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Dermatology Life Quality Index survey in patients with Down syndrome and caregivers. Pediatr Dermatol 2024 Mar 18:e15593

Date

03/19/2024

Pubmed ID

38500261

DOI

10.1111/pde.15593

Scopus ID

2-s2.0-85188431911 (requires institutional sign-in at Scopus site)

Abstract

Down syndrome (DS) is associated with many dermatological conditions, including hidradenitis suppurativa, folliculitis, and alopecia areata. Despite the high incidence of skin conditions in this population, there are no quality of life (QoL) studies in the dermatology literature focused on patients with DS or their caregivers. The frequently used QoL assessment tool, the Dermatology Life Quality Index (DLQI), has yet to be studied in this population. This study addresses these disparities by capturing how various skin conditions affect the QoL of people with DS and their caregivers and assessing the utility of the DLQI.

Author List

Dykman M, Ernst M, Rakasiwi T, Buros Stein A, Satin DJ, Holland KE, Santoro SL, Rork JF

Author

Kristen E. Holland MD Associate Professor in the Dermatology department at Medical College of Wisconsin