| 1 | The effectiveness of ambulatory continuous popliteal sciatic nerve blockade on patient-reported overall benefit of analgesia in patients undergoing foot or ankle surgery (CAREFREE trial); a randomized, open label, non-inferiority trial. (Admiraal M, Smulders PSH, Rutten MVH, de Groot EK, Heine Y, Baumann HM, van der Vegt VHC, Halm JA, Hermanns H, Schepers T, Hollmann MW, Hermanides J, Ten Hoope W) J Clin Anesth 2024 Aug;95:111451 |
| 1 | Development and initial validation of the AL-PROfile patient-reported outcome measure in light chain (AL) amyloidosis. (D'Souza A, Szabo A, Akinola I, Finkel M, Flynn KE) Eur J Haematol 2024 Jun;112(6):900-909 |
| 1 | Incorporating patient-reported outcome data into a predictive calculator for allogeneic hematopoietic cell transplantation recipients. (Shaw BE, Flynn KE, He N, Cusatis R, D'Souza A, Hamilton BK, Horowitz MM, Mattila D, Phelan R, Lee SJ, Brazauskas R) Cancer 2024 May 15;130(10):1826-1835 |
| 1 | Signficant Femoral Version Abnormalities and Patient-Reported Quality of Life. (Greenstein MD, Ellsworth BK, Sheridan GA, Fragomen AT, Rozbruch SR) J Am Acad Orthop Surg Glob Res Rev 2023 Nov 01;7(11) |
| 1 | Lisocabtagene maraleucel for second-line relapsed or refractory large B-cell lymphoma: patient-reported outcomes from the PILOT study. (Gordon LI, Liu FF, Braverman J, Hoda D, Ghosh N, Hamadani M, Hildebrandt GC, Peng L, Guo S, Shi L, Sehgal A) Haematologica 2024 Mar 01;109(3):857-866 |
| 3 | Differences in patient-reported outcomes (PROs) by disease severity in light chain (AL) amyloidosis. (D'Souza A, Szabo A, Akinola I, Finkel M, Flynn KE) Eur J Haematol 2023 Oct;111(4):536-543 1 Citation |
| 1 | Dose-Escalated Radiation Alone or in Combination With Short-Term Total Androgen Suppression for Intermediate-Risk Prostate Cancer: Patient-Reported Outcomes From NRG/Radiation Therapy Oncology Group 0815 Randomized Trial. (Movsas B, Rodgers JP, Elshaikh MA, Martinez AA, Morton GC, Krauss DJ, Yan D, Citrin DE, Hershatter BW, Michalski JM, Ellis RJ, Kavadi VS, Gore EM, Gustafson GS, Schulz CA, Velker VM, Olson AC, Cury FL, Papagikos MA, Karrison TG, Sandler HM, Bruner DW) J Clin Oncol 2023 Jun 10;41(17):3217-3224 3 Citations |
| 3 | Preliminary construct validity of patient-reported outcomes to assess chronic pain in adults with sickle cell disease. (Mucalo L, Field JJ, Highland J, Khan H, Hankins JS, Singh A, Brandow AM) Blood Adv 2023 Jul 25;7(14):3658-3665 |
| 1 | Which Clinical Measurement Tools for Atopic Dermatitis Severity Make the Most Sense in Clinical Practice? (Narla S, Silverberg JI) Dermatitis 2024;35(S1):S13-S23 1 Citation |
| 1 | Breast sensorisexual function: a novel patient-reported outcome measure of sexual sensory functions of the breast. (Abramsohn EM, Pinkerton EA, Wroblewski K, Anitescu M, Flynn KE, Hazen A, Schumm P, Lindau ST) J Sex Med 2023 Apr 27;20(5):671-683 1 Citation |
| 2 | Patient-Reported Outcomes in Long-Term Survivors of Autologous Hematopoietic Cell Transplantation in Multiple Myeloma. (Chakraborty R, Yi J, Rybicki L, Preussler J, Deol A, Loren A, Savani B, Jim HSL, Cerny J, Reynolds J, Whitten J, Wingard JR, McGuirk JP, Uberti J, Khera N, Stiff P, Jaglowski SM, Hashmi S, Holtan SG, Devine S, Hahn T, Whalen VL, Saber W, Wood W, Baker KS, Syrjala K, Majhail NS) Transplant Cell Ther 2023 Jun;29(6):388.e1-388.e6 1 Citation |
| 1 | A cross-sectional study of patient-reported outcomes and symptom burden using PROMIS and PRO-CTCAE measures in light chain amyloidosis. (D'Souza A, Szabo A, Akinola I, Finkel M, Flynn KE) Qual Life Res 2023 Jun;32(6):1807-1817 3 Citations |
| 1 | Neighborhood Deprivation and Rurality Associated With Patient-Reported Outcomes and Survival in Men With Prostate Cancer in NRG Oncology RTOG 0415. (Bai J, Pugh SL, Eldridge R, Yeager KA, Zhang Q, Lee WR, Shah AB, Dayes IS, D'Souza DP, Michalski JM, Efstathiou JA, Longo JM, Pisansky TM, Maier JM, Faria SL, Desai AB, Seaward SA, Sandler HM, Cooley ME, Bruner DW) Int J Radiat Oncol Biol Phys 2023 May 01;116(1):39-49 1 Citation |
| 3 | Multi-Stakeholder Qualitative Interviews to Inform Measurement of Patient Reported Outcomes After CAR-T. (Akinola IM, Cusatis R, Pasquini MC, Shaw BE, Bollu V, Dalal A, Tesfaye M, Flynn KE) Transplant Cell Ther 2023 Apr;29(4):254.e1-254.e9 4 Citations |
| 2 | Relating American Football Age of First Exposure to Patient-Reported Outcomes and Medical Diagnoses Among Former National Football League Players: An NFL-LONG study. (Lempke LB, Walton SR, Brett BL, Chandran A, DeFreese JD, Mannix R, Echemendia RJ, McCrea MA, Guskiewicz KM, Meehan WP 3rd, Kerr ZY) Sports Med 2023 May;53(5):1073-1084 1 Citation |
| 1 | Inclusion of a core patient-reported outcomes battery in adolescent and young adult cancer clinical trials. (Roth ME, Parsons SK, Ganz PA, Wagner LI, Hinds PS, Alexander S, Bingen K, Bober SL, Brackett J, Cella D, Henry NL, Indelicato DJ, Johnson RH, Miller TP, Rosenberg SM, Schmitz KH, Thanarajasingam G, Reeve BB, Salsman JM) J Natl Cancer Inst 2023 Jan 10;115(1):21-28 13 Citations |
| 1 | Importance of Patient-Reported Outcomes in Endocrinology. (Ioachimescu AG) Endocrinol Metab Clin North Am 2022 Dec;51(4):xi-xiii |
| 2 | Patient-reported barriers and facilitators for intermittent pneumatic compression device use on the antepartum unit. (Reinhard M, Flynn KE, Palatnik A) J Matern Fetal Neonatal Med 2022 Dec;35(26):10388-10394 1 Citation |
| 1 | The correlation between pre-treatment symptoms, acute and late toxicity and patient-reported health-related quality of life in non-small cell lung cancer patients: Results of the REQUITE study. (van der Weijst L, Azria D, Berkovic P, Boisselier P, Briers E, Bultijnck R, Chang-Claude J, Choudhury A, Defraene G, Demontois S, Elliott RM, Ennis D, Faivre-Finn C, Franceschini M, Giandini T, Giraldo A, Gutiérrez-Enríquez S, Herskind C, Higginson DS, Kerns SL, Johnson K, Lambrecht M, Lang P, Ramos M, Rancati T, Rimner A, Rosenstein BS, De Ruysscher D, Salem A, Sangalli C, Seibold P, Sosa Fajardo P, Sperk E, Stobart H, Summersgill H, Surmont V, Symonds P, Taboada-Valladares B, Talbot CJ, Vega A, Veldeman L, Veldwijk MR, Ward T, Webb A, West CML, Lievens Y, REQUITE consortium) Radiother Oncol 2022 Nov;176:127-137 4 Citations |
| 1 | Impact of Panniculectomy and/or Abdominoplasty on Quality of Life: A Retrospective Cohort Analysis of Patient-Reported Outcomes. (Rios-Diaz AJ, Morris MP, Elfanagely O, Cunning JR, Davis H, Shakir S, Broach RB, Fischer JP) Plast Reconstr Surg 2022 Oct 01;150(4):767e-775e 4 Citations |
| 1 | Impact of hiatal hernia repair technique on patient-reported gastroesophageal reflux symptoms following laparoscopic sleeve gastrectomy. (Ehlers AP, Bonham AJ, Ghaferi AA, Finks JF, Carlin AM, Varban OA) Surg Endosc 2022 Sep;36(9):6815-6821 2 Citations |
| 1 | Patient-reported outcomes in ZUMA-7, a phase 3 study of axicabtagene ciloleucel in second-line large B-cell lymphoma. (Elsawy M, Chavez JC, Avivi I, Larouche JF, Wannesson L, Cwynarski K, Osman K, Davison K, Rudzki JD, Dahiya S, Dorritie K, Jaglowski S, Radford J, Morschhauser F, Cunningham D, Martin Garcia-Sancho A, Tzachanis D, Ulrickson ML, Karmali R, Kekre N, Thieblemont C, Enblad G, Dreger P, Malladi R, Joshi N, Wang WJ, Solem CT, Snider JT, Cheng P, To C, Kersten MJ) Blood 2022 Nov 24;140(21):2248-2260 20 Citations |
| 1 | Multicenter Development and Validation of the Vocal Cord Paralysis Experience (CoPE), a Patient-Reported Outcome Measure for Unilateral Vocal Fold Paralysis-Specific Disability. (Fernandes-Taylor S, Damico-Smith C, Arroyo N, Wichmann M, Zhao J, Feurer ID, Francis DO, CoPE Collaborative) JAMA Otolaryngol Head Neck Surg 2022 Aug 01;148(8):756-763 2 Citations |
| 2 | The Impact of Pre-Apheresis Health Related Quality of Life on Peripheral Blood Progenitor Cell Yield and Donor's Health and Outcome: Secondary Analysis of Patient-Reported Outcome Data from the RDSafe and BMT CTN 0201 Clinical Trials. (Farhadfar N, Ahn KW, Bo-Subait S, Logan B, Stefanski HE, Hsu JW, Panch S, Confer D, Liu H, Badawy SM, Beitinjaneh A, Diaz MA, Hildebrandt GC, Kelkar AH, Lazarus HM, Murthy HS, Preussler JM, Schears RM, Sharma A, van der Poel M, Bruce JG, Pulsipher MA, Shaw BE, Wingard JR, Switzer GE) Transplant Cell Ther 2022 Sep;28(9):603.e1-603.e7 5 Citations |
| 1 | Outcomes of the first global multidisciplinary consensus meeting including persons living with obesity to standardize patient-reported outcome measurement in obesity treatment research. (de Vries CEE, Terwee CB, Al Nawas M, van Wagensveld BA, Janssen IMC, Liem RSL, Nienhuijs SW, Cohen RV, van Rossum EFC, Brown WA, Ghaferi AA, Ottosson J, Coulman KD, Petry TBZ, Sogg S, West-Smith L, Halford JCG, Salas XR, Dixon JB, Al-Sabah S, Lee WJ, Andersen JR, Flint SW, Hoogbergen MM, Backman B, Govers E, Isack N, Clay C, Birney S, Gunn M, Masterson P, Roberts A, Nesbitt J, Meloni R, le Brocq S, de Blaeij S, Kraaijveld C, van der Steen F, Visser B, Hamers P, Monpellier VM) Obes Rev 2022 Aug;23(8):e13452 11 Citations |
| 4 | Predicting outcomes after traumatic brain injury: A novel hospital prediction model for a patient reported outcome. (Morris RS, Figueroa JF, Pokrzywa CJ, Barber JK, Temkin NR, Bergner C, Karam BS, Murphy P, Nelson LD, Laud P, Cooper Z, de Moya M, Trevino C, Tignanelli CJ, deRoon-Cassini TA) Am J Surg 2022 Oct;224(4):1150-1155 1 Citation |
| 1 | Rating Spine Surgeons: Physician Review Websites Versus a Patient-reported Outcomes-derived Ranking. (Wanner JP, Pennings JS, Nian H, Sivaganesan A, Gupta R, Asher AL, Bydon M, Abtahi A, Zuckerman SL, Devin C, Archer KR, Stephens BF 2nd) Clin Spine Surg 2022 Oct 01;35(8):E643-E648 1 Citation |
| 1 | Self-Reported Health Outcomes of Children and Youth with 10 Chronic Diseases. (Forrest CB, Schuchard J, Bruno C, Amaral S, Cox ED, Flynn KE, Hinds PS, Huang IC, Kappelman MD, Krishnan JA, Kumar RB, Lai JS, Paller AS, Phipatanakul W, Schanberg LE, Sumino K, Weitzman ER, Reeve BB) J Pediatr 2022 Jul;246:207-212.e1 12 Citations |
| 3 | Adding Centralized Electronic Patient-Reported Outcome Data Collection to an Established International Clinical Outcomes Registry. (Cusatis R, Flynn KE, Vasu S, Pidala J, Muffly L, Uberti J, Tamari R, Mattila D, Mussetter A, Bruzauskas R, Chen M, Leckrone E, Myers J, Mau LW, Rizzo JD, Saber W, Horowitz M, Lee SJ, Burns LJ, Shaw B) Transplant Cell Ther 2022 Feb;28(2):112.e1-112.e9 4 Citations |
| 1 | Use of Patient-Reported Outcomes Measurement Information System Pediatric Measures as Clinical Trial Endpoints: Experience from a Multicenter Pragmatic Trial in Children with Crohn's Disease. (Miller TL, Schuchard J, Carle AC, Forrest CB, Kappelman MD, COMBINE Study Group) J Pediatr 2022 Mar;242:86-92.e3 7 Citations |
| 1 | PROM Proposal: Analyzing Proxy Reports of Patient-Reported Outcome Measures. (Flynn KE) Circ Cardiovasc Qual Outcomes 2021 Nov;14(11):e008529 2 Citations |
| 1 | Health-Related Quality of Life of Patients with Chronic Myeloid Leukemia as Measured by Patient-Reported Outcomes: Current State and Future Directions. (Schoenbeck KL, Flynn KE) Curr Hematol Malig Rep 2021 Dec;16(6):491-499 12 Citations |
| 1 | Patient-reported outcome changes at the end of life in recurrent platinum-resistant ovarian cancer: An NRG oncology/GOG study. (Wenzel L, Huang HQ, Cella D, McKinney CO, Zevon MA, LaChance JA, Walker JL, Salani R, Modesitt SC, Morris RT, Bradley WH, Boente MP, von Gruenigen VE) Gynecol Oncol 2021 Nov;163(2):392-397 |
| 1 | Effect of Hernia Mesh Weights on Postoperative Patient-Related and Clinical Outcomes After Open Ventral Hernia Repair: A Randomized Clinical Trial. (Krpata DM, Petro CC, Prabhu AS, Tastaldi L, Zolin S, Fafaj A, Rosenblatt S, Poulose BK, Pierce RA, Warren JA, Carbonell AM, Goldblatt MI, Stewart TG, Olson MA, Rosen MJ) JAMA Surg 2021 Dec 01;156(12):1085-1092 27 Citations |
| 3 | Patient-Reported Functional Outcomes in Patients With Chronic Myeloid Leukemia After Stopping Tyrosine Kinase Inhibitors. (Schoenbeck KL, Atallah E, Lin L, Weinfurt KP, Cortes J, Deininger MWN, Kota V, Larson RA, Mauro MJ, Oehler VG, Pinilla-Ibarz J, Radich JP, Schiffer CA, Shah NP, Silver RT, Thompson JE, Flynn KE) J Natl Cancer Inst 2022 Jan 11;114(1):160-164 10 Citations |
| 1 | Correspondence Between Clinician Ratings of Vulvovaginal Health and Patient-Reported Sexual Function After Cancer. (Flynn KE, Lin L, Carter J, Baser RE, Goldfarb S, Saban S, Weinfurt KP) J Sex Med 2021 Oct;18(10):1768-1774 3 Citations |
| 3 | Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis Correlate With Pain and Stress Using PROMIS Measures. (Fair DC, Nocton JJ, Panepinto JA, Yan K, Zhang J, Rodriguez M, Olson J) J Rheumatol 2022 Jan;49(1):74-80 13 Citations |
| 2 | Development of a conceptual model of patient-reported outcomes in light chain amyloidosis: a qualitative study. (D'Souza A, Myers J, Cusatis R, Dispenzieri A, Finkel M, Panepinto J, Flynn KE) Qual Life Res 2022 Apr;31(4):1083-1092 6 Citations |
| 1 | Patient-reported Comorbidity Assessment After Bariatric Surgery: A Potential Tool to Improve Longitudinal Follow-up. (Chao GF, Bonham AJ, Ross R, Stricklen A, Ghaferi AA) Ann Surg 2022 Dec 01;276(6):e792-e797 6 Citations |
| 1 | The Evolving Management of Peritoneal Surface Malignancies. (Stewart JH 4th, Blazer DG 3rd, Calderon MJG, Carter TM, Eckhoff A, Al Efishat MA, Fernando DG, Foster JM, Hayes-Jordan A, Johnston FM, Lautz TB, Levine EA, Maduekwe UN, Mangieri CW, Moaven O, Mogal H, Shen P, Votanopoulos KI) Curr Probl Surg 2021 Apr;58(4):100860 2 Citations |
| 1 | Effect of Ventral vs Dorsal Spinal Surgery on Patient-Reported Physical Functioning in Patients With Cervical Spondylotic Myelopathy: A Randomized Clinical Trial. (Ghogawala Z, Terrin N, Dunbar MR, Breeze JL, Freund KM, Kanter AS, Mummaneni PV, Bisson EF, Barker FG 2nd, Schwartz JS, Harrop JS, Magge SN, Heary RF, Fehlings MG, Albert TJ, Arnold PM, Riew KD, Steinmetz MP, Wang MC, Whitmore RG, Heller JG, Benzel EC) JAMA 2021 Mar 09;325(10):942-951 85 Citations |
| 1 | Pain Interference and Decreased Physical Function After Emergency General Surgery: Measuring Patient-Reported Outcomes. (Hatchimonji JS, Bader AL, Ma LW, Chreiman K, Byrne JP, Reilly PM, Braslow BM, Seamon MJ, Holena DN) World J Surg 2021 Jun;45(6):1725-1733 3 Citations |
| 2 | Changes in patient-reported outcomes in light chain amyloidosis in the first year after diagnosis and relationship to NT-proBNP change. (D'Souza A, Brazauskas R, Dispenzieri A, Panepinto J, Flynn KE) Blood Cancer J 2021 Feb 01;11(2):29 7 Citations |
| 1 | Development and validation of a patient-reported scale for tolerability of endoscopic procedures using conscious sedation. (Forbes N, Chau M, Koury HF, Lethebe BC, Smith ZL, Wani S, Keswani RN, Elmunzer BJ, Anderson JT, Heitman SJ, Hilsden RJ) Gastrointest Endosc 2021 Jul;94(1):103-110.e2 15 Citations |
| 1 | Beyond morbidity and mortality: The practicality of measuring patient-reported outcomes in trauma. (Hatchimonji JS, Kaufman EJ, Chreiman K, Stoecker JB, Reilly PM, Smith BP, Holena DN, Seamon MJ) Injury 2021 Feb;52(2):127-133 3 Citations |
| 1 | Evaluation of Patient Reported Gastroesophageal Reflux Severity at Baseline and at 1-year After Bariatric Surgery. (Ehlers AP, Thumma JR, Finks JF, Carlin AM, Ghaferi AA, Varban OA) Ann Surg 2022 Jun 01;275(6):1143-1148 8 Citations |
| 3 | Aromatase Inhibitor Symptom Management Practices: A Retrospective Study. (Ernst A, Flynn KE, Weil EM, Crotty BH, Kamaraju S, Fergestrom N, Neuner J) Clin Breast Cancer 2021 Feb;21(1):e38-e47 3 Citations |
| 1 | Effect of Risankizumab on Patient-Reported Outcomes in Moderate to Severe Psoriasis: The UltIMMa-1 and UltIMMa-2 Randomized Clinical Trials. (Augustin M, Lambert J, Zema C, Thompson EHZ, Yang M, Wu EQ, Garcia-Horton V, Geng Z, Valdes JM, Joshi A, Gordon KB) JAMA Dermatol 2020 Dec 01;156(12):1344-1353 28 Citations |
| 3 | Neuropathic pain is associated with poor health-related quality of life in adolescents with sickle cell disease: A preliminary report. (Román ME, Highland J, Retherford D, Pan AY, Panepinto JA, Brandow AM) Pediatr Blood Cancer 2020 Dec;67(12):e28698 9 Citations |
| 2 | Measurement properties of Patient Reported Outcomes Measurement Information System domains for children with type 1 diabetes. (Singh A, Dasgupta M, Retherford D, Fiallo-Scharer R, Simpson PM, Panepinto JA) Pediatr Diabetes 2021 Mar;22(2):335-344 3 Citations |
| 1 | Maintenance of Response Through up to 4 Years of Continuous Guselkumab Treatment of Psoriasis in the VOYAGE 2 Phase 3 Study. (Reich K, Armstrong AW, Foley P, Song M, Miller M, Shen YK, You Y, Han C, Gordon KB) Am J Clin Dermatol 2020 Dec;21(6):881-890 25 Citations |
| 1 | Assessment of pediatric asthma exacerbation with the use of new PROMIS measures. (Nelson A, Ashima, Singh, Dasgupta M, Simpson PM, Chiu A, Brousseau DC, Panepinto JA) J Asthma 2021 Oct;58(10):1298-1306 1 Citation |
| 1 | Patient-reported long-term quality of life after tisagenlecleucel in relapsed/refractory diffuse large B-cell lymphoma. (Maziarz RT, Waller EK, Jaeger U, Fleury I, McGuirk J, Holte H, Jaglowski S, Schuster SJ, Bishop MR, Westin JR, Mielke S, Teshima T, Bachanova V, Foley SR, Borchmann P, Salles GA, Zhang J, Tiwari R, Pacaud LB, Ma Q, Tam CS) Blood Adv 2020 Feb 25;4(4):629-637 50 Citations |
| 1 | The use of PROMIS patient-reported outcomes (PROs) to inform light chain (AL) amyloid disease severity at diagnosis. (D'Souza A, Magnus BE, Myers J, Dispenzieri A, Flynn KE) Amyloid 2020 Jun;27(2):111-118 9 Citations |
| 1 | Characterization of Patients with Psoriasis in Challenging-to-Treat Body Areas in the Corrona Psoriasis Registry. (Callis Duffin K, Mason MA, Gordon K, Harrison RW, Crabtree MM, Guana A, Germino R, Lebwohl M) Dermatology 2021;237(1):46-55 20 Citations |
| 1 | Assessing Patient-Reported Outcomes: A Negotiated Process. (Weinfurt KP, Flynn KE) J Clin Oncol 2020 Feb 20;38(6):652-653 2 Citations |
| 1 | End points for sickle cell disease clinical trials: patient-reported outcomes, pain, and the brain. (Farrell AT, Panepinto J, Carroll CP, Darbari DS, Desai AA, King AA, Adams RJ, Barber TD, Brandow AM, DeBaun MR, Donahue MJ, Gupta K, Hankins JS, Kameka M, Kirkham FJ, Luksenburg H, Miller S, Oneal PA, Rees DC, Setse R, Sheehan VA, Strouse J, Stucky CL, Werner EM, Wood JC, Zempsky WT) Blood Adv 2019 Dec 10;3(23):3982-4001 46 Citations |
| 1 | Maintenance of clinical response and consistent safety profile with up to 3 years of continuous treatment with guselkumab: Results from the VOYAGE 1 and VOYAGE 2 trials. (Reich K, Griffiths CEM, Gordon KB, Papp KA, Song M, Randazzo B, Li S, Shen YK, Han C, Kimball AB, Armstrong AW, Foley P, Blauvelt A) J Am Acad Dermatol 2020 Apr;82(4):936-945 69 Citations |
| 1 | Pediatric Outcomes Data Collection Instrument is a Useful Patient-Reported Outcome Measure for Physical Function in Children with Osteogenesis Imperfecta. (Murali CN, Cuthbertson D, Slater B, Nguyen D, Turner A, Harris G, Sutton VR, Lee B, Members of the BBD Consortium, Nagamani SCS) Genet Med 2020 Mar;22(3):581-589 15 Citations |
| 1 | Patient Reported Outcomes Have Arrived: A Practical Overview for Clinicians in Using Patient Reported Outcomes in Oncology. (Warsame R, D'Souza A) Mayo Clin Proc 2019 Nov;94(11):2291-2301 53 Citations |
| 1 | Reliability and validity of PROMIS® pediatric family relationships short form in children 8-17 years of age with chronic disease. (Cox ED, Connolly JR, Palta M, Rajamanickam VP, Flynn KE) Qual Life Res 2020 Jan;29(1):191-199 18 Citations |
| 1 | Clinical meaning of PROMIS pain domains for children with sickle cell disease. (Singh A, Panepinto JA) Blood Adv 2019 Aug 13;3(15):2244-2249 12 Citations |
| 3 | Baseline patient-reported outcomes in light-chain amyloidosis patients enrolled on an interventional clinical trial. (D'Souza A, Hari P, Pasquini M, Jacobsen K, Flynn KE) Amyloid 2019;26(sup1):87-88 2 Citations |
| 2 | Importance of Assessing Patient-Reported Outcomes With Salvage Autologous Transplantation in Relapsed Multiple Myeloma. (Shaw BE, D'Souza A, Lee SJ) J Clin Oncol 2019 Jul 01;37(19):1598-1600 1 Citation |
| 1 | Clinical and Angiographic Predictors of Patient-Reported Angina 1 Year After Coronary Artery Bypass Graft Surgery. (Hattler B, Carr BM, Messenger J, Spertus J, Ebrahimi R, Bishawi M, Quin JA, Almassi GH, Collins JF, Kozora E, Grover FL, Shroyer ALW) Circ Cardiovasc Qual Outcomes 2019 Apr;12(4):e005119 6 Citations |
| 1 | Discussion: Patient-Reported Outcome Measures for Toe-to-Hand Transfer: A Prospective Longitudinal Study. (Sasor SE, Chung KC) Plast Reconstr Surg 2019 Apr;143(4):1133-1134 1 Citation |
| 1 | Novel Health Information Technology Tool Use by Adult Patients Undergoing Allogeneic Hematopoietic Cell Transplantation: Longitudinal Quantitative and Qualitative Patient-Reported Outcomes. (Runaas L, Hoodin F, Munaco A, Fauer A, Sankaran R, Churay T, Mohammed S, Seyedsalehi S, Chappell G, Carlozzi N, Fetters MD, Kentor R, McDiarmid L, Brookshire K, Warfield C, Byrd M, Kaziunas S, Maher M, Magenau J, An L, Cohn A, Hanauer DA, Choi SW) JCO Clin Cancer Inform 2018 Dec;2:1-12 11 Citations |
| 1 | Evidence-Based Abdominoplasty Review With Body Contouring Algorithm. (Rosenfield LK, Davis CR) Aesthet Surg J 2019 May 16;39(6):643-661 25 Citations |
| 1 | Graft Versus Host Disease Clinical Trials: Is it Time for Patients Centered Outcomes to Be the Primary Objective? (Shaw BE) Curr Hematol Malig Rep 2019 Feb;14(1):22-30 11 Citations |
| 2 | Randomized controlled trial of individualized treatment summary and survivorship care plans for hematopoietic cell transplantation survivors. (Majhail NS, Murphy E, Laud P, Preussler JM, Denzen EM, Abetti B, Adams A, Besser R, Burns LJ, Cerny J, Drexler R, Hahn T, Idossa L, Jahagirdar B, Kamani N, Loren A, Mattila D, McGuirk J, Moore H, Reynolds J, Saber W, Salazar L, Schatz B, Stiff P, Wingard JR, Syrjala KL, Baker KS) Haematologica 2019 May;104(5):1084-1092 44 Citations |
| 1 | Improved long-term patient-reported health and well-being outcomes of early-stage breast cancer treated with partial breast proton therapy. (Teichman SL, Do S, Lum S, Teichman TS, Preston W, Cochran SE, Garberoglio CA, Grove R, Davis CA, Slater JD, Bush DA) Cancer Med 2018 Dec;7(12):6064-6076 11 Citations |
| 1 | Patient-Reported Outcomes and Factors Associated With Patient Satisfaction After Surgical Treatment of Facial Nonmelanoma Skin Cancer. (Sasor SE, Cook JA, Loewenstein SN, Wooden WA, Cohen AC, Chu MW, Tholpady SS) JAMA Surg 2019 Feb 01;154(2):179-181 3 Citations |
| 1 | Content validity of the PROMIS® pediatric family relationships measure for children with chronic illness. (Flynn KE, Kliems H, Saoji N, Svenson J, Cox ED) Health Qual Life Outcomes 2018 Oct 19;16(1):203 3 Citations |
| 1 | Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome. (Handisides JC, Hollenbeck-Pringle D, Uzark K, Trachtenberg FL, Pemberton VL, Atz TW, Bradley TJ, Cappella E, De Nobele S, Groh GK, Hamstra MS, Korsin R, Levine JC, Lindauer B, Liou A, Neal MKM, Markham LW, Morrison T, Mussatto KA, Olson AK, Pierpont MEM, Pyeritz RE, Radojewski EA, Roman MJ, Xu M, Lacro RV, Pediatric Heart Network Investigators) J Pediatr 2019 Jan;204:250-255.e1 23 Citations |
| 1 | Impact of a health information technology tool addressing information needs of caregivers of adult and pediatric hematopoietic stem cell transplantation patients. (Fauer AJ, Hoodin F, Lalonde L, Errickson J, Runaas L, Churay T, Seyedsalehi S, Warfield C, Chappell G, Brookshire K, Chaar D, Shin JY, Byrd M, Magenau J, Hanauer DA, Choi SW) Support Care Cancer 2019 Jun;27(6):2103-2112 21 Citations |
| 1 | Patient-reported outcomes and health status associated with chronic graft-versus-host disease. (Lee SJ, Onstad L, Chow EJ, Shaw BE, Jim HSL, Syrjala KL, Baker KS, Buckley S, Flowers ME) Haematologica 2018 Sep;103(9):1535-1541 58 Citations |
| 1 | Treating to Target-A Realistic Goal in Psoriasis? (Gordon KB, Armstrong AW, Menter MA, Wu JJ) Semin Cutan Med Surg 2018 Feb;37(2S):S44-S47 |
| 4 | Design and rationale for the life after stopping tyrosine kinase inhibitors (LAST) study, a prospective, single-group longitudinal study in patients with chronic myeloid leukemia. (Atallah E, Schiffer CA, Weinfurt KP, Zhang MJ, Radich JP, Oehler VG, Pinilla-Ibarz J, Deininger MWN, Lin L, Larson RA, Mauro MJ, Moore JO, Ritchie EK, Shah NP, Silver RT, Wadleigh M, Cortes J, Thompson J, Guhl J, Horowitz MM, Flynn KE) BMC Cancer 2018 Apr 02;18(1):359 16 Citations |
| 3 | Impact of pediatric cancer on family relationships. (Erker C, Yan K, Zhang L, Bingen K, Flynn KE, Panepinto J) Cancer Med 2018 May;7(5):1680-1688 37 Citations |
| 1 | Inflammatory Bowel Diseases Can Adversely Impact Domains of Sexual Function Such as Satisfaction with Sex Life. (Eluri S, Cross RK, Martin C, Weinfurt KP, Flynn KE, Long MD, Chen W, Anton K, Sandler RS, Kappelman MD) Dig Dis Sci 2018 Jun;63(6):1572-1582 30 Citations |
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| 1 | Patient-reported outcomes of occipitocervical and atlantoaxial fusions in children. (Vedantam A, Hansen D, Briceño V, Brayton A, Jea A) J Neurosurg Pediatr 2017 Jan;19(1):85-90 14 Citations |
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