Medical College of Wisconsin
CTSICores SearchResearch InformaticsREDCap

Lack of father involvement in research on children with autism spectrum disorder: maternal parenting stress and family functioning. Issues Ment Health Nurs 2013 Apr;34(4):220-8

Date

04/10/2013

Pubmed ID

23566184

DOI

10.3109/01612840.2012.745177

Scopus ID

2-s2.0-84876053664 (requires institutional sign-in at Scopus site)   34 Citations

Abstract

Autism spectrum disorder (ASD) has an estimated prevalence of greater than 1% of people in the U.S. Caring for children with ASD is stressful and challenging for parents. The purpose of the study is to understand the ramifications of the findings of a spouse/father's lack of participation for a study focused on stress and family functioning that attempted to recruit both parents of a child with ASD. The Kruskal-Wallis test compared medians of three groups of mothers of children with ASD in order to assess differences in parenting stress and family functioning discrepancy depending on their marital status and spouse survey participation. There were differences across the groups of mothers of children with ASD for the discrepancy in expectations for help, from the participants' spouse or relatives, with family tasks, meeting the demands of other work responsibilities, child care, challenging behaviors, and school absences. Mothers of children with ASD are at risk for isolation and stress from negotiating family functions with the fathers of the children. Health care providers can assess for stress and family functioning and may anticipate different needs based on marital status and by father's involvement in decision-making.

Author List

Johnson NL, Simpson PM

Authors

Norah Johnson PhD Assistant Professor in the College ofnursing department at Marquette University
Pippa M. Simpson PhD Adjunct Professor in the Pediatrics department at Medical College of Wisconsin




MESH terms used to index this publication - Major topics in bold

Adaptation, Psychological
Adult
Child
Child Development Disorders, Pervasive
Cross-Sectional Studies
Fathers
Female
Humans
Male
Middle Aged
Mothers
Parenting
Social Support
Socioeconomic Factors
Stress, Psychological