Pediatric solid organ transplant recipients: transition to home and chronic illness care. Pediatr Transplant 2015 Feb;19(1):118-29
Date
11/27/2014Pubmed ID
25425201Pubmed Central ID
PMC4280334DOI
10.1111/petr.12397Scopus ID
2-s2.0-84919830643 (requires institutional sign-in at Scopus site) 58 CitationsAbstract
Pediatric SOT recipients are medically fragile and present with complex care issues requiring high-level management at home. Parents of hospitalized children have reported inadequate preparation for discharge, resulting in problems transitioning from hospital to home and independently self-managing their child's complex care needs. The aim of this study was to investigate factors associated with the transition from hospital to home and chronic illness care for parents of heart, kidney, liver, lung, or multivisceral recipients. Fifty-one parents from five pediatric transplant centers completed questionnaires on the day of hospital discharge and telephone interviews at three wk, three months, and six months following discharge from the hospital. Care coordination (p = 0.02) and quality of discharge teaching (p < 0.01) was significantly associated with parent readiness for discharge. Readiness for hospital discharge was subsequently significantly associated with post-discharge coping difficulty (p = 0.02) at three wk, adherence with medication administration (p = 0.03) at three months, and post-discharge coping difficulty (p = 0.04) and family management (p = 0.02) at six months post-discharge. The results underscore the important aspect of education and care coordination in preparing patients and families to successfully self-manage after hospital discharge. Assessing parental readiness for hospital discharge is another critical component for identifying risk of difficulties in managing post-discharge care.
Author List
Lerret SM, Weiss ME, Stendahl GL, Chapman S, Menendez J, Williams L, Nadler ML, Neighbors K, Amsden K, Cao Y, Nugent M, Alonso EM, Simpson PAuthors
Stacee Lerret PhD Professor Hybrid in the Pediatrics department at Medical College of WisconsinPippa M. Simpson PhD Adjunct Professor in the Pediatrics department at Medical College of Wisconsin
Marianne Weiss DNSc Associate Professor in the College of Nursing department at Marquette University
MESH terms used to index this publication - Major topics in bold
AdolescentAdult
Child
Child, Preschool
Chronic Disease
Continuity of Patient Care
Female
Home Care Services
Humans
Infant
Male
Middle Aged
Organ Transplantation
Parents
Patient Discharge
Prospective Studies
Self Care
Young Adult
