Faculty Collaboration Database

Brief report: development of the inflammatory bowel disease family responsibility questionnaire. J Pediatr Psychol 2010 Mar;35(2):183-7

Date

07/01/2009

Pubmed ID

19564243

DOI

10.1093/jpepsy/jsp052

Scopus ID

2-s2.0-77149161071 (requires institutional sign-in at Scopus site)   18 Citations

Abstract

OBJECTIVE: To present psychometric data on youth and parent versions of the Inflammatory Bowel Disease-Family Responsibility Questionnaire (IBD-FRQ), a measure of family involvement in IBD management.

METHODS: Fifty-eight adolescents with inflammatory bowel disease (IBD), along with 55 mothers and 26 fathers completed the IBD-FRQ, a demographics questionnaire, and a measure of family involvement in decision making in non-IBD domains. Medical information was obtained via chart review.

RESULTS: Support for the internal consistency of the IBD-FRQ was obtained. Evidence of validity was documented via moderate to high intercorrelations among reporters. Youth involvement increased with youth age, while maternal and paternal involvement decreased with youth age. Across all reporters, maternal involvement was higher than paternal involvement.

CONCLUSIONS: Preliminary analyses offer support for the measure's reliability and validity. The measure shows promise as a means of assessing family involvement in IBD condition management; however, further validation studies are needed.

Author List

Greenley RN, Doughty A, Stephens M, Kugathasan S

Author

Alyssa R. Matuszak APP Inpatient 2 in the Pediatrics department at Medical College of Wisconsin

MESH terms used to index this publication - Major topics in bold

Adolescent
Age Factors
Decision Making
Family
Father-Child Relations
Female
Humans
Inflammatory Bowel Diseases
Male
Mother-Child Relations
Parents
Psychometrics
Reproducibility of Results
Surveys and Questionnaires