Discordance in HIV-positive patient and health care provider perspectives on death, dying, and end-of-life care. Am J Hosp Palliat Care 2015 Mar;32(2):161-7
Date
12/10/2013Pubmed ID
24316681Pubmed Central ID
PMC4527603DOI
10.1177/1049909113515068Scopus ID
2-s2.0-84922723718 (requires institutional sign-in at Scopus site) 10 CitationsAbstract
The purpose of this study was to investigate how HIV-positive patients and infectious disease health care providers think about death, dying, and end-of-life care (EOLC) planning. We conducted separate in-depth qualitative interviews with 47 patients and 11 providers. Interview data were transcribed and analyzed using a secondary comparative method. Patients and providers demonstrated profound differences in their perspectives on patient empowerment and attributions of control related to disease progression, imminence of death, and EOLC decision making. Notably, patients described fears related to life-extending interventions that generally went unaddressed within the clinical context. We argue for the routinization of EOLC discussions and suggest novel research approaches to improve patient empowerment and medical engagement.
Author List
Mosack KE, Wandrey RLAuthor
Katie Mosack PhD Associate Professor in the Psychology department at University of Wisconsin - MilwaukeeMESH terms used to index this publication - Major topics in bold
AdultAttitude of Health Personnel
Attitude to Death
Attitude to Health
Female
HIV Seropositivity
Humans
Interviews as Topic
Male
Middle Aged
Nurse Practitioners
Physicians
Qualitative Research
Terminal Care
Young Adult
