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Parents' perspectives on caring for children after solid organ transplant. J Spec Pediatr Nurs 2017 Jul;22(3)



Pubmed ID




Scopus ID

2-s2.0-85017360189 (requires institutional sign-in at Scopus site)   14 Citations


PURPOSE: To explore parents' experiences of the transition from hospital to home and complex chronic illness management following their children's solid organ transplant (SOT).

DESIGN AND METHODS: Qualitative component of a larger mixed methods longitudinal study. Parents of SOT recipients were interviewed three times following hospital discharge from five major pediatric transplant hospitals in the United States.

RESULTS: Analysis of parent interviews (N = 48) resulted in three themes that characterized the phases of transition to home and complex chronic illness care. Three themes, corresponding to the three time periods of data collection, included "getting back to normal" at 3 weeks, "becoming routine" at 3 months, and "facing a future" at 6 months. Challenges families experienced over the course of their transition are also described.

PRACTICE IMPLICATIONS: The transition from hospital to home and complex chronic condition care is challenging and changes over time. Nurses are called upon to prepare parents to become knowledgeable and confident to care for the child after hospital discharge. Nurses can best support families in transition after SOT by anticipating and understanding their dynamic challenging complex care needs.

Author List

Lerret SM, Johnson NL, Haglund KA


Norah Johnson PhD Assistant Professor in the College ofnursing department at Marquette University
Stacee Lerret PhD Professor in the Pediatrics department at Medical College of Wisconsin

MESH terms used to index this publication - Major topics in bold

Adaptation, Psychological
Chronic Disease
Longitudinal Studies
Middle Aged
Organ Transplantation
United States