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Health-related quality of life in sickle cell disease. Pediatr Blood Cancer 2008 Jul;51(1):5-9 PMID: 18338399

Pubmed ID

18338399

DOI

10.1002/pbc.21557

Abstract

Advances in drug therapy, hematopoietic stem cell transplantation, and technology have improved the morbidity and survival for those with sickle cell disease. The effect of this modern therapy on the health-related quality of life (HRQL) of those with sickle cell disease is not known. HRQL provides an assessment of how an illness, its complications, and its treatment are experienced by a patient. This review will examine prior work in HRQL in sickle cell disease and the rationale for utilizing HRQL as an outcome to measure impact of treatment. In addition, issues to consider when reporting HRQL will be presented.

Author List

Panepinto JA

Author

Julie A. Panepinto MD, MSPH Professor in the Pediatrics department at Medical College of Wisconsin




Scopus

2-s2.0-44149126463   18 Citations

MESH terms used to index this publication - Major topics in bold

Anemia, Sickle Cell
Child
Humans
Models, Statistical
Quality of Life
Surveys and Questionnaires
jenkins-FCD Prod-310 bff9d975ec7f2d302586822146c2801dd4449aad