Feasibility and Acceptability of a mHealth Self-Management Intervention for Pediatric Transplant Families. West J Nurs Res 2022 Oct;44(10):955-965
Date
06/23/2021Pubmed ID
34154460Pubmed Central ID
PMC8688578DOI
10.1177/01939459211024656Scopus ID
2-s2.0-85108605092 (requires institutional sign-in at Scopus site) 9 CitationsAbstract
Families of pediatric solid organ transplant recipients need ongoing education and support in the first 30 days following hospital discharge for the transplantation. The purpose of this report is to describe the feasibility, acceptability, and preliminary efficacy of a mHealth family-self management intervention, (myFAMI), designed to improve post-discharge outcomes of coping, family quality of life, self-efficacy, family self-management, and utilization of health care resources. We enrolled 46 primary family members. myFAMI was feasible and acceptable; 81% (n=17/21) of family members completed the app at least 24/30 days (goal 80% completion rate). Family members generated 134 trigger alerts and received a nurse response within the goal timeframe of < 2 h 99% of the time. Although there were no significant differences between groups, primary outcomes were in the expected direction. The intervention was well received and is feasible for future post-discharge interventions for families of children who receive an organ transplant.
Author List
Lerret SM, Schiffman R, White-Traut R, Medoff-Cooper B, Ahamed SI, Adib R, Liegl M, Alonso E, Mavis A, Jensen K, Peterson CG, Neighbors K, Riordan MK, Semp MC, Vo T, Stendahl G, Chapman S, Unteutsch R, Simpson PAuthors
Stacee Lerret PhD Professor Hybrid in the Pediatrics department at Medical College of WisconsinRachel Schiffman BS,MS,PhD Associate Dean for Research in the College of Nursing department at University of Wisconsin - Milwaukee
Pippa M. Simpson PhD Adjunct Professor in the Pediatrics department at Medical College of Wisconsin
MESH terms used to index this publication - Major topics in bold
AftercareChild
Feasibility Studies
Humans
Patient Discharge
Quality of Life
Self-Management
Telemedicine
