Parental caregiving of children prior to hematopoietic stem cell transplant. Res Nurs Health 2012 Aug;35(4):328-39
Date
05/03/2012Pubmed ID
22549793Pubmed Central ID
PMC4160236DOI
10.1002/nur.21485Scopus ID
2-s2.0-84863841717 (requires institutional sign-in at Scopus site) 5 CitationsAbstract
Using the Caregiver Reaction Assessment (CRA), we assessed positive reactions and burdens of the caregiving experience among parental caregivers (n = 189) of children scheduled to undergo hematopoietic stem cell transplant. Although widely used in non-parental caregivers, the CRA has not been used in parents of pediatric patients. Reliability (Cronbach's alpha: .72-.81 vs. .63) and concurrent validity (correlation: .41-.61 vs. .28) were higher for negatively framed than positively framed subscales. Results indicate that the caregiving experience is complex. The parents experienced high caregiver's esteem and moderate family support, but also negative impacts on finances and schedule, and to a lesser degree, health. Compared to non-parental caregivers, parental caregivers experienced higher esteem and more impact on finances and schedule.
Author List
Rodday AM, Pedowitz EJ, Mayer DK, Ratichek SJ, Given CW, Parsons SK, HSCT-CHESS StudyAuthor
Kristin M. Bingen PhD Professor in the Pediatrics department at Medical College of WisconsinMESH terms used to index this publication - Major topics in bold
AdultCaregivers
Child
Cost of Illness
Female
Financing, Personal
Hematopoietic Stem Cell Transplantation
Humans
Male
Parent-Child Relations
Parents
Personal Satisfaction
Psychometrics
Quality of Life
Reproducibility of Results
Self Concept
Surveys and Questionnaires
