Faculty Collaboration Database

External validity of the pediatric cardiac quality of life inventory. Qual Life Res 2011 Mar;20(2):205-14

Date

12/29/2010

Pubmed ID

21188538

Pubmed Central ID

PMC3418540

DOI

10.1007/s11136-010-9731-4

Scopus ID

2-s2.0-79952251265 (requires institutional sign-in at Scopus site)   30 Citations

Abstract

PURPOSE: The Pediatric Cardiac Quality of Life Inventory (PCQLI) is a disease-specific, health-related quality of life (HRQOL) measure for pediatric heart disease (HD). The purpose of this study was to demonstrate the external validity of PCQLI scores.

METHODS: The PCQLI development site (Development sample) and six geographically diverse centers in the United States (Composite sample) recruited pediatric patients with acquired or congenital HD. Item response option variability, scores [Total (TS); Disease Impact (DI) and Psychosocial Impact (PI) subscales], patterns of correlation, and internal consistency were compared between samples.

RESULTS: A total of 3,128 patients and parent participants (1,113 Development; 2,015 Composite) were analyzed. Response option variability patterns of all items in both samples were acceptable. Inter-sample score comparisons revealed no differences. Median item-total (Development, 0.57; Composite, 0.59) and item-subscale (Development, DI 0.58, PI 0.59; Composite, DI 0.58, PI 0.56) correlations were moderate. Subscale-subscale (0.79 for both samples) and subscale-total (Development, DI 0.95, PI 0.95; Composite, DI 0.95, PI 0.94) correlations and internal consistency (Development, TS 0.93, DI 0.90, PI 0.84; Composite, TS 0.93, DI 0.89, PI 0.85) were high in both samples.

CONCLUSION: PCQLI scores are externally valid across the US pediatric HD population and may be used for multi-center HRQOL studies.

Author List

Marino BS, Drotar D, Cassedy A, Davis R, Tomlinson RS, Mellion K, Mussatto K, Mahony L, Newburger JW, Tong E, Cohen MI, Helfaer MA, Kazak AE, Wray J, Wernovsky G, Shea JA, Ittenbach R

Author

Kathleen Mussatto Ph.D. Associate Professor in the School of Nursing department at Milwaukee School of Engineering

MESH terms used to index this publication - Major topics in bold

Adolescent
Adult
Child
Cross-Sectional Studies
Female
Heart Defects, Congenital
Humans
Male
Middle Aged
Parents
Prospective Studies
Quality of Life
Surveys and Questionnaires
United States