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Factors associated with parental activation in pediatric hematopoietic stem cell transplant. Med Care Res Rev 2012 Apr;69(2):194-214

Date

12/29/2011

Pubmed ID

22203645

Pubmed Central ID

PMC4160822

DOI

10.1177/1077558711431460

Scopus ID

2-s2.0-84859549321   30 Citations

Abstract

Patient activation, the extension of self-efficacy into self-management, is an essential component of effective chronic care. In pediatric populations, caregiver activation is also needed for proper disease management. This study investigates the relationships between parental activation and other characteristics of parent-child dyads (N = 198) presenting for pediatric hematopoietic stem cell transplant. Parental activation concerning their child's health was assessed using the Parent Patient Activation Measure (Parent-PAM), a modified version of the well-validated Patient Activation Measure (PAM). Using hierarchical linear regression and following the Belsky process model for determining parenting behaviors, a multivariate model was created for parental activation on behalf of their child that showed that the parent's age, rating of their own general health, self-activation, and duration of the child's illness were significantly related to Parent-PAM score. Our findings characterize a potentially distinct form of activation in a parent-child cohort preparing for a demanding clinical course.

Author List

Pennarola BW, Rodday AM, Mayer DK, Ratichek SJ, Davies SM, Syrjala KL, Patel S, Bingen K, Kupst MJ, Schwartz L, Guinan EC, Hibbard JH, Parsons SK, HSCT-CHESS Study

Author

Kristin M. Bingen PhD Professor in the Pediatrics department at Medical College of Wisconsin




MESH terms used to index this publication - Major topics in bold

Adolescent
Adult
Caregivers
Child
Child, Preschool
Demography
Female
Hematopoietic Stem Cell Transplantation
Humans
Infant
Linear Models
Male
Medical Oncology
Middle Aged
Parent-Child Relations
Parents
Self Care
Self Efficacy
Social Environment
Surveys and Questionnaires
jenkins-FCD Prod-399 190a069c593fb5498b7fcd942f44b7bc9cdc7ea1