Medical College of Wisconsin
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A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States. Nat Genet 2022 Mar;54(3):219-222

Date

03/09/2022

Pubmed ID

35256804

Pubmed Central ID

PMC9016354

DOI

10.1038/s41588-022-01027-w

Scopus ID

2-s2.0-85125729938 (requires institutional sign-in at Scopus site)   33 Citations

Abstract

To build a more efficient, equitable, and sustainable approach to rare disease research in the United States, we must prioritize integrated research infrastructure and approaches that focus on understanding connections across rare diseases.

Author List

Halley MC, Smith HS, Ashley EA, Goldenberg AJ, Tabor HK

Author

Meghan C. Halley PhD, BA, MPH Assistant Professor in the Institute for Health and Humanity department at Medical College of Wisconsin




MESH terms used to index this publication - Major topics in bold

Health Services Accessibility
Humans
Rare Diseases
United States