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A multimethod assessment of psychosocial functioning and late effects in survivors of childhood cancer and hematopoietic cell transplant. J Pediatr Hematol Oncol 2012 Jan;34(1):22-8

Date

11/16/2011

Pubmed ID

22082747

DOI

10.1097/MPH.0b013e3182281f8e

Scopus ID

2-s2.0-84855444794   6 Citations

Abstract

Previous research in childhood cancer and hematopoietic cell transplant (HCT) survivorship has relied on the use of standardized questionnaires that assess symptoms of psychological functioning but do not sufficiently capture the cancer survivorship experience. Study aims are to quantitatively and qualitatively assess the psychosocial functioning of pediatric cancer and HCT survivors seen in a multidisciplinary survivorship clinic, determine survivorship concerns, and assess potential demographic and medical correlates of psychosocial outcomes. Data were collected using a retrospective chart review of a parent-report questionnaire of the child's psychological functioning, responses to a semistructured interview that qualitatively assessed adjustment to life after treatment, and documented medical late effects. Results indicated the majority of survivors had healthy psychological adjustment based upon a parent-report questionnaire. However, nearly 72% of survivors reported 1 or more survivorship concerns during the interview, with the primary concerns being current and future health or physical functioning, including the possibility of cancer recurrence. A content analysis of the interview responses indicated HCT survivors had more school or cognitive functioning concerns compared with survivors who did not have an HCT. Further research should use survivorship-specific measures to better identify survivors at risk and determine the impact of late effects on their quality of life.

Author List

Bingen K, Schroedl RL, Anderson L, Schmidt D, Hoag J, Christiansen H, Kupst MJ

Authors

Lynnette J. Anderson NP Manager NP/PA in the Pediatrics department at Medical College of Wisconsin
Kristin M. Bingen PhD Professor in the Pediatrics department at Medical College of Wisconsin
Jennifer A. Hoag PhD Associate Professor in the Pediatrics department at Medical College of Wisconsin




MESH terms used to index this publication - Major topics in bold

Adolescent
Adult
Child
Child, Preschool
Female
Hematopoietic Stem Cell Transplantation
Humans
Infant
Infant, Newborn
Male
Neoplasms
Retrospective Studies
Survivors
jenkins-FCD Prod-398 336d56a365602aa89dcc112f077233607d6a5abc