Social and Psychological Factors Associated With Health Care Transition for Young Adults Living With Sickle Cell Disease. J Transcult Nurs 2021 Jan;32(1):21-29
Date
01/01/2020Pubmed ID
31889479DOI
10.1177/1043659619896837Scopus ID
2-s2.0-85077517948 (requires institutional sign-in at Scopus site) 8 CitationsAbstract
Introduction: Due to advances in disease management, mortality rates in children with sickle cell disease (SCD) have decreased. However, mortality rates for young adults (YA) increased, and understanding of social and psychological factors is critical. The aim of this study was to explore factors associated with health care transition experiences for YA with SCD. Method: This was a qualitative descriptive study. A 45-minute semistructured interview was conducted with 13 YA (M = 21.5 years, SD = 1.73). Results: Results suggest that social and psychological factors and self-management experiences influence health care transition. Eight themes emerged: "need for accessible support"; "early assistance with goal setting"; "incongruence among expectations, experiences, and preparation"; "spiritual distress"; "stigma"; "need for collaboration"; "appreciation for caring providers"; and "feeling isolated." Discussion: Consideration of cultural contexts will guide nurses in supporting health care transition. Designing culturally relevant interventions that address unique needs for YA living with SCD is warranted.
Author List
Clayton-Jones D, Matthie N, Treadwell M, Field JJ, Mager A, Sawdy R, George Dalmida S, Leonard C, Koch KL, Haglund KAuthors
Dora Clayton-Jones PhD RN CPNP-PC Assistant Professor in the College of Nursing department at Marquette UniversityJoshua J. Field MD Professor in the Medicine department at Medical College of Wisconsin
Kathryn L. Koch NP APP Hybrid in the Medicine department at Medical College of Wisconsin
MESH terms used to index this publication - Major topics in bold
Anemia, Sickle CellHumans
Patient Transfer
Qualitative Research
Social Stigma
Transition to Adult Care
Young Adult
