Faculty Collaboration Database

Findings and recommendations from the organ transplant caregiver initiative: Moving clinical care and research forward. Am J Transplant 2021 Mar;21(3):950-957

Date

09/19/2020

Pubmed ID

32946643

DOI

10.1111/ajt.16315

Scopus ID

2-s2.0-85092336033 (requires institutional sign-in at Scopus site)   11 Citations

Abstract

Lay-caregivers are essential to the continuum of care in adult organ transplantation. However, we have a limited understanding of the experiences, exigencies, and outcomes associated with lay-caregiving for organ transplant patients. While much discussion and debate has focused on caregiver requirements in relation to transplant candidate selection, little focus has been given to understanding the needs of caregivers themselves. In response to this, the Organ Transplant Caregiver Initiative was created, and a meeting was held during October 6-7, 2019. Transplant healthcare professionals, researchers, and lay-caregivers discussed the experiences, educational needs, existing research, and research recommendations to improve the experience of lay-caregivers for adult organ transplant patients. In this report, we summarize the Organ Transplant Caregiver Initiative and meeting findings, providing a preliminary action plan to improve education, research, and advocacy for organ transplant caregivers.

Author List

Jesse MT, Hansen B, Bruschwein H, Chen G, Nonterah C, Peipert JD, Dew MA, Thomas C, Ortega AD, Balliet W, Ladin K, Lerret S, Yaldo A, Coco T, Mallea J

Author

Stacee Lerret PhD Professor Hybrid in the Pediatrics department at Medical College of Wisconsin

MESH terms used to index this publication - Major topics in bold

Adult
Caregivers
Humans
Organ Transplantation