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Dissatisfaction with hospital care for children with sickle cell disease not due only to race and chronic disease. Pediatr Blood Cancer 2009 Aug;53(2):174-8 PMID: 19350642

Pubmed ID

19350642

DOI

10.1002/pbc.22039

Abstract

BACKGROUND: A previous study reported increased dissatisfaction with hospital care for children with sickle cell disease (SCD); however, its small size excluded determining whether race and chronic disease explained the difference.

PROCEDURE: At hospital discharge, parents of children with SCD completed a survey assessing satisfaction with their child's hospital care. Results were compared to three years of satisfaction surveys for children with asthma or admitted to a general pediatrician's service collected as quality improvement for the hospital. The primary outcome was parent reported dissatisfaction with care. A chi-square was used to compare dissatisfaction between SCD and each comparison group.

RESULTS: Parents of 639 children were included, 34 children with SCD, 124 with asthma, and 481 general pediatric patients. Parents of children with SCD were more often dissatisfied with their child's care compared to children with asthma (32.4% vs. 16.9%, P < 0.05) and general pediatric patients (32.4% vs. 14.6%, P < 0.05). Among all children, dissatisfaction was higher in families with minority children (21.1% vs. 12.6%); this difference did not exist among children with asthma. Among African-American children, a higher proportion of parents of children with SCD believed their child was treated differently because of race than children with asthma (45.5% vs. 2.8%, P < 0.01) or general pediatric patients (45.5% vs. 8.3%, P < 0.01).

CONCLUSION: Parents of children with SCD report increased dissatisfaction with care. While dissatisfaction was higher in minority families, the high rate of parental concern about race as a reason for families of children with SCD is not seen in African-American families of children with asthma.

Author List

Brousseau DC, Mukonje T, Brandow AM, Nimmer M, Panepinto JA

Authors

Amanda Brandow DO Associate Professor in the Pediatrics department at Medical College of Wisconsin
David Brousseau MD Chief, Professor in the Pediatrics department at Medical College of Wisconsin
Julie A. Panepinto MD, MSPH Professor in the Pediatrics department at Medical College of Wisconsin




Scopus

2-s2.0-67649983606   16 Citations

MESH terms used to index this publication - Major topics in bold

Adolescent
Anemia, Sickle Cell
Child
Child, Preschool
Chronic Disease
Continental Population Groups
Hospitalization
Humans
Infant
Parents
Patient Satisfaction
Professional-Family Relations
Quality of Health Care
Surveys and Questionnaires
jenkins-FCD Prod-321 98992d628744e349846c2f62ac68f241d7e1ea70