Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease. Pediatr Cardiol 2007;28(4):255-62
Date
05/09/2007Pubmed ID
17486393DOI
10.1007/s00246-006-0013-4Scopus ID
2-s2.0-34250834457 (requires institutional sign-in at Scopus site) 112 CitationsAbstract
The purpose of the current study was to assess the psychosocial outcomes of preschool-aged survivors (ages 3-6 years) of hypoplastic left heart syndrome (HLHS; n=13) and transposition of the great arteries (TGA; n=13). Parents completed the following measures: Pediatric Quality of Life Inventory, Impact on the Family Scale, Parenting Stress Index, Parent Behavior Checklist, and Child Behavior Checklist. Quality of life scores did not differ from those of healthy controls. Parents of children with HLHS reported more negative impact of the child's illness on the family and more parenting stress than parents of children with TGA. Parents of both groups of children were more permissive in their parenting style than parents of healthy controls. Children with HLHS had higher rates of attention and externalizing behavior problems than children with TGA. The results highlight the need for practitioners working with these children and families to ask about parental stress, family functioning, and behavioral expectations for the child in the context of routine medical/cardiac follow-up.
Author List
Brosig CL, Mussatto KA, Kuhn EM, Tweddell JSAuthors
Cheryl L. Brosig Soto PhD Chief, Professor in the Pediatrics department at Medical College of WisconsinKathleen Mussatto Ph.D. Associate Professor in the School of Nursing department at Milwaukee School of Engineering
MESH terms used to index this publication - Major topics in bold
ChildChild, Preschool
Family Health
Female
Humans
Hypoplastic Left Heart Syndrome
Male
Parenting
Stress, Psychological
Transposition of Great Vessels
