Parents' Perspectives on Shared Decision Making for Children With Solid Organ Transplants. J Pediatr Health Care 2016;30(4):374-80
Date
11/09/2015Pubmed ID
26547482DOI
10.1016/j.pedhc.2015.10.001Scopus ID
2-s2.0-84964965982 (requires institutional sign-in at Scopus site) 12 CitationsAbstract
INTRODUCTION: The Institute of Medicine prioritizes active family and clinician participation in treatment decisions, known as shared decision making (SDM). In this article we report the decision-making experiences for parents of children who had a solid organ transplant.
METHOD: We performed a prospective longitudinal mixed methods study at five major U.S. children's medical centers. Qualitative interview data were obtained at 3 weeks, 3 months, and 6 months after hospital discharge following the child's transplant.
RESULTS: Forty-eight parents participated in the study. Three themes were identified: (a) Parents expect to participate in SDM; (b) parents seek information to support their participation in SDM; and (c) attributes of providers' professional practice facilitates SDM. SDM was facilitated when providers were knowledgeable, transparent, approachable, accessible, dependable, and supportive.
CONCLUSIONS: Parents expect to participate in SDM with their transplant team. Health care providers can intentionally use the six key attributes to engage parents in SDM. The results provide a framework to consider enhancing SDM in other chronic illness populations.
Author List
Lerret SM, Haglund KA, Johnson NLAuthors
Norah Johnson PhD Assistant Professor in the College ofnursing department at Marquette UniversityStacee Lerret PhD Professor Hybrid in the Pediatrics department at Medical College of Wisconsin
MESH terms used to index this publication - Major topics in bold
AdolescentAdult
Child
Child, Preschool
Decision Making
Decision Support Techniques
Female
Humans
Infant
Infant, Newborn
Longitudinal Studies
Male
Middle Aged
Organ Transplantation
Parents
Physician-Patient Relations
Prospective Studies
Qualitative Research
United States
