What do family caregivers do when managing medications for their children with medical complexity? Appl Ergon 2020 Sep;87:103108
Date
06/06/2020Pubmed ID
32501256DOI
10.1016/j.apergo.2020.103108Scopus ID
2-s2.0-85083812679 (requires institutional sign-in at Scopus site) 13 CitationsAbstract
Using a work domain analysis and complementary thematic analysis, this paper aims to describe medication management work, its constraints, and complexities from the perspectives of family caregivers of children with medical complexity-a medically fragile segment of the pediatric population often dependent on multiple and complex medication regimens for survival and optimal functioning. Analyses were informed by data generated through observations of 12 care coordination clinic visits within a pediatric complex care program, semi-structured interviews of 11 family caregivers, and reviews of program documents. Our results show that family caregivers: (1) formulate medication management goals, identify values and criteria to judge goals but these may not necessarily be acknowledged and explicitly supported by system resources and healthcare professionals (2) are engaged in a range of complex medication management tasks that are both physically and emotionally demanding without the support of well-designed tools and resources to enhance their work.
Author List
Abebe E, Scanlon MC, Lee KJ, Chui MAAuthors
K Jane Lee MD Interim Chief, Professor in the Pediatrics department at Medical College of WisconsinMatthew C. Scanlon MD Professor in the Pediatrics department at Medical College of Wisconsin
MESH terms used to index this publication - Major topics in bold
AdultCaregivers
Child
Chronic Disease
Decision Making
Ergonomics
Female
Humans
Male
Medication Therapy Management
Qualitative Research
Systems Analysis
Task Performance and Analysis
