Dissemination of a Patient-prioritized Research Agenda for Kidney Stone Disease: Patient Perceptions and Opportunities. Urology 2026 Jan;207:47-51
Date
09/25/2025Pubmed ID
40992460DOI
10.1016/j.urology.2025.09.022Scopus ID
2-s2.0-105018228941 (requires institutional sign-in at Scopus site)Abstract
OBJECTIVE: To query a broad group of stakeholders for feedback on a patient-prioritized research agenda for kidney stone disease and assess stakeholder perceptions of community engagement opportunities for kidney stone disease.
METHODS: We surveyed stakeholders who previously engaged in a broad-reaching effort to develop a patient-prioritized research agenda, inquiring as to the relevance of the final research agenda. Importance was rated for each agenda item on a scale of 1 (least important) to 9 (of critical importance). Surveys were administered electronically.
RESULTS: Of the 68/162 (42%) returned and fully completed surveys, 5 of the 6 agenda items met or exceeded median importance values of 7, demonstrating that they were of critical importance to a majority of stakeholders. Overall, only 33% and 22% of patients and caregivers reported ease in finding educational resources and support groups for kidney stone disease, respectively.
CONCLUSION: A patient-prioritized research agenda for kidney stone disease reflects important topics to most stakeholders, including patients and caregivers. Opportunities to further engage kidney stone community members are needed and include ready access to support groups and educational materials.
Author List
Price D, Taisan G, Sheridan K, Jacklin S, Dauw C, Scales C, Beck R, Beck H, Zellers C, Zellers K, Hollander K, Streeper N, Ellison JSAuthor
Jonathan Scott Ellison MD Associate Professor in the Urologic Surgery department at Medical College of WisconsinMESH terms used to index this publication - Major topics in bold
AdultBiomedical Research
Female
Humans
Information Dissemination
Kidney Calculi
Male
Middle Aged
Patient Participation
Surveys and Questionnaires
