Medical College of Wisconsin
CTSICores SearchResearch InformaticsREDCap

Transitioning adolescents and young adults with spina bifida to adult healthcare: initial findings from a model program. Rehabil Nurs 2015 Jan-Feb;40(1):3-11 PMID: 24443345

Pubmed ID





PURPOSE: The Spina Bifida Transition Project (SBTP) was developed by partners from pediatric and adult health care settings using existing best practice information in an effort to transition adolescents to adult health care providers. The purpose of this manuscript is to present the results of an initial evaluation of the SBTP from the adolescent/young adult (AYA) and family perspective.

DESIGN AND METHODS: Qualitative evaluation data were obtained from telephone interviews with 40 individuals (24 AYA and 16 parents representing 28 families) two-three weeks after initial adult clinic visits using a semi-structured interview guide.

FINDINGS: Interview analysis yielded six overall themes: Positive experience, Developing Trust, Unexpected Benefits, Communication, Potential Worries, and Suggestions for Improvement. The study supported both the effectiveness of the SBTP as well as patient desire for earlier initiation of transition activities

CONCLUSION AND CLINICAL RELEVANCE: SBTP is well-received by participants and their parents and may be useful model for other chronic health conditions.

Author List

Sawin KJ, Rauen K, Bartelt T, Wilson A, O'Connor RC, Waring WP 3rd, Orr M


Robert Corey O'Connor MD Professor in the Urologic Surgery department at Medical College of Wisconsin
William P. Waring MD Associate Professor in the Physical Medicine and Rehabilitation department at Medical College of Wisconsin


2-s2.0-84920680317   6 Citations

MESH terms used to index this publication - Major topics in bold

Continuity of Patient Care
Education, Nursing, Continuing
Interviews as Topic
Middle Aged
Outcome Assessment (Health Care)
Pilot Projects
Program Evaluation
Quality Improvement
Rehabilitation Nursing
Spinal Dysraphism
Young Adult
jenkins-FCD Prod-353 9ccd8489072cb19f5b9f808bb23ed672c582f41e