Interstage Home Monitoring for Infants With Single Ventricle Heart Disease: Education and Management: A Scientific Statement From the American Heart Association. J Am Heart Assoc 2020 Aug 18;9(16):e014548
Date
08/12/2020Pubmed ID
32777961Pubmed Central ID
PMC7660817DOI
10.1161/JAHA.119.014548Scopus ID
2-s2.0-85089710980 (requires institutional sign-in at Scopus site) 47 CitationsAbstract
This scientific statement summarizes the current state of knowledge related to interstage home monitoring for infants with shunt-dependent single ventricle heart disease. Historically, the interstage period has been defined as the time of discharge from the initial palliative procedure to the time of second stage palliation. High mortality rates during the interstage period led to the implementation of in-home surveillance strategies to detect physiologic changes that may precede hemodynamic decompensation in interstage infants with single ventricle heart disease. Adoption of interstage home monitoring practices has been associated with significantly improved morbidity and mortality. This statement will review in-hospital readiness for discharge, caregiver support and education, healthcare teams and resources, surveillance strategies and practices, national quality improvement efforts, interstage outcomes, and future areas for research. The statement is directed toward pediatric cardiologists, primary care providers, subspecialists, advanced practice providers, nurses, and those caring for infants undergoing staged surgical palliation for single ventricle heart disease.
Author List
Rudd NA, Ghanayem NS, Hill GD, Lambert LM, Mussatto KA, Nieves JA, Robinson S, Shirali G, Steltzer MM, Uzark K, Pike NA, American Heart Association Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Arteriosclerosis, Thrombosis and Vascular Biology; Council on Clinical Cardiology; and Council on Lifestyle and Cardiometabolic HealthAuthor
Kathleen Mussatto Ph.D. Associate Professor in the School of Nursing department at Milwaukee School of EngineeringMESH terms used to index this publication - Major topics in bold
American Heart AssociationCaregivers
Checklist
Communication
Enteral Nutrition
Home Nursing
Humans
Hypoplastic Left Heart Syndrome
Infant
Monitoring, Physiologic
Norwood Procedures
Oximetry
Oxygen
Palliative Care
Patient Care Team
Patient Discharge
Quality Improvement
Reoperation
Risk Factors
Transitional Care
United States
Weight Gain
