Transition from hospital to home following pediatric solid organ transplant: qualitative findings of parent experience. Pediatr Transplant 2014 Aug;18(5):527-37
Date
05/13/2014Pubmed ID
24814154Pubmed Central ID
PMC4107037DOI
10.1111/petr.12269Scopus ID
2-s2.0-84903988201 (requires institutional sign-in at Scopus site) 47 CitationsAbstract
Transplant providers are challenged to determine appropriate interventions for patients and families due to limited published research regarding the context of the post-discharge experience from the perspective of parents of transplanted children. The purpose of this study is to describe the parent perspective of the transition from hospital to home following their child's solid organ transplant. Within a mixed-methods design, 37 parents of pediatric heart, kidney, and liver transplant recipients from three pediatric hospitals responded to qualitative interview questions on the day of hospital discharge and three wk following hospital discharge. Insight to the discharge preparation process revealed necessary education components. Post-discharge themes were identified for coping, knowledge, and adherence. The parents' responses provide awareness as to specific stressors and concerns parents are faced with when their child is discharged from the hospital after solid organ transplant and opportunities for ways the transplant team can provide support.
Author List
Lerret SM, Weiss ME, Stendahl G, Chapman S, Neighbors K, Amsden K, Lokar J, Voit A, Menendez J, Alonso EMAuthors
Stacee Lerret PhD Professor Hybrid in the Pediatrics department at Medical College of WisconsinMarianne Weiss DNSc Associate Professor in the College of Nursing department at Marquette University
MESH terms used to index this publication - Major topics in bold
Adaptation, PsychologicalAdolescent
Adult
Child
Child, Preschool
Continuity of Patient Care
Female
Health Knowledge, Attitudes, Practice
Hospitals, Pediatric
Humans
Infant
Male
Middle Aged
Organ Transplantation
Parents
Patient Compliance
Patient Discharge
Patient Satisfaction
Pediatrics
Postoperative Period
Surveys and Questionnaires
