman SM, Kearns GL, Neville KA Population Pharmacokinetics of Hydroxyurea for Children and Adolescents with Sickle Cell Disease. J Clin Pharmacol. 2014 Apr 3:
 
Books, Chapters, and Reviews
1. Hillery CA, Panepinto JA Pathophysiology of stroke in sickle cell disease. Microcirculation. 2004 Mar;11(2):195-208
2. Panepinto JA, Brousseau DC Acute idiopathic thrombocytopenic purpura of childhood-diagnosis and therapy. Pediatr Emerg Care. 2005 Oct;21(10):691-5; quiz 696-8
3. Rennie KM, Panepinto JA. Sickle Cell Disease. In: Castillo CL (ed). Children With Complex Medical Issues in Schools: Neuropsychological Descriptions and Interventions. Springer Publishing Company, April, 2008
4. Panepinto JA Health-related quality of life in sickle cell disease. Pediatr Blood Cancer. 2008 Jul;51(1):5-9
5. Brandow AM, Panepinto JA Hydroxyurea use in sickle cell disease: the battle with low prescription rates, poor patient compliance and fears of toxicities. Expert Rev Hematol. 2010 Jun;3(3):255-60
6. Brousseau DC, Owens PL, Mosso AL, Panepinto JA, Steiner CA Acute care utilization and rehospitalizations for sickle cell disease. JAMA. 2010 Apr 7;303(13):1288-94
7. Brandow AM, Panepinto JA Hydroxyurea use in sickle cell disease: the battle with low prescription rates, poor patient compliance and fears of toxicities. Expert Rev Hematol. 2010 Jun;3(3):255-60
8. Scott JP, Panepinto JA. Chapter “Hematology” and Chapter “Anemia” in Nelson Essentials of Pediatrics, 6th Edition, 2011
9. Neville KA, Panepinto JA. Pharmacotherapy of Sickle Cell Disease. World Health Organization, 18th Expert Committee on the Selection and Use of Essential Medicines, http://www.who.int/selection_medicines/committees/expert/18/applications/Sicklecell.pdf, March 2011
 
Abstracts
1. Panepinto JA, Kurchubasche AG, Thurman G, Hiester A, Ambruso DR. A Novel Neutrophil (PMN) Dysfunction Syndrome: Infections and Poor Wound Healing Associated With Defective Motility but Normal Expression and Function of CD11b. Pediatric Academic Societies’ Annual Meeting Abstracts, May 1999
2. Ambruso DR, Knall C, Abell AN, Panepinto JA, Kurkchubasche A, Thurman G, Gonzalez-Aller C, Hiester A, deBoer M, Harbeck RJ, Oyer R, Johnson GL, Roos D. Human Rac2 Deficiency: A Novel Syndrome of Neutrophil (PMN) Dysfunction and Recurrent Bacterial Infections. Blood Abstracts. 1999 Dec: 615a
3. Panepinto JA, Lethert K, Scott JP, Gill JC. Children with a Mild Platelet Function Defect: Clinical Symptoms and Their Relationship to Coagulation Studies. Journal of Pediatric Hematology/Oncology, March/April 24(3): A14, 2002.
4. Panepinto JA, Hillery CA, and Scott JP. Seasonal Variation in Hospital Length of Stay in Children With Sickle Cell Disease. Blood 100(11):186a, 2002
5. Panepinto JA, OMahar KM, DeBaun MR, Scott JP. Self-Reported Quality of Life in Children with Sickle Cell Disease. Blood, Vol 102(11):497a,2003
6. Panepinto JA, O’Mahar KM, DeBaun MR, Scott JP. Validation of the Child Health Questionnaire As a Measure of Health Related Quality of Life in Sickle Cell Disease. Blood, Vol 102(11):204a, November, 2003
7. Panepinto JA, O’Mahar KM , DeBaun MR, and Scott JP . Health-Related Quality of Life In Sickle Cell Disease: Correlation of Child and Parent Report. Pediatric Blood & Cancer, 42(6):513, 2004
8. Pawar SS, Panepinto JA, Brousseau DC. The Effect of Acute Pain Crisis on Exhaled Nitric Oxide Levels in Children With Sickle Cell Disease. Pediatric Blood and Cancer, 44(6):552, 2005
9. Burns KC, Panepinto JA. Attitudes Regarding Infertility in Female Adolescent Cancer Patients. Pediatric Blood & Cancer, 44(6):565, 2005
10. Brousseau DC, McCarver DG, Panepinto JA. Sickle Cell Pain Crisis: The Effect of CYP2D6 Polymorphisms. Blood 106(11):652a, November, 2005
11. Rennie KM, Scott JP, Panepinto JA, Hillery CA. Increased Red Cell Adhesion is Associated with Overt Stroke in Sickle Cell Disease. Blood 106(11):652a
12. Panepinto JA, O’Mahar KM, DeBaun MR, Scott JP. Coping Styles and Health-related Quality of Life in Children with Sickle Cell Disease. Blood 106(11): 386a November, 2005
13. Panepinto JA, Carreras J, Walters M, Eapen M, Marsh J, Gale RP, Hows J, Ferster A. Matched related donor transplantation for sickle cell disease: Report from the Center for International Blood and Transplant Research. Blood 106(11): 574a November 2005
14. Matchey, Jennifer MD; Musa, Ndidiamaka MD; Pan, Cynthia MD; Panepinto, Julie MD; Fedderly, Raymond MD Newborn With Renal Artery Thrombosis Presenting As Respiratory Failure. Pediatric Critical Care Medicine. 7(5):512, September 2006
15. Blyth A, Foerster L, Panepinto JA. Impact of Sickle Cell Disease on Parents. Blood 108 (11) 3348, November 2006
16. Brandow A., Rennie, K, Scott P, Hillery C, Panepinto JA. Increased Red Blood Cell Adhesion Is Associated With Priapism in Sickle Cell Disease. Blood 108 (11) 1235, November 2006
17. Kam J, Panepinto, JA, Brousseau DC. Quality of Hospital Care for Children with Sickle Cell Disease. Annual Meeting of the Pediatric Academic Societies, Toronto, Canada, May 2007
18. Panepinto JA, Foerster LM, Sapnis S, Pajewski N, Hoffmann R. Impact of Poverty and Sickle Cell Disease on the Health-Related Quality of Life of Children. Blood 110 (11) 33a, November 16, 2007
19. Panepinto JA, Foester LM. Disease Severity in Sickle Cell Disease: Understanding Impairment in Health-related Quality of Life. Blood 110 (11) 291a, November 16, 2007
20. Brandow AM, Brousseau DC, Panepinto JA. Functional Outcomes of Children with Sickle Cell Disease Treated for Vaso-Occlusive Painful Events. Blood 110 (11) Abstract #82, November 16, 2007
21. Panepinto JA, Pajewski NM, Hoffmann RG. Proxy Reports of Health-related Quality of Life in Children with Sickle Cell Disease: The Effect of Parental Well Being and Mental Health. Presented at the International Society of Quality of Life Research, Montevideo, Uruguay, October 2008
22. Brousseau DC, Panepinto JA, Owens PL, Steiner C. Acute Care Visits in Sickle Cell Disease: A Population-Based Multi-State Study. Blood 112(11) 165a, November 16, 2008
23. Brousseau DC, Panepinto JA, Nimmer, M, Hoffmann RG. The Number of People with Sickle Cell Disease in the United States: National and State Estimates. Blood 114(22) 1365a, November 22, 2009
24. Sarnak SA, Casella JF, Barton BA, and SIT investigators et al. Elevated Systolic Blood Pressure and Low Fetal Hemoglobin Are Risk Factors for Silent Cerebral Infarcts in Children with Sickle Cell Anemia. Blood 114(22) 262a, November 22, 2009
25. Brandow AM, Jirovec DL, Panepinto JA. Hydroxyurea in Children with Sickle Cell Disease: Practice Patterns and Barriers to Utilization. Blood 114(22) 242a, November 22, 2009
26. Leschke JM, Panepinto JA, Hoffmann RG, Yan K, Brousseau D. Outpatient Follow-up and Rehospitalization for Sickle Cell Disease in Wisconsin Medicaid. Blood 114(22) 2489a, November 22, 2009
27. Brandow AM, Jirovec D, Panepinto JA. Evaluation of Children with Sickle Cell Disease Treated for Chronic or Recurrent Pain Using a Multidimensional Pain Management Model. (Presented at the American Society of Pediatric Hematology/Oncology Annual Meeting, Montreal Canada, April 9, 2010
28. Thornburg CD, Calatroni A, Panepinto JA. Impact of Hydroxyurea on Health-related Quality of Life in Children with Sickle Cell Disease. (Presented at the American Society of Pediatric Hematology/Oncology Annual Meeting, Montreal Canada, April, 2010)
29. Panepinto JA, Owens PL, Mosso A, Steiner CA, Brousseau DC. Continuity of Care for Acute Visits in Sickle Cell disease: Do Patients Go to More than One Site? Blood, in press, 2010. (Presented at American Society of Hematology Annual Meeting, Orlando, Florida, December 2010.)
30. Hemker BG, Brousseau DC, Yan K, Hoffmann RG, Panepinto JA. Health Care Utilization Patterns and Emergency Department Reliance During Transition of Care From Pediatric to Adult Providers In Sickle Cell Disease. Blood, in press, 2010. (Presented at American Society of Hematology Annual Meeting, Orlando, Florida, December 2010.)
31. Panepinto JA, Torres S, Varni JW. Development of the PedsQL™ Sickle Cell Disease Module Items: Qualitative Methods
32. Miller ST, Kim HY, Weiner D, Wager CG, Gallagher D, Styles L, Dampier CD, Investigators of the Sickle Cell Disease Clinical Research Network (SCDCRN) Inpatient management of sickle cell pain: a 'snapshot' of current practice. Am J Hematol. 2012 Mar;87(3):333-6
33. Panepinto J, Owens P, Mosso A, Steiner C, Brousseau D Concentration of hospital care for acute sickle cell disease-related visits. Pediatr Blood Cancer. 2011 Dec 16: