Pilot study protocol of a mHealth self-management intervention for family members of pediatric transplant recipients. Res Nurs Health 2020 Apr;43(2):145-154
Date
01/28/2020Pubmed ID
31985067Pubmed Central ID
PMC7047587DOI
10.1002/nur.22010Scopus ID
2-s2.0-85078743315 (requires institutional sign-in at Scopus site) 11 CitationsAbstract
Solid-organ transplantation is the treatment of choice for end-stage organ failure. Parents of pediatric transplant recipients who reported a lack of readiness for discharge had more difficulty coping and managing their child's medically complex care at home. In this paper, we describe the protocol for the pilot study of a mHealth intervention (myFAMI). The myFAMI intervention is based on the Individual and Family Self-Management Theory and focuses on family self-management of pediatric transplant recipients at home. The purpose of the pilot study is to test the feasibility of the myFAMI intervention with family members of pediatric transplant recipients and to test the preliminary efficacy on postdischarge coping through a randomized controlled trial. The sample will include 40 family units, 20 in each arm of the study, from three pediatric transplant centers in the United States. Results from this study may advance nursing science by providing insight for the use of mHealth to facilitate patient/family-nurse communication and family self-management behaviors for family members of pediatric transplant recipients.
Author List
Lerret SM, White-Traut R, Medoff-Cooper B, Simpson P, Adib R, Ahamed SI, Schiffman RAuthors
Stacee Lerret PhD Professor Hybrid in the Pediatrics department at Medical College of WisconsinRachel Schiffman BS,MS,PhD Associate Dean for Research in the College of Nursing department at University of Wisconsin - Milwaukee
Pippa M. Simpson PhD Adjunct Professor in the Pediatrics department at Medical College of Wisconsin
MESH terms used to index this publication - Major topics in bold
Adaptation, PsychologicalAdolescent
Adult
Aftercare
Child
Child, Preschool
Family
Female
Humans
Infant
Male
Middle Aged
Nurse-Patient Relations
Organ Transplantation
Pilot Projects
Self-Management
Telemedicine
Transplant Recipients
United States
