Dermatology Life Quality Index survey in patients with Down syndrome and caregivers. Pediatr Dermatol 2024;41(4):671-673
Date
03/19/2024Pubmed ID
38500261DOI
10.1111/pde.15593Scopus ID
2-s2.0-85188431911 (requires institutional sign-in at Scopus site)Abstract
Down syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.
Author List
Dykman M, Ernst M, Rakasiwi T, Buros Stein A, Satin DJ, Holland KE, Santoro SL, Rork JFAuthor
Kristen E. Holland MD Associate Professor in the Dermatology department at Medical College of WisconsinMESH terms used to index this publication - Major topics in bold
AdolescentAdult
Caregivers
Child
Child, Preschool
Down Syndrome
Female
Humans
Male
Middle Aged
Quality of Life
Skin Diseases
Surveys and Questionnaires
Young Adult