Sources of Caregiving Burden in Middle-Aged and Older Latino Caregivers. J Geriatr Psychiatry Neurol 2020 Jul;33(4):185-194
Date
09/13/2019Pubmed ID
31510848DOI
10.1177/0891988719874119Scopus ID
2-s2.0-85073823117 (requires institutional sign-in at Scopus site) 15 CitationsAbstract
OBJECTIVE: We aimed to identify sources of caregiver burden in middle-aged and older Latino caregivers of people with Alzheimer disease and related dementia (ADRD).
METHODS: Participants were recruited through an agreement with the Rush Alzheimer's Disease Center Clinic Data Repository. We conducted semistructured interviews with 16 middle-aged and older Latinos who were the primary caregiver for a family member diagnosed with ADRD. The interview guide consisted of questions and probes to capture participants' perceptions of family caregiving. Direct content analysis was performed.
RESULTS: Participants were aged 50 to 75 years (n = 16) and a majority female (n = 12). The sources of burden identified were (1) caregiver responsibilities, (2) caregiving-related health decline, (3) lack of support, (4) financial status, (5) vigilance, and (6) concerns about the future.
CONCLUSIONS: The influence of gender roles seemed to play a role in caregivers' perceptions of sources of burden, especially on caregiver responsibilities and perceptions of lack of support. Latinos cultural values such as familismo and marianismo likely reinforced gender disparities in family caregiving.
Author List
Balbim GM, Magallanes M, Marques IG, Ciruelas K, Aguiñaga S, Guzman J, Marquez DXAuthor
Jacqueline Guzman Postdoctoral Fellow in the Cancer Center department at Medical College of WisconsinMESH terms used to index this publication - Major topics in bold
Adaptation, PsychologicalAged
Alzheimer Disease
Caregivers
Cost of Illness
Female
Humans
Male
Middle Aged
