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Giving Voice to Parents in the Development of the Preemie Prep for Parents (P3) Mobile App. Adv Neonatal Care 2020 Feb;20(1):E9-E16

Date

10/01/2019

Pubmed ID

31567181

Pubmed Central ID

PMC6986981

DOI

10.1097/ANC.0000000000000669

Scopus ID

2-s2.0-85072760612   3 Citations

Abstract

BACKGROUND: Parents at risk for preterm birth frequently receive prematurity education when the mother is hospitalized for premature labor. Parental ability to learn and consider the information is limited because of the stress of the hospitalization. A promising approach is dissemination of information to at-risk parents before the birth hospitalization.

PURPOSE: This article describes formative research used to develop smartphone-based prematurity education app for parents at-risk for preterm birth.

METHODS: Stakeholders were parents with a prior preterm birth. Using stakeholder meeting transcripts, constant comparative analysis was used to reflect upon the parental voice.

RESULTS: The parents named the app, Preemie Prep for Parents (P3). Parent perspectives revealed desire for information in the following 5 categories. (1) Power in knowledge and control: parents want autonomy when learning information that may influence medical decision-making. (2) Content and framing of information: they desire information from a trusted resource that helps promote prenatal health and provides neonatal intensive care information. (3) Displaying content: parents want personalization, push notifications, photographs displaying fetal development, and easy-to-understand statistics. (4) Providing information without causing harm: they desire non-value-laden information, and they do not support "gamifying" the app to enhance utilization. (5) Decision making: parents want information that would benefit their decision making without assuming that parents have a certain outlook on life or particular values.

IMPLICATIONS FOR PRACTICE: These findings support the need for the P3 App to aid in decision making when parents experience preterm birth.

IMPLICATIONS FOR RESEARCH: The findings highlight the need to study the effects of smartphone-based prematurity education on medical decision-making.

Author List

Pizur-Barnekow K, Kim UO, Ahamed SI, Hasan MKK, Dreier S, Leuthner SR, Rau N, Basir MA

Authors

Kris Barnekow PhD Associate Professor in the Occupational Science and Technology department at University of Wisconsin - Milwaukee
Mir Abdul Basir MD Professor in the Pediatrics department at Medical College of Wisconsin
Steven R. Leuthner MD Professor in the Pediatrics department at Medical College of Wisconsin




MESH terms used to index this publication - Major topics in bold

Adult
Female
Humans
Infant
Infant Care
Infant, Newborn
Infant, Premature, Diseases
Intensive Care, Neonatal
Male
Mobile Applications
Parents
Pregnancy
Prenatal Care
Qualitative Research
Smartphone