The National Marrow Donor Program's symposium on patient advocacy in cellular transplantation therapy: addressing barriers to hematopoietic cell transplantation. Biol Blood Marrow Transplant 2010 Feb;16(2):147-56
Date
02/10/2010Pubmed ID
20142045DOI
10.1016/j.bbmt.2009.08.004Scopus ID
2-s2.0-75149151795 (requires institutional sign-in at Scopus site) 13 CitationsAbstract
Although hematopoietic cell transplantation (HCT) is an effective treatment option for patients with life-threatening blood, immune system, or genetic disorders, many barriers besides a lack of suitably matched donors exist and can have an adverse impact on access and outcomes of HCT. In 2008, the National Marrow Donor Program, through its Office of Patient Advocacy, convened a diverse group of experts and transplantation survivors to identify persistent patient barriers throughout the transplantation process and to make recommendations for programs and initiatives to address these barriers, including new research opportunities. This group included transplantation physicians and other health care providers, relevant subject experts, and representatives from transplantation centers and patient advocacy organizations. Working groups were formed to identify patient barriers to HCT and to recommend and prioritize initiatives as they relate to the pretransplantation period, the early posttransplantation period, long-term survivorship, financial issues, and special populations. This report summarizes the symposium's deliberations and recommendations to address persistent patient barriers throughout the transplantation process.
Author List
Murphy EA, Ferguson SS, Omondi NA, Getzendaner LC, Gajewski JL, Goldstein GA, Wingard JR, Rizzo JD, Majhail NSAuthor
J. Douglas Rizzo MD, MS Director, Center Associate Director, Professor in the Medicine department at Medical College of WisconsinMESH terms used to index this publication - Major topics in bold
Bone MarrowHealth Services Accessibility
Hematopoietic Stem Cell Transplantation
Humans
Patient Advocacy
Practice Guidelines as Topic
Registries
Tissue Donors
Tissue and Organ Procurement
Treatment Outcome
United States