Navigating the perils and pitfalls throughout the consent process in hematopoietic cell transplantation. Blood Rev 2023 May;59:101037
Date
12/29/2022Pubmed ID
36577602Pubmed Central ID
PMC10548336DOI
10.1016/j.blre.2022.101037Scopus ID
2-s2.0-85149820952 (requires institutional sign-in at Scopus site) 2 CitationsAbstract
Hematopoietic cell transplantation (HCT) is a complex treatment used in malignancies and some non-malignant diseases. The informed consent process for HCT can also be complex due to patient- and process-related barriers. The informed consent process needs to be a dynamic and ongoing process, not simply a checklist. As a result of the realities of HCT, we highlight some potential pitfalls to the informed consent process including uncertainty, sociocultural and communication barriers, and decisional regret. The purpose of this comprehensive review is to highlight unique situations which can result in failure of the informed consent process. We also offer potential solutions to these pitfalls, primarily making the informed consent more patient focused through dynamic and continuous processes to mitigate decisional regret.
Author List
Cusatis R, Litovich C, Spellecy R, Liang A, D'Souza AAuthors
Rachel N. Cusatis PhD Assistant Professor in the Medicine department at Medical College of WisconsinAnita D'Souza MD Associate Professor in the Medicine department at Medical College of Wisconsin
Ryan Spellecy PhD Assistant Provost, Director, Professor in the Institute for Health and Equity department at Medical College of Wisconsin
MESH terms used to index this publication - Major topics in bold
Decision MakingHematopoietic Stem Cell Transplantation
Humans
Informed Consent
Neoplasms
