Faculty Collaboration Database

Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder. J Autism Dev Disord 2019 May;49(5):1763-1777

Date

01/05/2019

Pubmed ID

30607783

DOI

10.1007/s10803-018-3851-z

Scopus ID

2-s2.0-85059694582 (requires institutional sign-in at Scopus site)   12 Citations

Abstract

Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child's cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback.

Author List

Jashar DT, Fein D, Berry LN, Burke JD, Miller LE, Barton ML, Dumont-Mathieu T

Author

Lauren E. Miller PhD Assistant Professor in the Neurology department at Medical College of Wisconsin

MESH terms used to index this publication - Major topics in bold

Attitude
Autism Spectrum Disorder
Child, Preschool
Female
Humans
Income
Male
Minority Groups
Neuropsychological Tests
Parents
Perception
Personal Satisfaction
Truth Disclosure