Health-related quality of life in sickle cell disease. Pediatr Blood Cancer 2008 Jul;51(1):5-9
Date
03/14/2008Pubmed ID
18338399DOI
10.1002/pbc.21557Scopus ID
2-s2.0-44149126463 (requires institutional sign-in at Scopus site) 23 CitationsAbstract
Advances in drug therapy, hematopoietic stem cell transplantation, and technology have improved the morbidity and survival for those with sickle cell disease. The effect of this modern therapy on the health-related quality of life (HRQL) of those with sickle cell disease is not known. HRQL provides an assessment of how an illness, its complications, and its treatment are experienced by a patient. This review will examine prior work in HRQL in sickle cell disease and the rationale for utilizing HRQL as an outcome to measure impact of treatment. In addition, issues to consider when reporting HRQL will be presented.
Author List
Panepinto JAMESH terms used to index this publication - Major topics in bold
Anemia, Sickle CellChild
Humans
Models, Statistical
Quality of Life
Surveys and Questionnaires