Caregivers of persons with a brain tumor: a conceptual model. Nurs Inq 2004 Mar;11(1):43-53
Date
02/14/2004Pubmed ID
14962346DOI
10.1111/j.1440-1800.2004.00200.xScopus ID
2-s2.0-1442302416 (requires institutional sign-in at Scopus site) 80 CitationsAbstract
Researchers have documented negative physical and emotional consequences for both family caregivers of persons with cancer as well as caregivers of persons with a neurologic disorder. However, there is a unique subset of caregivers who must provide care for someone who may suffer from both a short, terminal trajectory of disease, as well as neurological and neuropsychiatric sequelae - the caregiver of a person with a primary malignant brain tumor. The purpose of this article was to describe a conceptual framework for providing care for a person with a primary malignant brain tumor. The demands of this particular care situation are described, as well as potential resources available to the caregiver to meet those demands. Finally, the stress response that results from the balance between care demands and caregiver resources is illustrated. Development of a conceptual framework for this caregiving population is the first step in assisting nurses to identify factors that place caregivers of persons with a primary malignant brain tumor at risk for negative consequences, and to design interventions to improve caregiver health.
Author List
Sherwood P, Given B, Given C, Schiffman R, Murman D, Lovely MAuthor
Rachel Schiffman BS,MS,PhD Associate Dean for Research in the College of Nursing department at University of Wisconsin - MilwaukeeMESH terms used to index this publication - Major topics in bold
Activities of Daily LivingAdaptation, Psychological
Attitude to Health
Brain Neoplasms
Caregivers
Cost of Illness
Family
Grief
Health Resources
Health Services Needs and Demand
Home Nursing
Humans
Models, Psychological
Nurse's Role
Nursing Assessment
Nursing Methodology Research
Risk Factors
Social Support
Stress, Psychological
Workload
