Faculty Collaboration Database

Administrative health databases for addressing emerging issues in adults with CHD: a systematic review. Cardiol Young 2018 Jun;28(6):844-853

Date

05/01/2018

Pubmed ID

29704902

DOI

10.1017/S1047951118000446

Scopus ID

2-s2.0-85046101472 (requires institutional sign-in at Scopus site)   9 Citations

Abstract

The need for population-based studies of adults with CHD has motivated the growing use of secondary analyses of administrative health data in a variety of jurisdictions worldwide. We aimed at systematically reviewing all studies using administrative health data sources for adult CHD research from 2006 to 2016. Using PubMed and Embase (1 January, 2006 to 1 January, 2016), we identified 2217 abstracts, from which 59 studies were included in this review. These comprised 12 different data sources from six countries. Of these, 55% originated in the United States of America, 28% in Canada, and 17% in Europe and Asia. No study was published before 2007, after which the number of publications grew exponentially. In all, 41% of the studies were cross-sectional and 25% were retrospective cohort studies with a wide variation in the availability of patient-level compared with hospitalisation-level episodes of care; 58% of studies from eight different data sources linked administrative data at a patient level; and 37% of studies reported validation procedures. Assessing resource utilisation and temporal trends of relevant epidemiological and outcome end points were the most reported objectives. The median impact factor of publication journals was 4.04, with an interquartile range of 3.15, 7.44. Although not designed for research purposes, administrative health databases have become powerful data sources for studying adult CHD populations because of their large sample sizes, comprehensive records, and long observation periods, providing a useful tool to further develop quality of care improvement programmes. Data linkage with electronic records will become important in obtaining more granular life-long adult CHD data. The health services nature of the data optimises the impact on policy and public health.

Author List

Cohen S, Gilutz H, Marelli AJ, Iserin L, Benis A, Bonnet D, Burgun A

Author

Scott B. Cohen MD Associate Professor in the Medicine department at Medical College of Wisconsin

MESH terms used to index this publication - Major topics in bold

Adult
Databases, Factual
Epidemiologic Studies
Heart Defects, Congenital
Humans
Journal Impact Factor