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[Formula: see text]Congenital heart disease: A primer for the pediatric neuropsychologist. Child Neuropsychol 2018 Oct;24(7):859-902

Date

09/07/2017

Pubmed ID

28874075

DOI

10.1080/09297049.2017.1373758

Scopus ID

2-s2.0-85029428761 (requires institutional sign-in at Scopus site)   41 Citations

Abstract

Congenital heart disease (CHD) affects millions of people worldwide, including over one million children in the United States. Approximately 25% of children born with CHD require intensive surgical intervention within the first year of life. Despite improved rates of survival into adulthood - rates that exceed 90% in the modern era - children and adolescents with CHD remain at risk for neurological injury and a range of neurobehavioral and psychosocial challenges that pose a threat to quality of life across the lifespan. Consequently, as experts in both clinical psychology and brain development, neuropsychologists are becoming increasingly involved in cardiac follow-up and monitoring to promote optimal developmental outcomes. The primary objective of this paper is to provide an evidence-based, clinically-oriented primer on CHD for pediatric neuropsychologists working with this growing population of survivors. Following an introduction to current standard-of-care guidelines for managing children and adolescents with CHD, we present an overview of brain development within the context of CHD, review neuropsychological outcomes, examine factors influencing variability in outcomes, and discuss implications and strategies for clinical assessment.

Author List

Cassidy AR, Ilardi D, Bowen SR, Hampton LE, Heinrich KP, Loman MM, Sanz JH, Wolfe KR

Author

Michelle Loman Moudry PhD Assistant Professor in the Neurology department at Medical College of Wisconsin




MESH terms used to index this publication - Major topics in bold

Adolescent
Child
Heart Defects, Congenital
Humans
Neuropsychology
Pediatricians
Practice Guidelines as Topic
Quality of Life
Survivors