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The limits of traditional approaches to informed consent for genomic medicine. HEC Forum 2014 Sep;26(3):185-202

Date

08/15/2014

Pubmed ID

25117558

DOI

10.1007/s10730-014-9247-3

Scopus ID

2-s2.0-84907301107   7 Citations

Abstract

This paper argues that it will be important for new genomic technologies to recognize the limits of traditional approaches to informed consent, so that other-regarding implications of genomic information can be properly contextualized and individual rights respected. Respect for individual autonomy will increasingly require dynamic consideration of the interrelated dimensions of individual and broader community interests, so that the interests of one do not undermine fundamental interests of the other. In this, protection of individual rights will be a complex interplay between individual and community concerns.

Author List

May T, Zusevics KL, Derse A, Strong KA, Jeruzal J, La Pean Kirschner A, Farrell MH, Spellecy R

Authors

Arthur R. Derse MD, JD Director, Professor in the Institute for Health and Equity department at Medical College of Wisconsin
Ryan Spellecy PhD Assistant Provost, Director, Professor in the Institute for Health and Equity department at Medical College of Wisconsin
Kaija Zusevics PhD, MPH Adjunct Assistant Professor in the Institute for Health and Equity department at Medical College of Wisconsin




MESH terms used to index this publication - Major topics in bold

Ethics, Medical
Genomics
Humans
Informed Consent
Personal Autonomy