Palliative Care Interventions Among Adolescents and Young Adults with Serious Illness: A Scoping Review. Clin Pract Pediatr Psychol 2023 Sep;11(3):262-273
Date
09/27/2023Pubmed ID
37753528Pubmed Central ID
PMC10519447DOI
10.1037/cpp0000486Scopus ID
2-s2.0-85158886556 (requires institutional sign-in at Scopus site)Abstract
OBJECTIVE: To map the range of multidisciplinary palliative care interventions that are available to adolescents and young adults (AYAs) with serious illness.
METHODS: Scoping review methodology as outlined by Arksey and O'Malley.
RESULTS: Twenty-two articles describing nine specific AYA-focused, multidisciplinary palliative care interventions were included in this review. Interventions focused on supporting advance care planning (ACP), facilitating treatment decision making, managing pain, and promoting resilience, psychosocial well-being, and quality of life. Interventions were delivered face-to-face and via different eHealth platforms and were targeted to AYAs with cancer, HIV/AIDS, and cystic fibrosis in both inpatient and outpatient settings.
CONCLUSIONS: Few evidence-based multidisciplinary palliative care interventions have documented benefit for AYAs with serious illness. The limited work that has been done demonstrates that AYAs are open to engaging in palliative care interventions and suggests that individual members of the multidisciplinary team can implement these different interventions to support enhanced patient outcomes.
Author List
Newman AR, Kenney AE, Witkowski E, Karst J, Lerret S, Davies WH, Rothschild CBAuthors
Stacee Lerret PhD Professor Hybrid in the Pediatrics department at Medical College of WisconsinAmy R. Newman PhD, RN, CPNP-PC, CPHON Assistant Professor in the Marquette University College of Nursing department at Marquette University
Amy R. Newman NP APP Hybrid in the Pediatrics department at Medical College of Wisconsin
Charles Baron Rothschild MD Associate Professor in the Pediatrics department at Medical College of Wisconsin
