| 1 | A Patient-Prioritized Research Agenda for Clinical Trials in Kidney Stone Disease. (Ellison JS, Flynn KE, Sheridan K, Siodlarz S, Antonelli J, Bayne CE, Beck H, Ching C, Dangle PP, Dauw C, Davis C, Hollander K, Lange D, Ouimet K, Ouimet C, Pan AY, Penniston K, Scales CD Jr, Shah N, Spiardi R, Streeper N, Whitmore K, Witt M, Zhang L, Tasian GE) J Urol 2025 Jan;213(1):80-89 |
| 1 | Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party. (Schoemans H, Burns LJ, Liptrott SJ, Murray J, Kenyon M, Barata A, Bolaños N, Scholl I, Hamilton B, Phelan R, Buchbinder D, Penack O, Moiseev I, Boreland W, Peczynski C, De Geest S, Sureda A, Snowden JA, Shaw B, Peric Z, Kroeger N) Bone Marrow Transplant 2024 Sep;59(9):1286-1294 1 Citation |
| 1 | Establishing and Sustaining the Kidney Stone Engagement Core: A Model for Patient Engagement in Benign Urologic Disease. (Shah N, Tasian GE, Ellison JS) J Urol 2024 Apr;211(4):614-616 1 Citation |
| 1 | Patient experiences in making PTSD treatment decisions. (Larsen SE, Hooyer K, Kehle-Forbes SM, Hamblen J) Psychol Serv 2024 Aug;21(3):529-537 1 Citation |
| 1 | Development and modification of a dysphagia question prompt list to improve patient-physician communication: Incorporating both esophageal expert and patient perspectives. (Achalu S, Berry R, Zhuo J, Bredenoord AJ, Clarke JO, Fass R, Gyawali CP, Kahrilas PJ, Katzka DA, Massey BT, Penagini R, Roman S, Savarino E, Vela MF, Kamal AN) Neurogastroenterol Motil 2023 Aug;35(8):e14600 |
| 1 | Proposed Questions to Assess the Extent of Knowledge in Understanding the Radiology Report Language. (Alarifi M, Jabour AM, Wu M, Aldosary A, Almanaa M, Luo J) Int J Environ Res Public Health 2022 Sep 19;19(18) 1 Citation |
| 1 | Improving engagement and retention to treatment within VHA PTSD specialty care: Evolution of an outpatient program design. (Hessinger JD, Etingen B, Larsen SE, Hunley HA, Goldstein DA, Day AM, Mayberry M, Weber DJ, Dolgin R, Beyer JA, Maieritsch KP) Psychol Serv 2023;20(Suppl 2):241-247 2 Citations |
| 2 | Low patient engagement is associated with reduced health-related quality of life in adults with cyclic vomiting syndrome. (Dang-Vu G, Rein L, Szabo A, Venkatesan T) Scand J Gastroenterol 2022 Sep;57(9):1030-1035 2 Citations |
| 1 | Veteran Engagement in Health Services Research: a Conceptual Model. (Knight SJ, Haibach JP, Hamilton AB, Whittle J, Ono SS, Butler J, Flower M, Ray CD, Pugh MJ, Zickmund SL) J Gen Intern Med 2022 Apr;37(Suppl 1):94-98 15 Citations |
| 1 | Development of a Preliminary Question Prompt List as a Communication Tool for Adults With Achalasia: A Modified Delphi Study. (Zhuo J, Triadafilopoulos G, Bredenoord AJ, Clarke JO, Fass R, Gyawali CP, Hawn M, Hwang JH, Kahrilas PJ, Katzka DA, Low D, Massey BT, Patel D, Penagini R, Roman S, Savarino E, Smout AJ, Swanstrom L, Tatum R, Vela MF, Zaninotto G, Kamal AN) J Clin Gastroenterol 2023 Feb 01;57(2):159-164 2 Citations |
| 1 | Tool to improve patient-provider interactions in adult primary care: Randomized controlled pilot study. (O'Malley PG, Jackson JL, Becher D, Hanson J, Lee JK, Grace KA) Can Fam Physician 2022 Feb;68(2):e49-e58 7 Citations |
| 3 | Analysis of Clinician and Patient Factors and Completion of Telemedicine Appointments Using Video. (Crotty BH, Hyun N, Polovneff A, Dong Y, Decker MC, Mortensen N, Holt JM, Winn AN, Laud PW, Somai MM) JAMA Netw Open 2021 Nov 01;4(11):e2132917 32 Citations |
| 2 | Impact of Pre-visit Contextual Data Collection on Patient-Physician Communication and Patient Activation: a Randomized Trial. (Holt JM, Cusatis R, Winn A, Asan O, Spanbauer C, Williams JS, Flynn KE, Somai M, Talsma A, Laud P, Makoul G, Crotty BH) J Gen Intern Med 2021 Nov;36(11):3321-3329 11 Citations |
| 1 | Partnering with Parents of Children with Medical Complexity: A Framework for Engaging Families for Practice Improvement. (Schnell JL, Johaningsmeir S, Bartelt T, Bergman DA) Pediatr Ann 2020 Nov 01;49(11):e467-e472 4 Citations |
| 1 | Racial Disparities in Patient Activation: The Role of Economic Diversity. (Holt JM, Winn A, Cusatis R, Talsma A, Crotty BH) West J Nurs Res 2021 Jun;43(6):517-529 4 Citations |
| 1 | Engaging young African American women breast cancer survivors: A novel storytelling approach to identify patient-centred research priorities. (Yan A, Millon-Underwood S, Walker A, Patten C, Nevels D, Dookeran K, Hennessy R, Knobloch MJ, Egede L, Stolley M) Health Expect 2020 Apr;23(2):473-482 9 Citations |
| 1 | Assessing Patient-Reported Outcomes: A Negotiated Process. (Weinfurt KP, Flynn KE) J Clin Oncol 2020 Feb 20;38(6):652-653 2 Citations |
| 4 | Improving Communication in Breast Cancer Treatment Consultation: Use of a Computer Test of Health Numeracy. (Schapira MM, Fletcher KE, Ganschow PS, Jacobs EA, Walker CM, Smallwood AJ, Gil D, Faghri A, Kong AL, Yen TW, McDunn S, Marcus E, Neuner JM) J Womens Health (Larchmt) 2019 Oct;28(10):1407-1417 7 Citations |
| 1 | Patient experience with family history tool: analysis of patients' experience sharing their family health history through patient-computer dialogue in a patient portal. (Bajracharya AS, Crotty BH, Kowoloff HB, Safran C, Slack WV) J Am Med Inform Assoc 2019 Jul 01;26(7):603-609 14 Citations |
| 1 | Novel Health Information Technology Tool Use by Adult Patients Undergoing Allogeneic Hematopoietic Cell Transplantation: Longitudinal Quantitative and Qualitative Patient-Reported Outcomes. (Runaas L, Hoodin F, Munaco A, Fauer A, Sankaran R, Churay T, Mohammed S, Seyedsalehi S, Chappell G, Carlozzi N, Fetters MD, Kentor R, McDiarmid L, Brookshire K, Warfield C, Byrd M, Kaziunas S, Maher M, Magenau J, An L, Cohn A, Hanauer DA, Choi SW) JCO Clin Cancer Inform 2018 Dec;2:1-12 12 Citations |
| 1 | Use of the American College of Surgeons National Surgical Quality Improvement Program Surgical Risk Calculator During Preoperative Risk Discussion: The Patient Perspective. (Raymond BL, Wanderer JP, Hawkins AT, Geiger TM, Ehrenfeld JM, Stokes JW, McEvoy MD) Anesth Analg 2019 Apr;128(4):643-650 41 Citations |
| 1 | Functional Impairments Associated With Patient Activation Among Community-Dwelling Older Adults. (Na L, Kwong PL, Xie D, Pezzin LE, Kurichi JE, Streim JE) Am J Phys Med Rehabil 2018 Nov;97(11):839-847 3 Citations |
| 1 | Development of a veteran engagement toolkit for researchers. (Brys NA, Whittle J, Safdar N) J Comp Eff Res 2018 Jun;7(6):595-602 16 Citations |
| 3 | Engaging Patients in Setting a Patient-Centered Outcomes Research Agenda in Hematopoietic Cell Transplantation. (Burns LJ, Abbetti B, Arnold SD, Bender J, Doughtie S, El-Jawahiri A, Gee G, Hahn T, Horowitz MM, Johnson S, Juckett M, Krishnamurit L, Kullberg S, LeMaistre CF, Loren A, Majhail NS, Murphy EA, Rizzo D, Roche-Green A, Saber W, Schatz BA, Schmit-Pokorny K, Shaw BE, Syrjala KL, Tierney DK, Ullrich C, Vanness DJ, Wood WA, Denzen EM) Biol Blood Marrow Transplant 2018 Jun;24(6):1111-1118 24 Citations |
| 1 | Clinical Practice Guideline: Safe Medication Use in the ICU. (Kane-Gill SL, Dasta JF, Buckley MS, Devabhakthuni S, Liu M, Cohen H, George EL, Pohlman AS, Agarwal S, Henneman EA, Bejian SM, Berenholtz SM, Pepin JL, Scanlon MC, Smith BS) Crit Care Med 2017 Sep;45(9):e877-e915 71 Citations |
| 1 | Medication Harmony: A Framework to Save Time, Improve Accuracy and Increase Patient Activation. (Pandolfe F, Crotty BH, Safran C) AMIA Annu Symp Proc 2016;2016:1959-1966 7 Citations |
| 1 | BMT Roadmap: A User-Centered Design Health Information Technology Tool to Promote Patient-Centered Care in Pediatric Hematopoietic Cell Transplantation. (Runaas L, Hanauer D, Maher M, Bischoff E, Fauer A, Hoang T, Munaco A, Sankaran R, Gupta R, Seyedsalehi S, Cohn A, An L, Tewari M, Choi SW) Biol Blood Marrow Transplant 2017 May;23(5):813-819 38 Citations |
| 1 | Patient-centred outcomes research: brave new world meets old institutional policies. (Chung JS, Young HN, Moreno MA, Kliems H, Cox ED) Fam Pract 2017 Jun 01;34(3):296-300 6 Citations |
| 1 | Patient education as empowerment and self-rebiasing. (Jotterand F, Amodio A, Elger BS) Med Health Care Philos 2016 Dec;19(4):553-561 28 Citations |
| 1 | A pilot randomized controlled trial of a decision aid with tailored fracture risk tool delivered via a patient portal. (Smallwood AJ, Schapira MM, Fedders M, Neuner JM) Osteoporos Int 2017 Feb;28(2):567-576 25 Citations |
| 1 | Incorporating a Genetic Risk Score Into Coronary Heart Disease Risk Estimates: Effect on Low-Density Lipoprotein Cholesterol Levels (the MI-GENES Clinical Trial). (Kullo IJ, Jouni H, Austin EE, Brown SA, Kruisselbrink TM, Isseh IN, Haddad RA, Marroush TS, Shameer K, Olson JE, Broeckel U, Green RC, Schaid DJ, Montori VM, Bailey KR) Circulation 2016 Mar 22;133(12):1181-8 195 Citations |
| 1 | Social Media in the Dental School Environment, Part A: Benefits, Challenges, and Recommendations for Use. (Spallek H, Turner SP, Donate-Bartfield E, Chambers D, McAndrew M, Zarkowski P, Karimbux N) J Dent Educ 2015 Oct;79(10):1140-52 27 Citations |
| 1 | Connecting Patients and Clinicians: The Anticipated Effects of Open Notes on Patient Safety and Quality of Care. (Bell SK, Folcarelli PH, Anselmo MK, Crotty BH, Flier LA, Walker J) Jt Comm J Qual Patient Saf 2015 Aug;41(8):378-84 43 Citations |
| 1 | Variation in the risk of readmission among hospitals: the relative contribution of patient, hospital and inpatient provider characteristics. (Singh S, Lin YL, Kuo YF, Nattinger AB, Goodwin JS) J Gen Intern Med 2014 Apr;29(4):572-8 72 Citations |
| 1 | Barriers to study enrollment in patients with advanced cancer referred to a phase I clinical trials unit. (Fu S, McQuinn L, Naing A, Wheler JJ, Janku F, Falchook GS, Piha-Paul SA, Tu D, Howard A, Tsimberidou A, Zinner R, Hong DS, Kurzrock R) Oncologist 2013;18(12):1315-20 17 Citations |
| 1 | Factors related to biopsy willingness in patients with advanced cancer in a phase 1 clinic for molecularly targeted therapy. (Hong DS, George GC, Iwuanyanwu EC, Tavana B, Falchook GS, Piha-Paul SA, Wheler JJ, Mistry RH, Lei X, Kurzrock R) J Cancer Res Clin Oncol 2013 Jun;139(6):963-70 8 Citations |
| 1 | Decision boxes for clinicians to support evidence-based practice and shared decision making: the user experience. (Giguere A, Légaré F, Grad R, Pluye P, Haynes RB, Cauchon M, Rousseau F, Alvarez Argote J, Labrecque M) Implement Sci 2012 Aug 03;7:72 43 Citations |
| 1 | Patients' perceptions of sharing in decisions: a systematic review of interventions to enhance shared decision making in routine clinical practice. (Légaré F, Turcotte S, Stacey D, Ratté S, Kryworuchko J, Graham ID) Patient 2012;5(1):1-19 167 Citations |
| 1 | Technology-enhanced practice for patients with chronic cardiac disease: home implementation and evaluation. (Brennan PF, Casper GR, Burke LJ, Johnson KA, Brown R, Valdez RS, Sebern M, Perez OA, Sturgeon B) Heart Lung 2010;39(6 Suppl):S34-46 34 Citations |
| 1 | Patient choice of provider type in the emergency department: perceptions and factors relating to accommodation of requests for care providers. (Padela AI, Schneider SM, He H, Ali Z, Richardson TM) Emerg Med J 2010 Jun;27(6):465-9 13 Citations |
| 1 | New measures to establish the evidence base for medical education: identifying educationally sensitive patient outcomes. (Kalet AL, Gillespie CC, Schwartz MD, Holmboe ES, Ark TK, Jay M, Paik S, Truncali A, Hyland Bruno J, Zabar SR, Gourevitch MN) Acad Med 2010 May;85(5):844-51 |
| 1 | Factors associated with time to identify physical problems of nursing home residents with dementia. (Kovach CR, Logan BR, Simpson MR, Reynolds S) Am J Alzheimers Dis Other Demen 2010 Jun;25(4):317-23 25 Citations |
| 1 | A comparison of clinical trial enrollment between adolescent and young adult (AYA) oncology patients treated at affiliated adult and pediatric oncology centers. (Downs-Canner S, Shaw PH) J Pediatr Hematol Oncol 2009 Dec;31(12):927-9 65 Citations |
| 1 | Advocacy: the time is now. (Evans TE, Palmer E, Abercrombie S, Carek P, Carr S, Dickson G, Gravel J Jr, Hall K, Kozakowski S, Robinson M, Wieschhaus M) Ann Fam Med 2009;7(4):376-7 1 Citation |
| 1 | Active consent in urban elementary schools: an examination of demographic differences in consent rates. (Bergstrom JP, Partington S, Murphy MK, Galvao L, Fayram E, Cisler RA) Eval Rev 2009 Oct;33(5):481-96 13 Citations |
| 1 | Patients' perceptions of safety if interpersonal continuity of care were to be disrupted. (Pandhi N, Schumacher J, Flynn KE, Smith M) Health Expect 2008 Dec;11(4):400-8 18 Citations |
| 1 | Predictors of attrition among high risk HIV-infected participants enrolled in a multi-site prevention trial. (Johnson MO, Dilworth SE, Neilands TB, Chesney MA, Rotheram-Borus MJ, Remien RH, Weinhardt L, Ehrhardt AA, Morin SF, NIMH HLP team) AIDS Behav 2008 Nov;12(6):974-7 12 Citations |
| 1 | Different rates of clinical trial enrollment between adolescents and young adults aged 15 to 22 years old and children under 15 years old with cancer at a children's hospital. (Shaw PH, Ritchey AK) J Pediatr Hematol Oncol 2007 Dec;29(12):811-4 54 Citations |
| 1 | Personality and health care decision-making style. (Flynn KE, Smith MA) J Gerontol B Psychol Sci Soc Sci 2007 Sep;62(5):P261-7 95 Citations |
| 1 | A typology of preferences for participation in healthcare decision making. (Flynn KE, Smith MA, Vanness D) Soc Sci Med 2006 Sep;63(5):1158-69 173 Citations |
| 1 | Communication about symptoms in primary care: impact on patient outcomes. (Jackson JL) J Altern Complement Med 2005;11 Suppl 1:S51-6 69 Citations |
| 1 | Ten myths about decision-making capacity. (Ganzini L, Volicer L, Nelson WA, Fox E, Derse AR) J Am Med Dir Assoc 2004;5(4):263-7 86 Citations |
| 1 | Physician recommendations regarding tamoxifen and patient utilization of tamoxifen after surgery for ductal carcinoma in situ. (Yen TW, Hunt KK, Mirza NQ, Thomas ES, Singletary SE, Babiera GV, Meric-Bernstam F, Buchholz TA, Feig BW, Ross MI, Ames FC, Theriault RL, Kuerer HM) Cancer 2004 Mar 01;100(5):942-9 48 Citations |
| 1 | Quality of life and dialysis decisions in critically ill patients with acute renal failure. (Maynard SE, Whittle J, Chelluri L, Arnold R) Intensive Care Med 2003 Sep;29(9):1589-93 43 Citations |
| 1 | Relationships between self-reported asthma utilization and patient characteristics. (Tinkelman DG, McClure DL, Lehr TL, Schwartz AL) J Asthma 2002 Dec;39(8):729-36 8 Citations |
| 1 | Frequency or probability? A qualitative study of risk communication formats used in health care. (Schapira MM, Nattinger AB, McHorney CA) Med Decis Making 2001;21(6):459-67 211 Citations |
| 1 | The effect of public provision of home care on living and care arrangements: evidence from the channeling experiment. (Kemper P, Pezzin LE) Dev Health Econ Public Policy 1996;5:125-46 4 Citations |
