A Conceptual Framework and Key Research Questions in Educational Needs of Blood and Marrow Transplantation Patients, Caregivers, and Families. Biol Blood Marrow Transplant 2019 Jul;25(7):1416-1423
Date
02/24/2019Pubmed ID
30796997DOI
10.1016/j.bbmt.2019.02.017Scopus ID
2-s2.0-85063970442 (requires institutional sign-in at Scopus site) 11 CitationsAbstract
Patient, caregiver, and family education and support was 1 of 6 key areas of interest identified by the National Marrow Donor Program/Be The Match 2-year project to prioritize patient-centered outcomes research (PCOR) goals for the blood and marrow transplantation (BMT) community. PCOR focuses on research to help patients and their caregivers make informed decisions about health care. Therefore, each area of interest was assigned to a working group with broad representation, including patients, caregivers, and clinicians. Each working group was charged with identifying gaps in knowledge and making priority recommendations for critical research to fill those gaps. The report from this working group presents a conceptual framework to address gaps in knowledge regarding patient and caregiver education in BMT and recommendations for priority research questions on this topic.
Author List
Schoemans HM, Finn L, Foster J, Roche-Green A, Bevans M, Kullberg S, Lee E, Sargeant C, Schatz BA, Scheeler K, Shaw BE, Shereck E, Murphy EA, Burns LJ, Schmit-Pokorny KAuthor
Bronwen E. Shaw MBChB, PhD Center Director, Professor in the Medicine department at Medical College of WisconsinMESH terms used to index this publication - Major topics in bold
Bone MarrowBone Marrow Transplantation
Caregivers
Family
Female
Humans
Male
Patient Education as Topic
Patient Outcome Assessment
