Moving On: Transition Readiness in Adolescents and Young Adults With IBD. Inflamm Bowel Dis 2018 Feb 15;24(3):482-489
Date
02/21/2018Pubmed ID
29462383DOI
10.1093/ibd/izx051Scopus ID
2-s2.0-85050809620 (requires institutional sign-in at Scopus site) 36 CitationsAbstract
BACKGROUND: Inflammatory bowel diseases (IBD) often begins early in life. Adolescents and young adults (AYA) with IBD have to acquire behaviors that support self-care, effective healthcare decision-making, and self-advocacy to successfully transition from pediatric to adult health care. Despite the importance of this critical time period, limited empirical study of factors associated with transition readiness in AYA exists. This study aimed to describe transition readiness in a sample of AYA with IBD and identify associated modifiable and nonmodifiable factors.
METHODS: Seventy-five AYA (ages 16-20) and their parents participated. AYA and parents reported on demographics, patient-provider transition-related communication, and transition readiness. AYA self-reported on disease self-efficacy. Disease information was abstracted from the medical record.
RESULTS: Deficits in AYA responsibility were found in knowledge of insurance coverage, scheduling appointments, and ordering medication refills. Older AYA age, higher AYA disease-management self-efficacy, and increased patient-provider transition communication were each associated with higher overall transition readiness and AYA responsibility scores. Regression analyses revealed that older AYA age and increased patient-provider transition-related communication were the most salient predictors of AYA responsibility for disease management and overall transition readiness across parent and AYA reports.
CONCLUSIONS: AYA with IBD show deficits in responsibility for their disease management that have the potential to affect their self-management skills. Findings suggest provider communication is particularly important in promoting transition readiness. Additionally, it may be beneficial to wait to transition patients until they are older to allow them more time to master skills necessary to responsibly manage their own healthcare.
Author List
Gumidyala AP, Greenley RN, Plevinsky JM, Poulopoulos N, Cabrera J, Lerner D, Noe JD, Walkiewicz D, Werlin S, Kahn SAAuthors
Diana Lerner MD Associate Professor in the Pediatrics department at Medical College of WisconsinJoshua D. Noe MD Associate Dean, Professor in the Pediatrics department at Medical College of Wisconsin
MESH terms used to index this publication - Major topics in bold
AdolescentCross-Sectional Studies
Disease Management
Female
Health Knowledge, Attitudes, Practice
Humans
Inflammatory Bowel Diseases
Male
Needs Assessment
Patient Education as Topic
Prognosis
Regression Analysis
Self Care
Self Efficacy
Severity of Illness Index
Transition to Adult Care
Young Adult
