Development and testing of a self-report measure of preparing to parent in the context of a fetal anomaly diagnosis. Patient Educ Couns 2021 Mar;104(3):666-670
Date
08/26/2020Pubmed ID
32839046Pubmed Central ID
PMC7889754DOI
10.1016/j.pec.2020.08.017Scopus ID
2-s2.0-85089748707 (requires institutional sign-in at Scopus site) 1 CitationAbstract
OBJECTIVE: To generate a self-report instrument to capture clinically relevant variations in expectant parents' caregiving development, specified by how they are preparing to parent an infant with a major congenital anomaly.
METHODS: Recent literature structured domains to guide item generation. Evaluations by experts and expectant parents led to a refined instrument for field testing. Psychometric testing included exploratory factor analysis, internal consistency, and test-retest reliability.
RESULTS: Samples included expert evaluators (n = 9), and expectant parent evaluators (n = 20) and expectant mother field testers (n = 67) with fetal anomaly diagnoses. Preparing to Parent-Act, Relate, Engage (PreP-ARE) resulted from a three factor solution that explained 71.8 % of the total variance, with global Cronbach's α = 0.72, and sub-scales 0.81, 0.65, 0.72 respectively. Cohen's weighted kappa indicated all items were acceptably reliable, with 14 of 19 items showing moderate (≥ 0.41) or good (≥ 0.61) reliability. Convergent validity was found between the maternal antenatal attachment and Act scales (r = 0.39, p = 0.001).
CONCLUSION: This empirically-based instrument was demonstrated to be valid and reliable, and has potential for studying this transitional time.
PRACTICE IMPLICATIONS: PreP-ARE could be used to understand patient responses to the diagnosis, level of engagement, readiness to make decisions, and ability to form collaborative partnerships to manage healthcare.
Author List
McKechnie AC, Erickson K, Ambrose MB, Chen S, Miller SJ, Mathiason MA, Johnson KA, Leuthner SRAuthor
Steven R. Leuthner MD Professor in the Pediatrics department at Medical College of WisconsinMESH terms used to index this publication - Major topics in bold
FemaleHumans
Infant
Parents
Pregnancy
Psychometrics
Reproducibility of Results
Self Report
Surveys and Questionnaires