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Parental perception of quality of hospital care for children with sickle cell disease. WMJ 2008 May;107(3):131-5

Date

06/26/2008

Pubmed ID

18575097

Scopus ID

2-s2.0-44849108027   4 Citations

Abstract

PROBLEM CONSIDERED: Children with sickle cell disease account for 75,000 hospital days annually in the United States, yet little is known about how parents perceive the quality of hospital care these children receive.

METHODS: Parents of hospitalized children that had sickle cell disease, cancer, or were admitted to the general pediatric service completed a validated survey assessing the parent-perceived quality of hospital care their children received. The primary outcome was parent-reported quality of care. A chi-square analysis was used to compare the percent of children with low quality care who had sickle cell disease with each control group.

RESULTS: Parents of 112 children completed the survey; 17 children had sickle cell disease, 36 had cancer, and 59 were admitted to the general pediatric service. Parents of children with sickle cell disease were more likely to report low quality care compared to parents of children with cancer (29.4% versus 5.6%, P=0.017) and parents of general pediatric patients (29.4% versus 6.8%, P=0.011).

CONCLUSION: Parents of hospitalized children with sickle cell disease perceive their children's care as being of lower quality than parents of children with cancer or children admitted to the general pediatric service.

Author List

Kam J, Panepinto JA, Brandow AM, Brousseau DC

Authors

Amanda Brandow DO Professor in the Pediatrics department at Medical College of Wisconsin
David Brousseau MD Chief, Professor in the Pediatrics department at Medical College of Wisconsin




MESH terms used to index this publication - Major topics in bold

Adolescent
Anemia, Sickle Cell
Chi-Square Distribution
Child
Child, Hospitalized
Child, Preschool
Female
Hospitals, Pediatric
Humans
Infant
Male
Parents
Quality of Health Care
Surveys and Questionnaires